Full Schedule

8:30 AM - 9:25 AM MYT

Inaugural plenary

Location: Hall 1+2+3

WFH

8:30 AM - 8:32 AM MYT

Welcome & introduction

Location: Hall 1+2+3

Chair: – World Federation of Hemophilia

WFH

8:32 AM - 8:42 AM MYT

WFH President Address

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

8:42 AM - 8:47 AM MYT

WHA Resolution on Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders

Location: Hall 1+2+3

Presenter: – Republic of Armenia,

WFH

8:47 AM - 8:54 AM MYT

President’s Award

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

8:54 AM - 9:14 AM MYT

VP Medical Address: Relentless health inequities

Location: Hall 1+2+3

WFH

9:14 AM - 9:19 AM MYT

WFH International Healthcare Volunteer Award

Location: Hall 1+2+3

WFH

9:25 AM - 10:45 AM MYT

Bleeding Disorder Care in a World of Crises

Location: Hall 1+2+3

WFH

9:25 AM MYT

Welcome & introduction

Location: Hall 1+2+3

Chair: – World Federation of Hemophilia

WFH

9:26 AM - 9:45 AM MYT

War, displacement and climate disasters: A new era of disruption in bleeding disorder care

Location: Hall 1+2+3

Speaker: – Faculty of Medicine; University of Geneva, Switzerland

WFH

9:45 AM - 10:00 AM MYT

Economic instability and access to therapies: The cost of uncertainty

Location: Hall 1+2+3

Speaker: – Irish Haemophilia Society

WFH

10:00 AM - 10:07 AM MYT

Delivering humanitarian aid in crisis zones

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

10:07 AM - 10:13 AM MYT

Experience from crisis-impacted country - War

Location: Hall 1+2+3

Speaker: – SI “Institute of blood pathology and transfusion medicine of NAMS of Ukraine

WFH

10:13 AM - 10:19 AM MYT

Experience from crisis-impacted country - Natural disaster

Location: Hall 1+2+3

Speaker: – Dr Cipto Mangunkusumo Hospital/Faculty of Medicine Universitas Indonesia

WFH

10:19 AM - 10:45 AM MYT

Panel discussion

Location: Hall 1+2+3

WFH

10:45 AM - 11:30 AM MYT

COFFEE BREAK / MODERATED POSTER PODS

Location: Exhibit Hall 7

10:55 AM - 11:25 AM MYT

Bleed Management in Patients with Inhibitors in the Evolving Treatment Landscape

Speaker:

11:30 AM - 12:30 PM MYT

Hemophilia: Bridging Classical Knowledge and Novel Interventions

Location: MR 304+305

Laboratory Sciences

11:30 AM - 11:33 AM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Christian Medical College

Co-Chair: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

Laboratory Sciences

11:33 AM - 11:52 AM MYT

Assay discrepancy in hemophilia: Implications for post-gene therapy monitoring

Location: MR 304+305

Speaker: – UK NEQAS Blood Coagulation

Laboratory Sciences

11:52 AM - 12:11 PM MYT

Rebalancing therapy in congenital hemophilia: What the laboratory should know?

Location: MR 304+305

Speaker: – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Laboratory Sciences

12:11 PM - 12:30 PM MYT

Unmet laboratory needs in FVIII mimetics and rebalancing therapies: The role of thrombin generation assay

Location: MR 304+305

Speaker: – University Lyon 1

Laboratory Sciences

11:30 AM - 12:30 PM MYT

When Bleeding is Rare but Critical: Clinical Dilemmas in Rare Bleeding Disorders

Location: Hall 3

Medical

11:30 AM MYT

Panelists

Location: Hall 3

Panelist: – Royal Free Hospital

Panelist: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Medical

11:30 AM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – KK Women's and Children's Hospital

Co-Chair: – Ampang Hospital

Medical

11:31 AM - 11:42 AM MYT

CASE 1 – Missed mild haemophilia A in a 70 year old man who underwent a TKR and complicated by infection; ended in amputation

Location: Hall 3

Speaker: – Taiping Hospital

Medical

11:42 AM - 11:54 AM MYT

CASE 2 – Type 2 von Willebrand disease only responsive to recombinant von Willebrand factor

Location: Hall 3

Speaker: – KK Women's and Children's Hospital

Medical

11:54 AM - 12:06 PM MYT

CASE 3 – FVII deficiency with intracranial haemorrhage

Location: Hall 3

Speaker: – Faculty of Medicine at Ramathibodi Hospital, Mahidol University

Medical

12:06 PM - 12:18 PM MYT

CASE 4 – Acquired FXIII deficiency

Location: Hall 3

Speaker: – The Alfred

Medical

12:18 PM - 12:30 PM MYT

CASE 5 – Portal vein thrombosis in a patient with congenital fibrinogen deficiency

