Full Schedule

8:30 AM - 9:30 AM MYT

Musculoskeletal Access in Bleeding Disorder Care: Current State of Global Equity / How to treat with low resources

Location: Hall 1

Musculoskeletal

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Children Hospital of Tunis

Co-Chair: – Division of Therapeutic Development for Intractable Bone Diseases, Graduate School of Medicine and Faculty of Medicine, The University of Tokyo, Tokyo, Japan

Musculoskeletal

8:32 AM - 8:42 AM MYT

Global landscape of MSK care

Location: Hall 1

Speaker: – World Federation of Hemophilia

Musculoskeletal

8:42 AM - 8:52 AM MYT

Challenges in integrating new orthopedic specialists into MSK care - barriers and opportunities

Location: Hall 1

Speaker: – Buenos Aires University

Musculoskeletal

8:52 AM - 9:02 AM MYT

MSK management in low resource settings

Location: Hall 1

Speaker: – HOSPITAL SULTANAH BAHIYAH

Musculoskeletal

9:02 AM - 9:08 AM MYT

Different experiences around the world/different realities - Patient perspective - LIC

Location: Hall 1

Speaker: – Association Tunisienne De L'hémophilie

Musculoskeletal

9:08 AM - 9:14 AM MYT

Different experiences around the world/different realities - Patient perspective - high resource

Location: Hall 1

Speaker: – Haemophilia Foundation Australia

Musculoskeletal

9:14 AM - 9:30 AM MYT

Q&A

Location: Hall 1

Musculoskeletal

8:30 AM - 9:30 AM MYT

Obstetrics & Gynecology

Location: Hall 2

Medical

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Kansai Medical University Hospital

Co-Chair: – National Coagulation Centre, St. James's Hospital

Medical

8:32 AM - 8:47 AM MYT

Unique challenges of bleeding in women – heavy menstrual bleeding, menopause, and aging

Location: Hall 2

Speaker: – Brigham And Women's Hospital - Harvard Medical School

Medical

8:47 AM - 9:02 AM MYT

Reproductive issues/fertility - Embryo selection and IVF for bleeding disorders - Delivery of pregnancy - Pregnancy and fertility management issues

Location: Hall 2

Speaker: – The Royal Free Foundation Hospital

Medical

9:02 AM - 9:17 AM MYT

Carrier screening – Strategies for identifying potential carriers and ideal timing of genetic testing

Location: Hall 2

Speaker: – Department of Haematology - Monash Health and the Alfred Hospital

Medical

9:17 AM - 9:30 AM MYT

Q&A

Location: Hall 2

Medical

8:30 AM - 9:30 AM MYT

Making Digital Health Work for Everyone: Patient-Centered Innovation in Bleeding Disorders

Location: Plenary Theatre

PWBD

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Haemophilia New Zealand

PWBD

8:32 AM - 8:47 AM MYT

An educational app to provide education to the Senegalese bleeding disorder population

Location: Plenary Theatre

Speaker: – University of Geneva, Geneva Digital Health Hub (gdhub)

PWBD

8:47 AM - 9:02 AM MYT

A self-diagnostic screening tool for hemophilia patients using an application in Indonesia

Location: Plenary Theatre

Speaker: – Universitas Lambung Mangkurat

PWBD

9:02 AM - 9:17 AM MYT

“Bleed Predicator” – Pattern recognition for shared decision making & individualised treatment plans

Location: Plenary Theatre

Speaker: – South African Haemophilia Foundation

PWBD

9:17 AM - 9:30 AM MYT

Q&A

Location: Plenary Theatre

PWBD

8:30 AM - 9:30 AM MYT

Free Paper Session: Care Delivery and Patient Support

Location: MR 304+305

Psychosocial

8:30 AM - 8:31 AM MYT

Welcome & introduction

Location: MR 304+305

Chair: – IHTC

Psychosocial

8:31 AM - 8:45 AM MYT

Bridging the Gap: A Strategic Framework for Integrating Palliative Medicine into the Comprehensive Care of the Aging Person with Hemophilia

