Full Schedule

8:30 AM - 11:30 AM MYT

Safety, Efficacy, and Access in Hemophilia and Rare Bleeding Disorders: Navigating the Evolving Therapeutic Landscape

Location: Hall 3

WFH

8:30 AM - 8:31 AM MYT

Introduction

Location: Hall 3

Chair: – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

8:31 AM - 8:40 AM MYT

Welcome and recap of safety, efficacy, and access issues

Location: Hall 3

Speaker: – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

8:40 AM - 9:25 AM MYT

Pipeline Developments: Phase 1–3 Clinical Trial Datas

Location: Hall 3

WFH

8:41 AM - 9:00 AM MYT

Investigational therapies for hemophilia A & B

Location: Hall 3

Speaker: – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

9:00 AM - 9:15 AM MYT

Investigational therapies for VWD & rare bleeding disorders

Location: Hall 3

Speaker: – Queen's University

WFH

9:15 AM - 9:25 AM MYT

Q&A

Location: Hall 3

WFH

9:25 AM - 10:30 AM MYT

New Therapies: Real-World Data and Clinical Practice Patterns

Location: Hall 3

WFH

9:26 AM - 9:35 AM MYT

Re-balancing agents

Location: Hall 3

Speaker: – University of the Witwatersrand and NHLS

WFH

9:35 AM - 9:45 AM MYT

UHL – real world data

Location: Hall 3

Speaker: – Innovative Hematology

WFH

9:45 AM - 9:55 AM MYT

The myth of VIII equivalency

Location: Hall 3

Speaker: – IRCCS Humanitas Research Hospital and Humanitas University

WFH

10:05 AM - 10:15 AM MYT

Emicizumab: Low dose prophylaxis

Location: Hall 3

Speaker: – Consultant Hematology, Hematooncology and BMT , Sparsh Hospital , Hennur Road, Bangalore

WFH

10:05 AM - 10:15 AM MYT

Gene therapy: Safety

Location: Hall 3

Speaker: – World Federation of Hemophilia

WFH

10:15 AM - 10:30 AM MYT

Q&A

Location: Hall 3

WFH

10:30 AM - 10:40 AM MYT

EML Review

Location: Hall 3

WFH

10:31 AM - 10:38 AM MYT

Future EML topics

Location: Hall 3

Speaker: – World Federation of Hemophilia

WFH

10:38 AM - 10:40 AM MYT

Q&A

Location: Hall 3

WFH

10:40 AM - 11:00 AM MYT

Review & Access and Economic Availability

Location: Hall 3

WFH

10:41 AM - 10:55 AM MYT

Access and economic availability: Re-balancing agents compared to emicizumab & gene therapy

Location: Hall 3

Speaker: – Irish Haemophilia Society

WFH

10:55 AM - 11:00 AM MYT

Q&A

Location: Hall 3

WFH

11:00 AM - 11:25 AM MYT

WFH Living Guidelines

Location: Hall 3

WFH

11:01 AM - 11:20 AM MYT

Hemostatic agents & prophylaxis and implications for practice

Location: Hall 3

Speaker: – Hospital for Sick Children

Speaker: – University of Michigan

WFH

11:20 AM - 11:25 AM MYT

Q&A

Location: Hall 3

WFH

11:25 AM - 11:30 AM MYT

Wrap-up

Location: Hall 3

WFH

8:30 AM - 12:30 PM MYT

Ultrasound Workshop

Location: MR 304+305

Musculoskeletal

8:30 AM - 8:35 AM MYT

Welcome and opening remarks

Location: MR 304+305

Moderator: – Los Angeles Orthopaedic Hemophilia Treatment Center

Moderator: – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

8:30 AM - 12:30 PM MYT

Hands-on session instructors

Location: MR 304+305

Instructor: – University of Genoa

Instructor: – Fundacion Hemofilia MdQ

Instructor: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Instructor: – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Instructor: – Canterbury Christ Church University

Instructor: – Fundacion Hemofilia de Buenos Aires

Instructor: – University of California

Instructor: – Washington Center for Bleeding Disorders

Instructor: – FlowLab

Instructor: – Los Angeles Orthopaedic Hemophilia Treatment Center

Instructor: – Kansai Medical University Hospital

Instructor: – Faculty of Medicine; University of Indonesia

Instructor: – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Instructor: – Innovative Hematology/ IHTC

Musculoskeletal

8:35 AM - 8:50 AM MYT

Intro lecture: Why should healthcare professionals working in haemophilia centers be trained and enabled to perform POCUS?