Location: Hall 3

Speaker: – National Institute of Hematology and Blood Transfusion (NIHBT)

Medical

11:30 AM - 12:30 PM MYT

Leveraging WHO Essential Medicine List and Treatment Guidelines to Improve Care at the National Level

Location: Plenary Theatre

WFH

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – World Federation of Hemophilia

WFH

11:32 AM - 11:37 AM MYT

WFH Treatment Guidelines: What is new and in the pipeline

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

11:37 AM - 11:42 AM MYT

Leveraging Essential Medicines List update

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

11:42 AM - 11:52 AM MYT

Role of WFH Treatment Guidelines in shaping care globally

Location: Plenary Theatre

Speaker: – Hospital for Sick Children

WFH

11:52 AM - 12:02 PM MYT

Role of EML in guiding national EML and reimbursement policy

Location: Plenary Theatre

Speaker: – World Health Organization

WFH

12:02 PM - 12:12 PM MYT

Translating evidence-based policies into increased access to treatment and care: Experience of El Salvador

Location: Plenary Theatre

Speaker: – Hospital Nacional Especializado de Niños Benjamín Bloom

WFH

12:12 PM - 12:30 PM MYT

Q&A

Location: Plenary Theatre

WFH

11:30 AM - 12:30 PM MYT

Major Surgery with Non-Factor Replacement - Case Discussions

Location: Hall 2

Medical

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University Hospital Frankfurt, Department of Paediatrics

Co-Chair: – Luskin Orthopaedic Institute for Children

Medical

11:32 AM - 11:44 AM MYT

Emergency surgical procedures in patients on NFT

Location: Hall 2

Speaker: – Center for Bleeding Disorders and Coagulation, Careggi University Hospital

Medical

11:44 AM - 11:56 AM MYT

Is multiple elective orthopedic surgery in subjects on NFT always safe and feasible?

Location: Hall 2

Speaker: – University of Florence

Medical

11:56 AM - 12:08 PM MYT

Oral surgery in patients with NFT

Location: Hall 2

Speaker: – Manipal College Of Dental Sciences Manipal

Medical

12:08 PM - 12:20 PM MYT

Experiences of abdominal surgery in subjects on NFT

Location: Hall 2

Speaker: – Christian Medical College Vellore

Medical

12:20 PM - 12:30 PM MYT

Q&A

Location: Hall 2

Medical

11:30 AM - 12:30 PM MYT

Wellness in PWBD: Healthier Habits Leading to Better Health Outcomes

Location: Hall 1

PWBD

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Lakshmi Hospital & Research Centre

Co-Chair: – World Federation of Hemophilia

PWBD

11:32 AM - 11:47 AM MYT

Movement within reach: Physical wellness in low-resource settings

Location: Hall 1

Speaker: – National Hemophilia Foundation Of Thailand

Speaker: – HOSPITAL SULTANAH BAHIYAH

PWBD

11:47 AM - 11:57 AM MYT

Food as medicine: Practical nutrition for PWBD

Location: Hall 1

Speaker: – Royal Brisbane and Women's Hospital

PWBD

11:57 AM - 12:07 PM MYT

Breaking the fear cycle: Building safety to support healthy habits in PWBD

Location: Hall 1

Speaker: – National University of Tucuman

PWBD

12:07 PM - 12:15 PM MYT

Athlete/sports - PWBD

Location: Hall 1

Speaker: – Haemophilia Foundation Victoria

PWBD

12:15 PM - 12:30 PM MYT

Q&A

Location: Hall 1

PWBD

12:30 PM - 2:00 PM MYT

LUNCH BREAK

Location: Exhibit Hall 7

2:00 PM - 3:30 PM MYT

Performing Large Scale Community Genetic Analysis in the Bleeding Disorders Community

Location: Hall 2

Medical

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Royal Prince Alfred Hospital

Co-Chair: – St. John's Research Institute, Bengaluru, India

Medical

2:02 PM - 2:20 PM MYT

Genetic analysis of rare bleeding disorders

Location: Hall 2

Speaker: – Radboud University Medical Center

Medical

2:20 PM - 2:38 PM MYT

VWD diagnosis (genetic)