Location: MR 304+305

Presenting Author: – University of the Witwatersrand

Psychosocial

8:45 AM - 9:00 AM MYT

Impact of Implementing a Pharmacist-Led Multidisciplinary Clinic for Haemophilia

Location: MR 304+305

Presenting Author: – Ampang Hospital

Psychosocial

9:00 AM - 9:15 AM MYT

Improving Information Provision in Rare Bleeding Disorders

Location: MR 304+305

Presenting Author: – Erasmus MC Sophia Children's Hospital

Psychosocial

9:15 AM - 9:30 AM MYT

The body speaks before the child: Subjective constitution in children with hemophilia

Location: MR 304+305

Presenting Author: – Fundación privada catalana de Hemofilia

Psychosocial

8:30 AM - 9:30 AM MYT

Free Paper Session: Advances in Hemophilia Treatment and Management

Location: Hall 3

Medical

8:30 AM - 8:31 AM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – University of Washington

Co-Chair: – Ramathibodi hospital

Medical

8:31 AM - 8:45 AM MYT

Perspectives of patients, caregivers and healthcare professionals in Sri Lanka and Thailand regarding hemophilia B gene therapy

Location: Hall 3

Presenting Author: – St. Jude Children's Research Hospital

Medical

8:45 AM - 9:00 AM MYT

Joint Health Outcomes with Efanesoctocog Alfa in Adults/Adolescents from XTEND-1 Continuing in XTEND-ed: Plain Language Summary

Location: Hall 3

Presenting Author: – University Hospital Frankfurt, Department of Paediatrics

Medical

9:00 AM - 9:15 AM MYT

Accurate Detection of FVIII Inhibitor by Modified Nijmegen-Bethesda Assay in Patients with Emicizumab Prophylaxis

Location: Hall 3

Presenting Author: – Beijing Chilidren's Hospital, Capital Medical University

Medical

9:15 AM - 9:30 AM MYT

Immune Tolerance Induction in Haemophilia A Patients with Inhibitors: Updated Analysis from MOTIVATE

Location: Hall 3

Presenting Author: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Medical

9:45 AM - 10:45 AM MYT

Bringing Gene Therapy into Real World Clinical Practice

Location: Hall 2

Medical

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University of Washington

Co-Chair: – Institute of Hematology and Blood Diseases Hospital

Medical

9:47 AM - 10:02 AM MYT

Current gene therapy landscape for bleeding disorders - Benefits and limitations

Location: Hall 2

Speaker: – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

Medical

10:02 AM - 10:17 AM MYT

Establishment of a gene therapy centre in clinical practice

Location: Hall 2

Speaker: – University Hospital Frankfurt

Medical

10:17 AM - 10:32 AM MYT

Challenges in long-term monitoring for adverse events

Location: Hall 2

Speaker: – Hemocentro Unicamp, University of Campinas

Medical

10:32 AM - 10:45 AM MYT

Q&A

Location: Hall 2

Medical

9:45 AM - 10:45 AM MYT

Integrated Approach to Hemostasis, Joint Health, and Pelvic Floor for WGBD

Location: Hall 1

Musculoskeletal

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Kansai Medical University Hospital

Co-Chair: – Fondazione Cà Granda IRCCS Ospedale Policlinico Milano

Musculoskeletal

9:47 AM - 9:57 AM MYT

Diagnosis and management updates in WGBD

Location: Hall 1

Speaker: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Musculoskeletal

9:57 AM - 10:07 AM MYT

MSK health in WGBD - focus on joint health

Location: Hall 1

Speaker: – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

10:07 AM - 10:17 AM MYT

Pelvic floor rehabilitation - a missing piece in comprehensive care

Location: Hall 1

Speaker: – FlowLab

Musculoskeletal

10:17 AM - 10:27 AM MYT

Patient perspective

Location: Hall 1

Speaker: – hemophilia foundation pakistan

Musculoskeletal

10:27 AM - 10:45 AM MYT

Q&A

Location: Hall 1

Musculoskeletal

9:45 AM - 10:45 AM MYT

Access to Care - Not Just Access to Treatment

Location: Plenary Theatre

PWBD

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Hemophilia of Georgia

PWBD

9:47 AM - 9:59 AM MYT

No diagnosis, no care - Diagnostic challenges in developing countries

Location: Plenary Theatre

Speaker: – IHTC Dakar Senegal

PWBD

9:59 AM - 10:11 AM MYT

Giving voice to the rare - Driving access through advocacy

Location: Plenary Theatre

Speaker: – Haemophilia Association of Mauritius

PWBD

10:11 AM - 10:23 AM MYT

Doctors cannot be all things to all people - Getting access to the full comprehensive care team