Location: MR 304+305

Speaker: – University of California

Musculoskeletal

8:50 AM - 9:05 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - ELBOW

Location: MR 304+305

Speaker: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Musculoskeletal

9:05 AM - 9:20 AM MYT

Live demonstration

Location: MR 304+305

Speaker: – Faculty of Medicine; University of Indonesia

Musculoskeletal

9:20 AM - 9:50 AM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

9:50 AM - 10:05 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - KNEE

Location: MR 304+305

Speaker: – Innovative Hematology/ IHTC

Musculoskeletal

10:05 AM - 10:20 AM MYT

Live demonstration

Location: MR 304+305

Speaker: – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Musculoskeletal

10:20 AM - 10:50 AM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

10:50 AM - 11:10 AM MYT

Break

Location: MR 304+305

Musculoskeletal

11:10 AM - 11:25 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - ANKLE

Location: MR 304+305

Speaker: – University of Genoa

Musculoskeletal

11:25 AM - 11:40 AM MYT

Live demonstration

Location: MR 304+305

Speaker: – University of Genoa

Musculoskeletal

11:40 AM - 12:10 PM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

12:10 PM - 12:30 PM MYT

Q&A and panel discussion

Location: MR 304+305

Panelist: – University of California

Panelist: – Kansai Medical University Hospital

Panelist: – University of Genoa

Musculoskeletal

8:30 AM - 3:00 PM MYT

Nurses Professional Development Day

Location: MR 302+303

Nurses

8:30 AM - 9:30 AM MYT

Highlighting Nursing Practice

Location: MR 302+303

Chair: – Amsterdam University Medical Centre

Nurses

8:31 AM - 8:40 AM MYT

Welcome to Kuala Lumpur 2026

Location: MR 302+303

Speaker: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Nurses

8:40 AM - 8:50 AM MYT

Establishing nurse-led clinics

Location: MR 302+303

Speaker: – BC Children's Hospital

Nurses

8:50 AM - 9:05 AM MYT

Nursing mentorship: Ensuring positive leadership & succession planning

Location: MR 302+303

Speaker: – Ohio State University Hemophilia Treatment Center

Nurses

9:05 AM - 9:20 AM MYT

Establishing comprehensive hemophilia clinics in resource limited settings

Location: MR 302+303

Speaker: – Manipal College of Nursing, Manipal Academy of Higher Education

Nurses

9:20 AM - 9:30 AM MYT

Q&A

Location: MR 302+303

Nurses

9:30 AM - 10:00 AM MYT

Break

Location: MR 302+303

Nurses

10:00 AM - 11:00 AM MYT

Nurse triage: MSK assessment

Location: MR 302+303

Chair: – Wellington Regional Haemophilia Centre, Wellington Hospital

Nurses

10:01 AM - 10:15 AM MYT

Assessment of a musculoskeletal bleed

Location: MR 302+303

Speaker: – Lakshmi Hospital & Research Centre

Nurses

10:15 AM - 10:30 AM MYT

Pseudotumour management: A UK experience

Location: MR 302+303

Speaker: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Nurses

10:30 AM - 10:45 AM MYT

Pseudotumour management: A Kenyan experience

Location: MR 302+303

Speaker: – Moi Teaching and Referral Hospital

Nurses

10:45 AM - 11:00 AM MYT

Q&A

Location: MR 302+303

Nurses

11:00 AM - 12:00 PM MYT

Nurse triage: Oral issues

Location: MR 302+303

Chair: – Manipal College of Nursing, Manipal Academy of Higher Education

Nurses

11:01 AM - 11:15 AM MYT

The global impact of oral health

Location: MR 302+303

Speaker: – King Faisal Specialist Hospital

Nurses

11:15 AM - 11:30 AM MYT

Planning for dental procedures using a risk based approach

Location: MR 302+303

Speaker: – Erasmus University Medical Center

Nurses

11:30 AM - 11:45 AM MYT

Pediatric oral trauma assessment and management

Location: MR 302+303

Speaker: – The Children's Hospital at Westmead, Sydney, NSW, Australia

Nurses

11:45 AM - 12:00 PM MYT

Q&A

Location: MR 302+303

Workshop

12:00 PM - 1:00 PM MYT

Lunch

Location: MR 302+303

Workshop

1:00 PM - 2:00 PM MYT

Service development

Location: MR 302+303

Chair: – BC Children's Hospital

Workshop

1:01 PM - 1:10 PM MYT

Value based care: First line genetic testing

Location: MR 302+303

Speaker: – Christian Medical College and Hospital

Workshop

1:10 PM - 1:20 PM MYT

Pediatric educational resources: The teddy bears picnic

Location: MR 302+303

Speaker: – Cambridge University Hospitals NHS Foundation Trust

Speaker: – Cambridge University Hospitals Trust

Workshop

1:20 PM - 1:35 PM MYT

Starting new therapies: From planning to completion

Location: MR 302+303

Speaker: – Wellington Regional Haemophilia Centre, Wellington Hospital

Workshop

1:35 PM - 1:50 PM MYT

Nurse led acquired hemophilia pathway

Location: MR 302+303

Speaker: – Royal Free Hospital

Workshop

1:50 PM - 2:00 PM MYT

Q&A

Location: MR 302+303

Workshop

2:00 PM - 3:00 PM MYT

What does nursing practice look like in global bleeding disorder care

Location: MR 302+303

Chair: – IHTC

Workshop

2:01 PM - 2:15 PM MYT

European survey findings

Location: MR 302+303

Speaker: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Workshop

2:15 PM - 2:45 PM MYT

Group workshop

Location: MR 302+303

Workshop

2:45 PM - 3:00 PM MYT

Conclusions

Location: MR 302+303

Chair: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Workshop

8:30 AM - 3:00 PM MYT

Psychosocial Strategies in Managing Bleeding Disorders

Location: Hall 1

Psychosocial

8:30 AM - 8:45 AM MYT

Registration (update contact emails)