Location: Hall 2

Speaker: – Queen's University

Medical

2:38 PM - 2:56 PM MYT

Fibrinogen diagnosis

Location: Hall 2

Speaker: – Humanitas University

Medical

2:56 PM - 3:14 PM MYT

Inherited platelet disorders - genomic analysis

Location: Hall 2

Speaker: – University of Birmingham

Medical

3:14 PM - 3:30 PM MYT

Q&A

Location: Hall 2

Medical

2:00 PM - 3:30 PM MYT

MSK Health in Pediatrics Beyond Factor - From Prophylaxis to Function

Location: Hall 1

Musculoskeletal

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Fundacion Santa Fe de Bogota

Co-Chair: – University of Genoa

Musculoskeletal

2:02 PM - 2:14 PM MYT

Hematologist perspective - prophylaxis in era of novel therapies

Location: Hall 1

Speaker: – University of Michigan

Musculoskeletal

2:14 PM - 2:26 PM MYT

Degenerative joint changes in children with haemophilia: Early detection with ultrasound

Location: Hall 1

Speaker: – Fundacion Hemofilia MdQ

Musculoskeletal

2:26 PM - 2:38 PM MYT

Integration of ultrasound and clinical-functional assessment (OSPAT and GAIT systems)

Location: Hall 1

Speaker: – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Musculoskeletal

2:38 PM - 2:50 PM MYT

Is surgery an option in pediatric patients?

Location: Hall 1

Speaker: – Children Hospital of Tunis

Musculoskeletal

2:50 PM - 3:02 PM MYT

Current challenges, barriers and enablers of physical activity in CHW

Location: Hall 1

Speaker: – Canterbury Christ Church University

Musculoskeletal

3:02 PM - 3:14 PM MYT

Strength training in hemophilia for adolescents

Location: Hall 1

Speaker: – University of Valencia

Musculoskeletal

3:14 PM - 3:30 PM MYT

Q&A

Location: Hall 1

Musculoskeletal

2:00 PM - 3:30 PM MYT

Women and Girls with Bleeding Disorders

Location: MR 304+305

Nurses

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: MR 304+305

Chair: – Amsterdam University Medical Centre

Nurses

2:02 PM - 2:32 PM MYT

Supporting the menstrual cycle

Location: MR 304+305

Speaker: – Children's Healthcare of Atlanta and Emory University

Nurses

2:32 PM - 2:47 PM MYT

Maternal health

Location: MR 304+305

Speaker: – Alfred Hospital

Nurses

2:47 PM - 3:02 PM MYT

Patient case: Severe factor VIII and pregnancy case

Location: MR 304+305

Speaker: – Liverpool University Hospitals NHS Foundation Trust

Nurses

3:02 PM - 3:17 PM MYT

Evaluation of at risk carrier

Location: MR 304+305

Speaker: – IHTC

Nurses

3:17 PM - 3:30 PM MYT

Q&A

Location: MR 304+305

Nurses

2:00 PM - 3:30 PM MYT

Using Patient-Reported Data and Experience to Drive Change

Location: Plenary Theatre

PWBD

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – RareQV

Co-Chair: – Institute for Policy Advancement Ltd

PWBD

2:02 PM - 2:17 PM MYT

How to advocate for better, more accessible patient registries (plus Canadian example) Using real-world evidence to drive change

Location: Plenary Theatre

Speaker: – McMaster University

PWBD

2:17 PM - 2:27 PM MYT

Mind the gap: Challenges for WGBD

Location: Plenary Theatre

Speaker: – Aziza Othmana Hospital

PWBD

2:27 PM - 2:37 PM MYT

EUHASS + Power BI for making data visible and actionable

Location: Plenary Theatre

Speaker: – Vivantes Hospital Friedrichshain

PWBD

2:37 PM - 2:47 PM MYT

Establishment of a national patient registry in Japan

Location: Plenary Theatre

Speaker: – Nagoya University Hospital

PWBD

2:47 PM - 2:57 PM MYT

Example from Pakistan - Development of a national patient registry, HEMOCLIC (software)

Location: Plenary Theatre

Speaker: – Hemophilia Foundation-Pakistan [HFP]

PWBD

2:57 PM - 3:30 PM MYT

Panel discussion & Q&A

Location: Plenary Theatre

PWBD

2:00 PM - 3:30 PM MYT

Mental Health and Community

Location: Hall 3

Psychosocial

2:00 PM - 2:10 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – Brigham and Women's Hospital