Location: Plenary Theatre

Speaker: – IHTC

PWBD

10:23 AM - 10:35 AM MYT

I Would Walk 500 Miles - Accessing care for the ultra-rural

Location: Plenary Theatre

Speaker: – Hemophilia Association of Davao (HAnD)

PWBD

10:35 AM - 10:45 AM MYT

Q&A

Location: Plenary Theatre

PWBD

9:45 AM - 10:45 AM MYT

Identity and Life Stages in Bleeding Disorders

Location: Hall 3

Psychosocial

9:45 AM - 9:55 AM MYT

Welcome and introduction

Location: Hall 3

Chair: – Catalan Association of Hemophilia

Psychosocial

9:55 AM - 10:05 AM MYT

Bleeding and being heard: Women and girls with bleeding disorders

Location: Hall 3

Speaker: – Brigham and Women's Hospital

Psychosocial

10:05 AM - 10:15 AM MYT

Aging with hemophilia: Redefining wellbeing and independence

Location: Hall 3

Speaker: – Alfred Health

Psychosocial

10:15 AM - 10:25 AM MYT

When the future is now: Psychosocial impact of gene therapy and innovation

Location: Hall 3

Speaker: – NHS Southern Haemophilia Network

Psychosocial

10:25 AM - 10:35 AM MYT

Different worlds, same diagnosis: Cultural competence in psychosocial care

Location: Hall 3

Speaker: – Haemophilia Association of Mauritius

Psychosocial

10:35 AM - 10:45 AM MYT

Q&A

Location: Hall 3

Psychosocial

9:45 AM - 10:45 AM MYT

Free Paper Session: From Prevention to Surgery: Oral Health in Bleeding Disorders

Location: MR 304+305

Dental

9:45 AM - 9:46 AM MYT

Welcome & introduction

Location: MR 304+305

Co-Chair: – University of Novi Sad, Faculty of Medicine

Co-Chair: – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

9:46 AM - 10:00 AM MYT

Evidence-Based Optimization of Clotting Factor Concentrates for Dental Procedures in People with Haemophilia

Location: MR 304+305

Presenting Author: – Manipal College Of Dental Sciences Manipal

Dental

10:00 AM - 10:15 AM MYT

Major dental surgeries conducted under fitusiran prophylaxis in people with hemophilia A and B, with and without inhibitors

Location: MR 304+305

Presenting Author: – Northwell Health

Dental

10:15 AM - 10:30 AM MYT

Assessment of Factors Influencing Access of Patients with Hemophilia to Dental Services - Evaluation by Patients and Dentists: The Two Sides of the Same Coin

Location: MR 304+305

Presenting Author: – University of Debrecen

Dental

10:30 AM - 10:45 AM MYT

Lifestyles and nutrition in pediatric patients with hemostatic disorders: an oral health study from a parental perspective.

Location: MR 304+305

Presenting Author: – Universidad Juárez Autónoma De Tabasco

Dental

10:45 AM - 11:30 AM MYT

COFFEE BREAK / MODERATED POSTER PODS

Location: Exhibit Hall 7

11:30 AM - 12:00 PM MYT

Enhancing Evidence for Care in Underserved Populations

Location: Hall 2

Medical

11:32 AM - 12:00 PM MYT

Enhancing evidence for care in underserved populations

Location: Hall 2

Speaker: – University of the Witwatersrand and NHLS

Medical

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Hall 2

Chair: – Wells Center for Pediatric Research, Indiana University School of Medicine

Medical

11:30 AM - 12:00 PM MYT

Artificial Intelligence in Haemophilia Care: A Narrative Review of Current Evidence and Future Opportunities

Location: Plenary Theatre

PWBD

11:32 AM - 12:00 PM MYT

Artificial Intelligence in Haemophilia Care: A Narrative Review of Current Evidence and Future Opportunities