Location: Hall 1

Speaker: – Catalan Association of Hemophilia

Psychosocial

8:45 AM - 8:55 AM MYT

Welcome

Location: Hall 1

Co-Chair: – Fundación de la Hemofilia de la Argentina

Co-Chair: – Haemophilia Association of Mauritius

Co-Chair: – NHS Southern Haemophilia Network

Psychosocial

8:55 AM - 9:15 AM MYT

Ice Breaker

Location: Hall 1

Speaker: – Fundación de la Hemofilia de la Argentina

Psychosocial

9:15 AM - 10:30 AM MYT

Toolkits

Location: Hall 1

Psychosocial

9:16 AM - 9:40 AM MYT

Toolkit 1: Education & Schooling

Location: Hall 1

Speaker: – Fundación de la Hemofilia de la Argentina

Speaker: – Catalan Association of Hemophilia

Psychosocial

9:40 AM - 10:05 AM MYT

Toolkit 2: Support Groups

Location: Hall 1

Speaker: – Empowering Minds Society for Research and Development

Psychosocial

10:05 AM - 10:30 AM MYT

Toolkit 3: Adherence

Location: Hall 1

Speaker: – Hemominas

Speaker: – Brigham and Women's Hospital

Psychosocial

10:30 AM - 10:55 AM MYT

Break

Location: Hall 1

Psychosocial

10:55 AM - 11:45 AM MYT

Toolkits

Location: Hall 1

Psychosocial

10:56 AM - 11:20 AM MYT

Toolkit 4: Coping strategies

Location: Hall 1

Speaker: – Haemophilia Association of Mauritius

Speaker: – NHS Southern Haemophilia Network

Psychosocial

11:20 AM - 11:45 AM MYT

Toolkit 5: Complications in general / (Gene Therapy)

Location: Hall 1

Speaker: – Haemophilia Foundation Victoria

Speaker: – Alfred Health

Psychosocial

11:45 AM - 12:45 PM MYT

Lunch

Location: Hall 1

Psychosocial

12:45 PM - 2:00 PM MYT

Skill building

Location: Hall 1

Psychosocial

12:46 PM - 1:00 PM MYT

Setting up psychosocial services NMO side

Location: Hall 1

Speaker: – Fundación privada catalana de Hemofilia

Psychosocial

1:00 PM - 1:15 PM MYT

Setting up psychosocial services HTC Side

Location: Hall 1

Speaker: – The Edinburgh Haemophilia and Thrombosis Comprehensive Care Centre

Psychosocial

1:15 PM - 1:30 PM MYT

Parenting skills in haemophilia care

Location: Hall 1

Speaker: – South African Haemophilia Foundation

Psychosocial

1:30 PM - 1:45 PM MYT

Understanding psychosocial health

Location: Hall 1

Speaker: – Haemophilia New Zealand

Psychosocial

1:45 PM - 2:00 PM MYT

Q&A

Location: Hall 1

Psychosocial

2:00 PM - 2:45 PM MYT

Networking by regions

Location: Hall 1

Psychosocial

2:45 PM - 3:00 PM MYT

Closing out the day and evaluation

Location: Hall 1

Co-Chair: – Haemophilia Association of Mauritius

Speaker: – NHS Southern Haemophilia Network

Psychosocial

9:30 AM - 4:15 PM MYT

Improving Diagnosis and Multidisciplinary Care for Women and Girls with Bleeding Disorders

Location: Hall 2

WGBD

9:30 AM - 9:45 AM MYT

Opening

Location: Hall 2

WGBD

9:31 AM - 9:45 AM MYT

Welcome & introduction

Location: Hall 2

Chair: – National Bleeding Disorders Foundation

WGBD

9:45 AM - 10:45 AM MYT

Educational presentations

Location: Hall 2

Chair: – Ampang Hospital

WGBD

9:46 AM - 10:00 AM MYT

Diagnostic challenges: Missed type I VWD, carriers, generational bleeding, no access to diagnosis in certain countries

Location: Hall 2

Speaker: – Shabrawishi Hospital

WGBD

10:00 AM - 10:15 AM MYT

Lab testing: HMB investigations, borderline vWF, pregnancy & factor levels, genetic testing

Location: Hall 2

Speaker: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

WGBD

10:15 AM - 10:30 AM MYT

Bone health in women with bleeding disorders

Location: Hall 2

Speaker: – Arkansas Children’s Hospital

WGBD

10:30 AM - 10:45 AM MYT

Q&A

Location: Hall 2

WGBD

10:45 AM - 11:00 AM MYT

Break

Location: Hall 2

WGBD

11:00 AM - 11:45 AM MYT

Interactive group work: Building care pathways

Location: Hall 2

Chair: – National Bleeding Disorders Foundation

WGBD

11:01 AM - 11:45 AM MYT

What would you include in a checklist + resources

Location: Hall 2

WGBD

11:45 AM - 12:30 PM MYT

Lunch

Location: Hall 2

WGBD

12:30 PM - 1:20 PM MYT

Tools for better recognition in primary care - general discussion

Location: Hall 2

Chair: – Haemophilia New Zealand

WGBD

12:31 PM - 12:40 PM MYT

Haemophilia Foundation Australia (HFA)