Psychosocial

2:10 PM - 2:24 PM MYT

Receiving a diagnosis: Supporting emotional first steps

Location: Hall 3

Speaker: – Hemophilia Center of Western Pennsylvania

Psychosocial

2:24 PM - 2:38 PM MYT

Stronger together: The power of community

Location: Hall 3

Speaker: – ABRAPHEM

Psychosocial

2:38 PM - 2:52 PM MYT

Support groups as safe spaces

Location: Hall 3

Speaker: – Fundación privada catalana de Hemofilia

Psychosocial

2:52 PM - 3:06 PM MYT

Resilience and recovery: Coping strategies for mental wellbeing

Location: Hall 3

Speaker: – Haemophilia New Zealand

Psychosocial

3:06 PM - 3:20 PM MYT

AI in psychosocial support

Location: Hall 3

Speaker: – Amaze Clinic and Diagnostics

Psychosocial

3:20 PM - 3:30 PM MYT

Q&A

Location: Hall 3

Psychosocial

3:30 PM - 4:15 PM MYT

COFFEE BREAK / ASK THE EXPERTS PODS

Location: Exhibit Hall 7

3:30 PM - 4:15 PM MYT

POD A - Ask the Experts: Low Resource Settings: Accessing WGBD in Rural Areas

Location: Exhibit Hall 7

WGBD

3:30 PM - 4:15 PM MYT

Outreach and identification challenges for WGBD in rural areas

Location: Exhibit Hall 7

Speaker: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

WGBD

3:30 PM - 4:15 PM MYT

The key role of NMOs in reaching women and girls outside the main cities; Community-based identification and education for WBGD

Location: Exhibit Hall 7

Speaker:

WGBD

3:30 PM - 4:15 PM MYT

POD B - Ask the Experts: Bispecific FVIIIa-Mimetics: Essential Knowledge for Laboratories

Location: Exhibit Hall 7

Laboratory Sciences

3:30 PM - 4:15 PM MYT

Bispecific FVIIIa-Mimetics: Essential Knowledge for Laboratories

Location: Exhibit Hall 7

Speaker: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

Laboratory Sciences

3:30 PM - 4:15 PM MYT

POD C - Ask the Experts: Sexuality and Intimacy

Location: Exhibit Hall 7

PWBD

3:30 PM - 4:15 PM MYT

Gynecologist

Location: Exhibit Hall 7

Speaker: – Mediclinic Dubai

PWBD

3:30 PM - 4:15 PM MYT

Moderator

Location: Exhibit Hall 7

Moderator: – National Bleeding Disorders Foundation

PWBD

3:30 PM - 4:15 PM MYT

Psychologist

Location: Exhibit Hall 7

Speaker: – National University of Tucuman

PWBD

3:30 PM - 4:15 PM MYT

Physiotherapist

Location: Exhibit Hall 7

Speaker: – Adult Inherited Bleeding Disorders Program of Manitoba

PWBD

3:30 PM - 4:15 PM MYT

POD D - Ask the Experts: Management of Cardiovascular Complications in Bleeding Disorders

Location: Exhibit Hall 7

Medical

3:30 PM - 4:15 PM MYT

Clinical case #1

Location: Exhibit Hall 7

Speaker: – Royal Prince Alfred Hospital

Medical

3:30 PM - 4:15 PM MYT

Clinical case #2

Location: Exhibit Hall 7

Speaker: – University of Utah

Medical

4:15 PM - 5:15 PM MYT

Aging and Oral Health in Persons with Bleeding Disorders

Location: MR 304+305

Dental

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Universidad Juárez Autónoma De Tabasco

Co-Chair: – King Faisal Specialist Hospital

Dental

4:17 PM - 4:32 PM MYT

Oral health for the elderly: What you need to know

Location: MR 304+305

Speaker: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Dental

4:32 PM - 4:47 PM MYT

Common medications use in dental treatment: Impact in PWBD

Location: MR 304+305

Speaker: – Faculty of Dentistry - University of Buenos Aires Hemophilia Foundation of Buenos Aires

Dental

4:47 PM - 5:02 PM MYT

Dental management of persons with hemophilia receiving emicizumab prophylaxis

Location: MR 304+305

Speaker: – University of Novi Sad, Faculty of Medicine

Dental

5:02 PM - 5:15 PM MYT

Q&A

Location: MR 304+305

Dental

4:15 PM - 5:15 PM MYT

New Treatment in Hemophilia: Challenges, Controversies and Uncertainties

Location: Hall 2

Medical

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Khon Kaen University

Co-Chair: – Cliniques Universitaires Saint-Luc

Medical

4:17 PM - 4:32 PM MYT

Non factor therapies: Surgical management and product transition

Location: Hall 2

Speaker: – Children's Hospital Los Angeles, University of Southern California Keck School of Medicine

Medical

4:32 PM - 4:47 PM MYT

Safety of replacement and NRT of haemophilia: Focus on thrombosis and immunogenicity