Location: Plenary Theatre

Speaker: – Cliniques Universitaires Saint-Luc

PWBD

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Plenary Theatre

Chair: – South African Haemophilia Foundation

PWBD

12:00 PM - 1:30 PM MYT

LUNCH BREAK

Location: Exhibit Hall 7

1:30 PM - 3:00 PM MYT

Updated Diagnosis of von Willebrand Disease: Global Access, Genomic Insights, and Quality Assurance

Location: MR 304+305

Laboratory Sciences

1:30 PM - 1:33 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – UK NEQAS Blood Coagulation

Co-Chair: – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

1:33 PM - 2:02 PM MYT

Laboratory diagnosis of von Willebrand disease: Considerations by geography and resource availability

Location: MR 304+305

Speaker: – Christian Medical College

Laboratory Sciences

2:02 PM - 2:31 PM MYT

Assessing diagnostic progress in von Willebrand disease through external quality evaluation schemes

Location: MR 304+305

Speaker: – UK NEQAS For Blood Coagulation

Laboratory Sciences

2:31 PM - 3:00 PM MYT

von Willebrand disease: Challenges and opportunities of next-generation sequencing

Location: MR 304+305

Speaker: – A. Bianchi Bonomi Hemophilia and Thrombosis Center

Laboratory Sciences

1:30 PM - 3:00 PM MYT

Rarer Bleeding Disorders

Location: Hall 2

Medical

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University Lyon 1

Co-Chair: – Ampang Hospital

Medical

1:32 PM - 1:50 PM MYT

Glanzmann thrombasthenia and other platelet function disorders

Location: Hall 2

Speaker: – Vivantes Hospital Friedrichshain

Medical

1:50 PM - 2:08 PM MYT

Hereditary fibrinogen disorders: current challenges and unmet needs

Location: Hall 2

Speaker: – Division of Angiology and Hemostasis, University Hospitals of Geneva and Faculty of Medicine of Geneva

Medical

2:08 PM - 2:26 PM MYT

Congenital factor XI deficiency: From factor activity level to bleeding phenotype

Location: Hall 2

Speaker: – Radboud University Medical Center

Medical

2:26 PM - 2:44 PM MYT

Bleeding Disorder of Unknown Cause: Diagnostic Challenges and Overlap with Other (Rare) Bleeding Disorders

Location: Hall 2

Speaker: – Division of Haematology and Haemostaseology, Department of Medicine I, Medical University of Vienna

Medical

2:44 PM - 3:00 PM MYT

Q&A

Location: Hall 2

Medical

1:30 PM - 3:00 PM MYT

Everything Is Fine... But It’s Not: Understanding and Managing Chronic Pain in Bleeding Disorders

Location: Plenary Theatre

PWBD

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Ohio State University Hemophilia Treatment Center

PWBD

1:32 PM - 1:47 PM MYT

Joint health and inflammation

Location: Plenary Theatre

Speaker: – University of California

PWBD

1:47 PM - 2:02 PM MYT

Managing chronic joint pain: What are my options?

Location: Plenary Theatre

Speaker: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

PWBD

2:02 PM - 2:17 PM MYT

Move to improve: Managing pain through movement

Location: Plenary Theatre

Speaker: – Royal Adelaide Hospital

PWBD

2:17 PM - 2:32 PM MYT

Pain is more than physical: The emotional and mental load

Location: Plenary Theatre

Speaker: – Hemophilia Center of Western Pennsylvania

PWBD

2:32 PM - 2:42 PM MYT

Everything is fine but it is not… (patient perspective)

Location: Plenary Theatre

Speaker: – UAE Hemophilia Society

PWBD

2:42 PM - 3:00 PM MYT

Q&A

Location: Plenary Theatre

PWBD

1:30 PM - 3:00 PM MYT

Menstrual Health & Heavy Menstrual Bleeding

Location: Hall 1

WGBD

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Aziza Othmana Hospital

WGBD

1:32 PM - 2:02 PM MYT

HMB screening and management (children, late teens/young adults, premenopausal women) Hemophilia, VWD and other BDs and impact on quality of life