Location: Hall 2

Speaker: – Haemophilia Foundation Australia

WGBD

12:40 PM - 12:50 PM MYT

Canadian Hemophilia Society (CHS)

Location: Hall 2

Speaker: – Canadian Hemophilia Society

WGBD

12:50 PM - 1:00 PM MYT

National Bleeding Disorders Foundation (NBDF)

Location: Hall 2

Speaker: – National Bleeding Disorders Foundation

WGBD

1:00 PM - 1:20 PM MYT

Discussion

Location: Hall 2

WGBD

1:20 PM - 2:05 PM MYT

Panel discussion: Multidisciplinary collaboration

Location: Hall 2

Chair:

WGBD

1:20 PM - 2:05 PM MYT

Panelists

Location: Hall 2

Panelist: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Panelist: – Children's Healthcare of Atlanta and Emory University

Panelist: – FlowLab

Panelist: – Royal London Hospital

Panelist: – National University of Tucuman

Panelist: – Mediclinic Dubai

WGBD

2:05 PM - 2:20 PM MYT

Break

Location: Hall 2

WGBD

2:20 PM - 2:27 PM MYT

Case #1: Girl with Glanzmann’s

Location: Hall 2

Speaker: – Amsterdam University Medical Centre

WGBD

2:20 PM - 3:20 PM MYT

Case-based discussion: Normal vs abnormal symptoms

Location: Hall 2

Chair: – Children's Healthcare of Atlanta and Emory University

WGBD

2:27 PM - 2:34 PM MYT

Case #2: Adult

Location: Hall 2

Speaker: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

WGBD

2:34 PM - 3:04 PM MYT

Discussion

Location: Hall 2

WGBD

3:04 PM - 3:20 PM MYT

Sharing with the group

Location: Hall 2

WGBD

3:20 PM - 3:50 PM MYT

Panel discussion: Overcoming barriers to diagnosis and care

Location: Hall 2

Chair: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Panelist: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: – Haemophilia Foundation Australia

WGBD

3:20 PM - 3:50 PM MYT

Panelists

Location: Hall 2

Panelist: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: – Haemophilia Foundation Australia

Panelist: – Huazhong University of Science and Technology

Panelist: – Kenya Haemophlia Association

WGBD

3:50 PM - 4:05 PM MYT

Wrap-up and Q&A

Location: Hall 2

Speaker: – National Bleeding Disorders Foundation

Speaker: – Amsterdam University Medical Centre

WGBD

12:00 PM - 2:00 PM MYT

Getting Started: Fundamentals of Hemostasis Testing

Location: Hall 3

Laboratory Sciences

12:00 PM - 12:04 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Co-Chair: – UK NEQAS For Blood Coagulation

Laboratory Sciences

12:04 PM - 12:33 PM MYT

Stability of hemostatic parameters in whole blood and fresh and frozen plasma: Evidence-based review and practical recommendations

Location: Hall 3

Speaker: – Sheffield Haemophilia and Thrombosis Centre

Laboratory Sciences

12:33 PM - 1:02 PM MYT

Selecting equipment and reagents: Key considerations

Location: Hall 3

Speaker: – Christian Medical College Vellore

Laboratory Sciences

1:02 PM - 1:31 PM MYT

Approach to bleeding disorders: Where to begin the investigation

Location: Hall 3

Speaker: – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

1:31 PM - 2:00 PM MYT

Coagulation parameters across pediatric age groups

Location: Hall 3

Speaker: – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Laboratory Sciences

1:00 PM - 3:30 PM MYT

Manual Therapy Workshop

Location: MR 304+305

Musculoskeletal

1:00 PM - 3:30 PM MYT

Hands-on practice instructors

Location: MR 304+305

Instructor: – University of Murcia

Instructor: – Washington Center for Bleeding Disorders

Instructor: – Los Angeles Orthopaedic Hemophilia Treatment Center

Instructor: – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Instructor: – Lakshmi Hospital & Research Centre

Instructor: – Sahyadri Speciality Hospital, Haemophilia Society of Maharashtra, Pune chapter/ Haemophilia Society Pune Chapter

Instructor: – Innovative Hematology/ IHTC

Instructor: – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Musculoskeletal

1:01 PM - 1:05 PM MYT

Welcome & introduction

Location: MR 304+305

Chair: – University of Murcia

Musculoskeletal

1:05 PM - 1:15 PM MYT

Effectiveness and safety measures of manual therapy in bleeding disorders

Location: MR 304+305

Speaker: – University of Murcia

Musculoskeletal

1:15 PM - 1:20 PM MYT

Group formation

Location: MR 304+305

Musculoskeletal

1:20 PM - 2:00 PM MYT

Joint traction techniques

Location: MR 304+305

Musculoskeletal

1:21 PM - 1:30 PM MYT

Practical demonstration (ankle, knee and elbow)