Location: Hall 2

Speaker: – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

Medical

4:47 PM - 5:02 PM MYT

AAV gene therapy: Prophylactic and reactive steroids

Location: Hall 2

Speaker: – Hemocentro Unicamp, University of Campinas

Medical

5:02 PM - 5:15 PM MYT

Q&A

Location: Hall 2

Medical

4:15 PM - 5:15 PM MYT

The Weight We Carry: Psychosocial Realities of Living with a Bleeding Disorder

Location: Plenary Theatre

PWBD

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – Wellington Regional Haemophilia Centre, Wellington Hospital

Co-Chair: – Hospital Bahagia Ulu Kinta, Perak, Malaysia

PWBD

4:17 PM - 4:23 PM MYT

Navigating stigma, identity, and everyday life with a bleeding disorder

Location: Plenary Theatre

Speaker: – Hemophilia Foundation - Pakistan

PWBD

4:23 PM - 4:29 PM MYT

Positive thinking - Caregiver perspective

Location: Plenary Theatre

Speaker: – Haemophilia Association of Mauritius

PWBD

4:29 PM - 4:35 PM MYT

Transitioning through life stages

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

PWBD

4:35 PM - 4:41 PM MYT

A woman’s perspective: Living with a bleeding disorder

Location: Plenary Theatre

Speaker: – Huazhong University of Science and Technology

PWBD

4:41 PM - 4:56 PM MYT

Mental health matters: How to unburden the mental stress of living with bleeding disorders

Location: Plenary Theatre

Speaker: – Haemophilia Foundation Victoria

Speaker: – Alfred Health

PWBD

4:56 PM - 5:15 PM MYT

Panel discussion

Location: Plenary Theatre

PWBD

4:15 PM - 5:15 PM MYT

Tackling Delayed Diagnosis of von Willebrand Disease in Women and Girls

Location: Hall 3

WGBD

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – National Coagulation Centre, St. James's Hospital

WGBD

4:17 PM - 4:32 PM MYT

The role of menstrual assessment tools in early detection of VWD; an overview of the tools available

Location: Hall 3

Speaker: – Queen's University

WGBD

4:32 PM - 4:47 PM MYT

How multidisciplinary management can lead to a more timely and accurate diagnosis of VWD

Location: Hall 3

Speaker: – Brigham And Women's Hospital - Harvard Medical School

WGBD

4:47 PM - 5:02 PM MYT

VWD diagnosis: What can be done to address the challenges

Location: Hall 3

Speaker: – Erasmus University Medical Center / Royal College of Surgeons in Ireland

WGBD

5:02 PM - 5:15 PM MYT

Q&A

Location: Hall 3

WGBD

4:15 PM - 5:15 PM MYT

Free Paper Session: Musculoskeletal Management

Location: Hall 1

Musculoskeletal

4:15 PM - 4:16 PM MYT

Welcome & introduction

Location: Hall 1

Chair: – Alfred Hospital

Musculoskeletal

4:16 PM - 4:25 PM MYT

Hemophilia and Tai Chi: A New Rehabilitation and Preventive Pathway Based on Tai Chi Quan Practice

Location: Hall 1

Presenting Author: – Santa Maria della Misericordia Hospital Perugia

Musculoskeletal

4:25 PM - 4:35 PM MYT

Comparison of Total Ankle Arthroplasty and Ankle Arthrodesis in End-Stage Hemophilic Arthropathy

Location: Hall 1

Presenting Author: – Department of Orthopedics, Kyunghee University Hospital

Musculoskeletal

4:35 PM - 4:45 PM MYT

Use of the Multidimensional Haemophilia Pain Questionnaire (MHPQ) in Patients with Severe Haemophilia A Treated with Emicizumab: A Pilot Cross-Sectional, Single-Centre Study

Location: Hall 1

Presenting Author: – University Federico II of Naples

Musculoskeletal

4:45 PM - 4:55 PM MYT

The Limited Range of Motion of the Knee Does Not fully explain the Altered Neural Control of Plantar Flexors During Gait in People with Haemophilia

Location: Hall 1

Presenting Author: – University of Chile.

Musculoskeletal

4:55 PM - 5:05 PM MYT

Total Knee Replacement in Haemophilia: 40 Years of Outcomes From a Tertiary Centre

Location: Hall 1

Presenting Author: – Royal Free Hospital London

Musculoskeletal

5:05 PM - 5:15 PM MYT

Modified triple fusion for equinocavus deformity in hemophlic foot deformities

Location: Hall 1

Presenting Author: – Christian Medical College Vellore

Musculoskeletal

6:00 PM - 7:30 PM MYT

POSTER NETWORKING EVENT

Location: Exhibit Hall 7