Location: Hall 1

Speaker: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

WGBD

2:02 PM - 2:22 PM MYT

Cultural taboos around menstruation

Location: Hall 1

Speaker: – The Royal Free Foundation Hospital

WGBD

2:22 PM - 2:42 PM MYT

Menstrual tracking tools and how to encourage women to use them

Location: Hall 1

Speaker: – Mediclinic Dubai

WGBD

2:42 PM - 3:00 PM MYT

Q&A

Location: Hall 1

WGBD

1:30 PM - 3:00 PM MYT

Free Paper Session: Gene Therapy, Clinical Trials, and Emerging Therapies

Location: Hall 3

Medical

1:30 PM - 1:31 PM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – Beijing Children's Hospital

Co-Chair: – St. Jude Children's Research Hospital

Medical

1:31 PM - 1:45 PM MYT

Is Pharmacokinetic Variability Justification for Plasma Monitoring of Anti-TFPI Therapies in Haemophilia?

Location: Hall 3

Presenting Author: – Hospital Universitario Alvaro Cunqueiro, EOXI Vigo

Medical

1:45 PM - 2:00 PM MYT

Safety and Efficacy of Dalnacogene Ponparvovec (BBM-H901) in moderate to severe adult hemophilia B participants: Long term follow-up data in an Early phase pilot Study

Location: Hall 3

Presenting Author: – Institute of Hematology & Hospital of Blood Diseases Chinese Academy of Medical Sciences & Peking Union Medical college

Medical

2:00 PM - 2:15 PM MYT

Subcutaneous Four-Week Dosing of the Novel Protein S Antibody VGA039 Demonstrates Safety and Clinically Meaningful Bleed Reduction in Patients with Von Willebrand Disease: Phase 1/2 Multi-Dose Study Results

Location: Hall 3

Presenting Author: – Queensland Haemophilia Centre, Department of Haematology and BMT, Royal Brisbane and Women’s Hospital, Brisbane, Australia

Medical

2:15 PM - 2:30 PM MYT

Evaluating the Safety and Tolerability of Switching from Emicizumab to Fitusiran Prophylaxis in Males Aged ≥12 Years with Severe Hemophilia A, with and without Inhibitors: SWITCH Study

Location: Hall 3

Presenting Author: – Children's Hospital Los Angeles, University of Southern California Keck School of Medicine

Medical

2:30 PM - 2:45 PM MYT

Safety, Pharmacodynamics, and Efficacy of NXT007 After Switching From Emicizumab in Hemophilia A With and Without Inhibitors (NXTAGE Part C)

Location: Hall 3

Presenting Author: – National Taiwan University Hospital

Medical

2:45 PM - 3:00 PM MYT

Health-Related Quality of Life Outcomes for Marstacimab in Participants With Severe Hemophilia A or Moderately Severe to Severe Hemophilia B With Inhibitors: Results From the Phase 3 BASIS Trial

Location: Hall 3

Presenting Author: – University of the Witwatersrand and NHLS

Medical

3:00 PM - 3:45 PM MYT

COFFEE BREAK / ASK THE EXPERTS PODS

Location: Exhibit Hall 7

3:00 PM - 3:45 PM MYT

POD A - Ask the Experts: Psychosocial Care for the Bleeding Disorder Community

Location: Exhibit Hall 7

Psychosocial

3:00 PM - 3:45 PM MYT

The importance of psychosocial care

Location: Exhibit Hall 7

Speaker: – Brigham and Women's Hospital

Psychosocial

3:00 PM - 3:45 PM MYT

Real examples in real life

Location: Exhibit Hall 7

Speaker: – Fundación de la Hemofilia de la Argentina

Psychosocial

3:00 PM - 3:45 PM MYT

How to improve psychosocial support

Location: Exhibit Hall 7

Speaker: – Haemophilia Association of Mauritius

Psychosocial

3:00 PM - 3:45 PM MYT

POD B - Ask the Experts: Family Histories & Pedigrees

Location: Exhibit Hall 7

Nurses

3:00 PM - 3:45 PM MYT

Family Histories & Pedigrees

Location: Exhibit Hall 7

Panelist: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Panelist: – BC Children's Hospital