Location: MR 304+305

Speaker: – University of Murcia

Musculoskeletal

1:30 PM - 2:00 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:00 PM - 2:40 PM MYT

Myofascial techniques

Location: MR 304+305

Musculoskeletal

2:01 PM - 2:05 PM MYT

Practical demonstration (hamstring and gastrocnemius)

Location: MR 304+305

Speaker: – University of Murcia

Musculoskeletal

2:05 PM - 2:20 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:20 PM - 2:25 PM MYT

Practical demonstration (post-hematoma: quadriceps)

Location: MR 304+305

Speaker: – Washington Center for Bleeding Disorders

Musculoskeletal

2:25 PM - 2:40 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:40 PM - 3:20 PM MYT

Peri-articular myofascial techniques

Location: MR 304+305

Musculoskeletal

2:41 PM - 2:50 PM MYT

Practical demonstration (ankle, knee, elbow)

Location: MR 304+305

Speaker: – Washington Center for Bleeding Disorders

Musculoskeletal

2:50 PM - 3:20 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

3:20 PM - 3:30 PM MYT

Wrap-up and summary: Next lines of work in manual therapy and bleeding disorders

Location: MR 304+305

Speaker: – University of Murcia

Musculoskeletal

2:30 PM - 4:30 PM MYT

Do to Learn, Learn to Do

Location: Hall 3

Laboratory Sciences

2:30 PM - 2:31 PM MYT

Welcome & introduction

Location: Hall 3

Chair: – UK NEQAS Blood Coagulation

Laboratory Sciences

2:31 PM - 2:50 PM MYT

Introductions: Laboratory investigation using only manual tests

Location: Hall 3

Speaker: – UK NEQAS Blood Coagulation

Laboratory Sciences

2:45 PM - 4:30 PM MYT

Topic 4: The manual tilt-tube method for factor inhibitors

Location: Hall 3

Laboratory Instructor: – Christian Medical College

Laboratory Instructor: – Christian Medical College Vellore

Laboratory Sciences

2:50 PM - 3:00 PM MYT

Q&A

Location: Hall 3

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 1: The manual tilt-tube method for APTT and mixing test

Location: Hall 3

Laboratory Instructor: – Sheffield Haemophilia and Thrombosis Centre

Laboratory Instructor: – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 2: The manual tilt-tube method for FVIII and FIX

Location: Hall 3

Laboratory Instructor: – UKNEQAS BC

Laboratory Instructor: – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 3: The manual tilt-tube method for Ristocetin Cofactor

Location: Hall 3

Laboratory Instructor: – UK NEQAS Blood Coagulation

Laboratory Instructor: – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Laboratory Sciences

3:30 PM - 6:00 PM MYT

Hands-On Oral Health Education for Patients, Caregivers and Nurses

Location: MR 302+303

Dental

3:30 PM MYT

Welcome and introduction

Location: MR 302+303

Chair: – Royal London Hospital

Dental

3:31 PM - 3:50 PM MYT

Oral health education

Location: MR 302+303

Speaker: – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

3:50 PM - 5:50 PM MYT

Table clinics (rotation of groups every 30 min)

Location: MR 302+303

Dental

3:50 PM - 5:50 PM MYT

Table clinic 1: Fluoride and silver diamine application

Location: MR 302+303

Speaker: – King Faisal Specialist Hospital

Dental

3:50 PM - 5:50 PM MYT

Table clinic 2: Hidden sugars and preventing tooth decay

Location: MR 302+303

Speaker: – Royal London Hospital

Speaker: – CHU de Québec-Université Laval

Dental

3:50 PM - 5:50 PM MYT

Table clinic 3: Demonstration of tooth brushing and flossing

Location: MR 302+303

Speaker: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Speaker: – Universidad Juárez Autónoma De Tabasco

Dental

3:50 PM - 5:50 PM MYT

Table clinic 4: Local measures to stop bleeding

Location: MR 302+303

Speaker: – Faculty of Dentistry - University of Buenos Aires Hemophilia Foundation of Buenos Aires

Speaker: – University of Novi Sad, Faculty of Medicine

Dental

5:50 PM - 6:00 PM MYT

Closing remarks

Location: MR 302+303

Speaker: – Royal London Hospital

Dental

4:00 PM - 6:00 PM MYT

Workshop: Foundations and Practical Strategies for Strength Training in PWBD

Location: MR 304+305

Musculoskeletal

4:00 PM - 4:01 PM MYT

Welcome & introduction

Location: MR 304+305

Co-Chair: – University of Chile.

Co-Chair: – University of Valencia

Musculoskeletal

4:01 PM - 4:15 PM MYT

The fundamentals of elastic resistance training

Location: MR 304+305

Speaker: – University of Chile.

Musculoskeletal

4:15 PM - 4:30 PM MYT

Mastering of dose intensity, volume & key variables

Location: MR 304+305

Speaker: – University of Valencia

Musculoskeletal

4:30 PM - 4:35 PM MYT

Q&A

Location: MR 304+305

Speaker: – University of Chile.

Speaker: – University of Valencia

Musculoskeletal

4:35 PM - 5:25 PM MYT

From theory to action: Hands-on practice

Location: MR 304+305

Instructor: – University of Chile.