Panelist: – IHTC

Panelist: – Amsterdam University Medical Centre

Panelist: – Wellington Regional Haemophilia Centre, Wellington Hospital

Panelist: – Moi Teaching and Referral Hospital

Panelist: – Manipal College of Nursing, Manipal Academy of Higher Education

Panelist: – Tawam Hospital

Nurses

3:00 PM - 3:45 PM MYT

POD C - Ask the Experts: Prevention of Oral Diseases: What You Need to Know

Location: Exhibit Hall 7

Dental

3:00 PM - 3:45 PM MYT

Discussion leads

Location: Exhibit Hall 7

Speaker: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Speaker: – Universidad Juárez Autónoma De Tabasco

Speaker: – King Faisal Specialist Hospital

Dental

3:00 PM - 3:45 PM MYT

POD D - Ask the Experts: Clinical Case: PWBD and Radiculopathy

Location: Exhibit Hall 7

Musculoskeletal

3:00 PM - 3:45 PM MYT

Clinical Case: PWBD and Radiculopathy

Location: Exhibit Hall 7

Speaker: – Sahyadri Speciality Hospital, Haemophilia Society of Maharashtra, Pune chapter/ Haemophilia Society Pune Chapter

Speaker: – Fondazione Cà Granda IRCCS Ospedale Policlinico Milano

Musculoskeletal

3:45 PM - 4:45 PM MYT

Innovations in Hemostasis Management in Asia

Location: Plenary Theatre

Medical

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – Hemocentro Unicamp, University of Campinas

Co-Chair: – Singapore General Hospital

Medical

3:47 PM - 3:59 PM MYT

Overview of gene therapy clinical trials of hemophilia in China

Location: Plenary Theatre

Speaker: – Thrombosis and Hemostasis Center, Institute of Hematology & Blood Diseases Hospital

Medical

3:59 PM - 4:11 PM MYT

AAV vector engineering and large-scale manufacture

Location: Plenary Theatre

Speaker: – Belief BioMed

Medical

4:11 PM - 4:23 PM MYT

Update on clinical trial of FX activator for hemophilia in China

Location: Plenary Theatre

Speaker: – Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College

Medical

4:23 PM - 4:35 PM MYT

New targeted therapy for bleeding disorders: Phase I/II clinical trials of SR604 for prophylactic treatment of hemophilia and FVII deficiency

Location: Plenary Theatre

Speaker: – Shanghai RAAS Blood Products Co, Ltd

Medical

4:35 PM - 4:45 PM MYT

Q&A

Location: Plenary Theatre

Medical

3:45 PM - 4:45 PM MYT

Pathology of the Elbow

Location: MR 304+305

Musculoskeletal

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Luskin Orthopaedic Institute for Children

Co-Chair: – Royal Adelaide Hospital

Musculoskeletal

3:47 PM - 4:02 PM MYT

Synovitis & arthropathy: Clinical presentation and diagnosis

Location: MR 304+305

Speaker: – Fundacion Santa Fe de Bogota

Musculoskeletal

4:02 PM - 4:12 PM MYT

Arthroplasty and ulnar nerve compression

Location: MR 304+305

Speaker: – University of Florence

Musculoskeletal

4:12 PM - 4:22 PM MYT

Rehabilitative aspects

Location: MR 304+305

Speaker: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Musculoskeletal

4:22 PM - 4:32 PM MYT

Post-operative rehabilitation in the elbow

Location: MR 304+305

Speaker: – Adult Inherited Bleeding Disorders Program of Manitoba

Musculoskeletal

4:32 PM - 4:45 PM MYT

Q&A

Location: MR 304+305

Musculoskeletal

3:45 PM - 4:45 PM MYT

WFH Programs Advancing Care for PWBD: What We Can Learn from Pakistan

Location: Hall 1

WFH

3:45 PM MYT

Chair

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

3:45 PM - 3:48 PM MYT

Welcome

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

3:48 PM - 3:55 PM MYT

Overview of Pakistan

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

3:55 PM - 4:05 PM MYT

WFH programs in Pakistan

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

4:05 PM - 4:45 PM MYT

Panel discussion

Location: Hall 1

Panelist: – Hemophilia Foundation-Pakistan [HFP]

Panelist: – World Federation of Hemophilia

Panelist: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: – HAEMOPHILIA WELFARE SOCIETY, KARACHI. ZIAUDDIN UNIVERSITY HOSPITAL