Instructor: – University of Valencia

Instructor: – Royal Adelaide Hospital

Instructor: – HOSPITAL SULTANAH BAHIYAH

Instructor: – University of Murcia

Instructor: – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

5:25 PM - 6:00 PM MYT

Group sharing and discussion: Strength exercise programs

Location: MR 304+305

Musculoskeletal

4:00 PM - 6:20 PM MYT

Data, Research & Advocacy for Equitable Care

Location: Hall 1

WFH

4:00 PM MYT

Session 1: Publishing

Location: Hall 1

WFH

4:00 PM - 4:01 PM MYT

Welcome & introduction

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

4:02 PM - 4:15 PM MYT

Publishing in the Haemophilia Journal: Opportunities and challenges

Location: Hall 1

Speaker: – Cliniques Universitaires Saint-Luc

WFH

4:15 PM - 4:20 PM MYT

Q&A

Location: Hall 1

WFH

4:20 PM MYT

Session 2: Why data matters

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

4:20 PM - 4:35 PM MYT

Inequity analysis through the WFH data collection program

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

4:35 PM - 4:50 PM MYT

Why data matters for QoL and inequity in care

Location: Hall 1

Speaker: – Institute for Policy Advancement Ltd

WFH

4:50 PM - 5:00 PM MYT

Q&A

Location: Hall 1

WFH

5:00 PM MYT

Session 3: Leveraging data in advocacy

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

5:00 PM - 5:15 PM MYT

Data-driven advocacy

Location: Hall 1

Speaker: – Aziza Othmana Hospital

WFH

5:15 PM - 5:30 PM MYT

Country experience: Driving change with data

Location: Hall 1

Speaker: – Hemophilia Society of Malaysia

WFH

5:30 PM - 5:40 PM MYT

Q&A

Location: Hall 1

WFH

5:40 PM MYT

Session 4: Innovative use of data

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

5:40 PM - 5:55 PM MYT

Monitoring novel therapies

Location: Hall 1

Speaker: – McMaster University

WFH

5:55 PM - 6:10 PM MYT

Using data to drive systemic change

Location: Hall 1

Speaker: – Irish Haemophilia Society

WFH

6:10 PM - 6:20 PM MYT

Wrap up – Q&A

Location: Hall 1

WFH

4:45 PM - 6:15 PM MYT

Standards and Strategies for Quality in Hemostasis Testing

Location: Hall 3

Laboratory Sciences

4:45 PM - 4:50 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – Christian Medical College Vellore

Co-Chair: – UKNEQAS BC

Laboratory Sciences

4:50 PM - 5:15 PM MYT

How internal quality control influences laboratory outcomes

Location: Hall 3

Speaker: – UKNEQAS BC

Laboratory Sciences

5:15 PM - 5:20 PM MYT

Q&A

Location: Hall 3

Speaker: – UKNEQAS BC

Laboratory Sciences

5:20 PM - 5:45 PM MYT

Lessons from coagulation laboratories in external quality programs: WFH-IEQAS Program - NEQAS BC

Location: Hall 3

Speaker: – UK NEQAS For Blood Coagulation

Laboratory Sciences

5:45 PM - 5:50 PM MYT

Q&A

Location: Hall 3

Speaker: – UK NEQAS For Blood Coagulation

Laboratory Sciences

5:50 PM - 6:15 PM MYT

Asia Focus Session: WFH-IEQAS Participation, Support and Regional Collaboration (interactive discussion)

Location: Hall 3

Speaker: – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Speaker: – UK NEQAS Blood Coagulation

Speaker: – Singapore General Hospital

Laboratory Sciences

5:00 PM - 6:15 PM MYT

How to Run a Clinic

Location: Hall 2

Medical

5:01 PM - 6:15 PM MYT

How to Run a Clinic

Location: Hall 2

Speaker: – Cliniques Universitaires Saint-Luc

Speaker: – Hospital for Sick Children

Medical

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Hall 2

Speaker: – Cliniques Universitaires Saint-Luc

Speaker: – Hospital for Sick Children

Medical

6:30 PM - 7:30 PM MYT

OPENING CEREMONY

Location: Plenary Hall

7:30 PM - 9:30 PM MYT

WELCOME RECEPTION

Location: Ballroom 2

8:30 AM - 9:25 AM MYT

Inaugural plenary

Location: Hall 1+2+3

WFH

8:30 AM - 8:32 AM MYT

Welcome & introduction

Location: Hall 1+2+3

Chair: – World Federation of Hemophilia

WFH

8:32 AM - 8:42 AM MYT

WFH President Address

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

8:42 AM - 8:47 AM MYT

WHA Resolution on Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders

Location: Hall 1+2+3

Speaker: – Republic of Armenia,

WFH

8:47 AM - 8:54 AM MYT

President’s Award

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

8:54 AM - 9:14 AM MYT

VP Medical Address: Relentless health inequities

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

9:14 AM - 9:19 AM MYT

WFH International Healthcare Volunteer Award

Location: Hall 1+2+3

WFH

9:25 AM - 10:45 AM MYT

Bleeding Disorder Care in a World of Crises

Location: Hall 1+2+3

WFH

9:25 AM MYT

Welcome & introduction

Location: Hall 1+2+3

Chair: – World Federation of Hemophilia

WFH

9:26 AM - 9:45 AM MYT

War, displacement and climate disasters: A new era of disruption in bleeding disorder care

Location: Hall 1+2+3

Speaker: – Faculty of Medicine; University of Geneva, Switzerland

WFH

9:45 AM - 10:00 AM MYT

Economic instability and access to therapies: The cost of uncertainty

Location: Hall 1+2+3

Speaker: – Irish Haemophilia Society

WFH

10:00 AM - 10:07 AM MYT

Delivering humanitarian aid in crisis zones

Location: Hall 1+2+3

Speaker: – World Federation of Hemophilia

WFH

10:07 AM - 10:13 AM MYT

Experience from crisis-impacted country - War

Location: Hall 1+2+3

Speaker: – SI “Institute of blood pathology and transfusion medicine of NAMS of Ukraine

WFH

10:13 AM - 10:19 AM MYT

Experience from crisis-impacted country - Natural disaster

Location: Hall 1+2+3

Speaker: – Dr Cipto Mangunkusumo Hospital/Faculty of Medicine Universitas Indonesia

WFH

10:19 AM - 10:45 AM MYT

Panel discussion

Location: Hall 1+2+3

WFH

10:45 AM - 11:30 AM MYT

COFFEE BREAK / MODERATED POSTER PODS

Location: Exhibit Hall 7

10:55 AM - 11:25 AM MYT

Bleed Management in Patients with Inhibitors in the Evolving Treatment Landscape

Speaker:

11:30 AM - 12:30 PM MYT

Hemophilia: Bridging Classical Knowledge and Novel Interventions

Location: MR 304+305

Laboratory Sciences

11:30 AM - 11:33 AM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Christian Medical College

Co-Chair: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

Laboratory Sciences

11:33 AM - 11:52 AM MYT

Assay discrepancy in hemophilia: Implications for post-gene therapy monitoring

Location: MR 304+305

Speaker: – UK NEQAS Blood Coagulation

Laboratory Sciences

11:52 AM - 12:11 PM MYT

Rebalancing therapy in congenital hemophilia: What the laboratory should know?

Location: MR 304+305

Speaker: – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Laboratory Sciences

12:11 PM - 12:30 PM MYT

Unmet laboratory needs in FVIII mimetics and rebalancing therapies: The role of thrombin generation assay

Location: MR 304+305

Speaker: – University Lyon 1

Laboratory Sciences

11:30 AM - 12:30 PM MYT

When Bleeding is Rare but Critical: Clinical Dilemmas in Rare Bleeding Disorders

Location: Hall 3

Medical

11:30 AM MYT

Panelists

Location: Hall 3

Panelist: – Royal Free Hospital

Panelist: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Medical

11:30 AM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – KK Women's and Children's Hospital

Co-Chair: – Ampang Hospital

Medical

11:30 AM - 11:42 AM MYT

CASE 1 – Missed mild haemophilia A in a 70 year old man who underwent a TKR and complicated by infection; ended in amputation

Location: Hall 3

Speaker: – Taiping Hospital

Medical

11:42 AM - 11:54 AM MYT

CASE 2 – Type 2 von Willebrand disease only responsive to recombinant von Willebrand factor

Location: Hall 3

Speaker: – KK Women's and Children's Hospital

Medical

11:54 AM - 12:06 PM MYT

CASE 3 – FVII deficiency with intracranial haemorrhage

Location: Hall 3

Speaker: – Faculty of Medicine at Ramathibodi Hospital, Mahidol University

Medical

12:06 PM - 12:18 PM MYT

CASE 4 – Acquired FXIII deficiency

Location: Hall 3

Speaker: – The Alfred

Medical

12:18 PM - 12:30 PM MYT

CASE 5 – Portal vein thrombosis in a patient with congenital fibrinogen deficiency

Location: Hall 3

Speaker: – National Institute of Hematology and Blood Transfusion (NIHBT)

Medical

11:30 AM - 12:30 PM MYT

Leveraging WHO Essential Medicine List and Treatment Guidelines to Improve Care at the National Level

Location: Plenary Theatre

WFH

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – World Federation of Hemophilia

WFH

11:32 AM - 11:37 AM MYT

WFH Treatment Guidelines: What is new and in the pipeline

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

11:37 AM - 11:42 AM MYT

Leveraging Essential Medicines List update

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

11:42 AM - 11:52 AM MYT

Role of WFH Treatment Guidelines in shaping care globally

Location: Plenary Theatre

Speaker: – Hospital for Sick Children

WFH

11:52 AM - 12:02 PM MYT

Role of EML in guiding national EML and reimbursement policy

Location: Plenary Theatre

Speaker: – World Health Organization

WFH

12:02 PM - 12:12 PM MYT

Translating evidence-based policies into increased access to treatment and care: Experience of El Salvador

Location: Plenary Theatre

Speaker: – Hospital Nacional Especializado de Niños Benjamín Bloom

WFH

12:12 PM - 12:30 PM MYT

Q&A

Location: Plenary Theatre

WFH

11:30 AM - 12:30 PM MYT

Major Surgery with Non-Factor Replacement - Case Discussions

Location: Hall 2

Medical

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University Hospital Frankfurt, Department of Paediatrics

Co-Chair: – Luskin Orthopaedic Institute for Children

Medical

11:32 AM - 11:44 AM MYT

Emergency surgical procedures in patients on NFT

Location: Hall 2

Speaker: – Center for Bleeding Disorders and Coagulation, Careggi University Hospital

Medical

11:44 AM - 11:56 AM MYT

Is multiple elective orthopedic surgery in subjects on NFT always safe and feasible?