WFH

3:45 PM - 4:45 PM MYT

Aging with Bleeding Disorders: Health, Frailty, and Comorbidities

Location: Hall 2

Medical

3:45 PM - 3:46 PM MYT

Welcome & introduction

Location: Hall 2

Co-Chair: – Singapore General Hospital

Co-Chair: – Canterbury Christ Church University

Medical

3:47 PM - 4:05 PM MYT

We’re living longer—now what? A lived experience perspective on aging with hemophilia

Location: Hall 2

Speaker: – Institute for Policy Advancement Ltd

Medical

4:05 PM - 4:25 PM MYT

Impact of comorbidities on treatment choice

Location: Hall 2

Speaker: – University of Utah

Medical

4:25 PM - 4:45 PM MYT

Navigating frailty and preventive care

Location: Hall 2

Speaker: – Innovative Hematology

Medical

3:45 PM - 4:45 PM MYT

Am I Selfish for Wanting a Family? Family Planning for People with Bleeding Disorders

Location: Hall 3

PWBD

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – Haemophilia Foundation of Nigeria

Co-Chair: – Children's Healthcare of Atlanta and Emory University

PWBD

3:47 PM - 3:59 PM MYT

Behind every gene is a story: Genetic counseling and informed decisions

Location: Hall 3

Speaker: – Sant Joan de Deu Hospital, Barcelona. Spain

PWBD

3:59 PM - 4:11 PM MYT

Beyond the biology: Psychosocial dimensions of family planning

Location: Hall 3

Speaker: – Empowering Minds Society for Research and Development

PWBD

4:11 PM - 4:19 PM MYT

Not just in the passenger seat: Dads driving the family planning conversation

Location: Hall 3

Speaker: – Messrs. Taqrir Akramin & Co.

PWBD

4:19 PM - 4:27 PM MYT

Becoming a mother with a bleeding disorder: One woman’s story and the options we have

Location: Hall 3

Speaker: – Fundación de la Hemofilia de Argentina

PWBD

4:27 PM - 4:45 PM MYT

Discussion and Q&A

Location: Hall 3

PWBD

5:00 PM - 6:00 PM MYT

Transition from Pediatric to Adult Care in Dentistry

Location: MR 304+305

Dental

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Royal London Hospital

Co-Chair: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Dental

5:02 PM - 5:17 PM MYT

Dental anxiety in children with bleeding disorders and transition

Location: MR 304+305

Speaker: – King Faisal Specialist Hospital

Dental

5:17 PM - 5:32 PM MYT

Dental care beyond general dentistry: Experience in orthodontics and maxillofacial surgery for our patients with severe bleeding disorder

Location: MR 304+305

Speaker: – CHU de Québec-Université Laval

Dental

5:32 PM - 5:47 PM MYT

How to prevent sport-related dental injuries in PwBD?

Location: MR 304+305

Speaker: – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

5:47 PM - 6:00 PM MYT

Q&A

Location: MR 304+305

Dental

5:00 PM - 6:00 PM MYT

Gene Editing for Inherited Bleeding Disorders - The Next Frontier

Location: Hall 2

Medical

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Queen's University

Co-Chair: – Thrombosis and Hemostasis Center, Institute of Hematology & Blood Diseases Hospital

Medical

5:02 PM - 5:17 PM MYT

The tools of gene editing

Location: Hall 2

Speaker: – University of Ferrara

Medical

5:17 PM - 5:32 PM MYT

Ongoing trials in gene editing for hemophilia

Location: Hall 2

Speaker: – University of Michigan

Medical

5:32 PM - 5:47 PM MYT

Safety of gene editing

Location: Hall 2

Speaker: – McKusick-Nathans Department of Genetic Medicine; Johns Hopkins School of Medicine Faculty

Medical

5:47 PM - 6:00 PM MYT

Q&A

Location: Hall 2

Medical

5:00 PM - 6:00 PM MYT

Don't Leave Anyone Behind

Location: Hall 3

Nurses

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – Moi Teaching and Referral Hospital

Nurses

5:02 PM - 5:17 PM MYT

Mild & moderate haemophilia prophylaxis

Location: Hall 3

Speaker: – Ohio State University Hemophilia Treatment Center

Nurses

5:17 PM - 5:27 PM MYT

Mild hemophilia inhibitor

Location: Hall 3

Speaker: – Women's & Children's Hospital Adelaide

Nurses

5:27 PM - 5:37 PM MYT

The lived experience of the hemophilia carrier

Location: Hall 3

Speaker: – Kenya Haemophlia Association

Nurses

5:37 PM - 5:47 PM MYT

Muscle bleeding in mild haemophilia

Location: Hall 3

Speaker: – Amsterdam University Medical Centre

Nurses

5:47 PM - 6:00 PM MYT

Q&A

Location: Hall 3

Nurses

5:00 PM - 6:00 PM MYT

Free Paper Session: Christine Lee Young Researcher Award

Location: Plenary Theatre

Medical

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Plenary Theatre

Co-Chair: – Cliniques Universitaires Saint-Luc

Co-Chair: – Queen's University

Co-Chair: – Lakshmi Hospital & Research Centre

Medical

5:01 PM - 5:12 PM MYT

Identification and Impact of Risk Factors for Recurrent Pain in Patients with Severe Hemophilia A

Location: Plenary Theatre

Presenting Author: – Dongguk University, Department of Industrial and Systems Engineering

Medical

5:12 PM - 5:24 PM MYT

Pharmacokinetic and pharmacodynamic variability of emicizumab in real-world haemophilia A patients: insights from a long-term single-centre cohort study

Location: Plenary Theatre

Presenting Author: – IRCCS Humanitas Research Hospital

Medical

5:24 PM - 5:36 PM MYT

Heavy Menstrual Bleeding in Bleeding Disorders of Unknown Cause: A Common Symptom Influencing Daily Life Functioning

Location: Plenary Theatre

Presenting Author: – Erasmus MC Sophia Children's Hospital

Medical

5:36 PM - 5:48 PM MYT

Predictors of Joint Health in Canadian Persons with Haemophilia: A National Registry Analysis of HJHS Outcomes

Location: Plenary Theatre

Presenting Author: – Department of Rehabilitation Medicine, Faculty of Medicine Ramathibodi Hospital, Mahidol University

Medical

5:48 PM - 6:00 PM MYT

Blood Flow Restriction Training: A Safe and Viable Alternative to Traditional Moderate-to-High Load Resistance Exercise in Hemophilia

Location: Plenary Theatre

Presenting Author: – University of Valencia

Medical

5:00 PM - 6:00 PM MYT

Free Paper Session: Quality of Life and Patient Outcomes

Location: Hall 1

PWBD

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Hall 1

Co-Chair: – Lausanne University Hospital

Co-Chair: – Syrian Hemophilia Society

PWBD

5:02 PM - 5:12 PM MYT

Nationwide Haemophilia Training to Decentralise Care in Kenya: A Scalable Model for Resource-Limited Settings

Location: Hall 1

Presenting Author: – Kenya Haemophilia Association

PWBD

5:12 PM - 5:24 PM MYT

Migration for Hemophilia Treatment: Impact on Health Outcomes and Quality of Life

Location: Hall 1

Presenting Author: – ASHECOVA

PWBD

5:24 PM - 5:36 PM MYT

Development of a refined data dashboard for PROBE: Enhancing data interpretation and advocacy support for national patient organizations

Location: Hall 1

Presenting Author: – Institute for Policy Advancement Ltd

PWBD

5:36 PM - 5:48 PM MYT

Clinical, Functional, and Quality of Life Outcomes with Emicizumab in Children with Severe Hemophilia A: A Large Multicenter Retrospective Study

Location: Hall 1

Presenting Author: – Shabrawishi Hospital

PWBD

5:48 PM - 6:00 PM MYT

Exploring Mim8 Treatment Experiences of Adults and Adolescents With Haemophilia A Participating in the FRONTIER2 Study – A Qualitative In-Trial Interview Study

Location: Hall 1

Presenting Author: – Vivantes Hospital Friedrichshain

PWBD

6:00 PM - 6:30 PM MYT

Twinning Event

Location: MR 302+303

6:30 PM - 7:00 PM MYT

WGBD Initiative Event

Location: MR 302+303

7:00 PM - 8:00 PM MYT

WFH Programs Networking Event

Location: MR 302+303