Location: Hall 2

Speaker: – University of Florence

Medical

11:56 AM - 12:08 PM MYT

Oral surgery in patients with NFT

Location: Hall 2

Speaker: – Manipal College Of Dental Sciences Manipal

Medical

12:08 PM - 12:20 PM MYT

Experiences of abdominal surgery in subjects on NFT

Location: Hall 2

Speaker: – Christian Medical College Vellore

Medical

12:20 PM - 12:30 PM MYT

Q&A

Location: Hall 2

Medical

11:30 AM - 12:30 PM MYT

Wellness in PWBD: Healthier Habits Leading to Better Health Outcomes

Location: Hall 1

PWBD

11:30 AM - 11:32 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Lakshmi Hospital & Research Centre

Co-Chair: – World Federation of Hemophilia

PWBD

11:32 AM - 11:47 AM MYT

Movement within reach: Physical wellness in low-resource settings

Location: Hall 1

Speaker: – National Hemophilia Foundation Of Thailand

Speaker: – HOSPITAL SULTANAH BAHIYAH

PWBD

11:47 AM - 11:57 AM MYT

Food as medicine: Practical nutrition for PWBD

Location: Hall 1

Speaker: – Royal Brisbane and Women's Hospital

PWBD

11:57 AM - 12:07 PM MYT

Breaking the fear cycle: Building safety to support healthy habits in PWBD

Location: Hall 1

Speaker: – National University of Tucuman

PWBD

12:07 PM - 12:15 PM MYT

Athlete/sports - PWBD

Location: Hall 1

Speaker: – Haemophilia Foundation Victoria

PWBD

12:15 PM - 12:30 PM MYT

Q&A

Location: Hall 1

PWBD

12:30 PM - 2:00 PM MYT

LUNCH BREAK

Location: Exhibit Hall 7

2:00 PM - 3:30 PM MYT

Performing Large Scale Community Genetic Analysis in the Bleeding Disorders Community

Location: Hall 2

Medical

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Royal Prince Alfred Hospital

Co-Chair: – St. John's Research Institute, Bengaluru, India

Medical

2:02 PM - 2:20 PM MYT

Genetic analysis of rare bleeding disorders

Location: Hall 2

Speaker: – Radboud University Medical Center

Medical

2:20 PM - 2:38 PM MYT

VWD diagnosis (genetic)

Location: Hall 2

Speaker: – Queen's University

Medical

2:38 PM - 2:56 PM MYT

Fibrinogen diagnosis

Location: Hall 2

Speaker: – Humanitas University

Medical

2:56 PM - 3:14 PM MYT

Inherited platelet disorders - genomic analysis

Location: Hall 2

Speaker: – University of Birmingham

Medical

3:14 PM - 3:30 PM MYT

Q&A

Location: Hall 2

Medical

2:00 PM - 3:30 PM MYT

MSK Health in Pediatrics Beyond Factor - From Prophylaxis to Function

Location: Hall 1

Musculoskeletal

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Fundacion Santa Fe de Bogota

Co-Chair: – University of Genoa

Musculoskeletal

2:02 PM - 2:14 PM MYT

Hematologist perspective - prophylaxis in era of novel therapies

Location: Hall 1

Speaker: – University of Michigan

Musculoskeletal

2:14 PM - 2:26 PM MYT

Degenerative joint changes in children with haemophilia: Early detection with ultrasound

Location: Hall 1

Speaker: – Fundacion Hemofilia MdQ

Musculoskeletal

2:26 PM - 2:38 PM MYT

Integration of ultrasound and clinical-functional assessment (OSPAT and GAIT systems)

Location: Hall 1

Speaker: – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Musculoskeletal

2:38 PM - 2:50 PM MYT

Is surgery an option in pediatric patients?

Location: Hall 1

Speaker: – Children Hospital of Tunis

Musculoskeletal

2:50 PM - 3:02 PM MYT

Current challenges, barriers and enablers of physical activity in CHW

Location: Hall 1

Speaker: – Canterbury Christ Church University

Musculoskeletal

3:02 PM - 3:14 PM MYT

Strength training in hemophilia for adolescents

Location: Hall 1

Speaker: – University of Valencia

Musculoskeletal

3:14 PM - 3:30 PM MYT

Q&A

Location: Hall 1

Musculoskeletal

2:00 PM - 3:30 PM MYT

Women and Girls with Bleeding Disorders

Location: MR 304+305

Nurses

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: MR 304+305

Chair: – Amsterdam University Medical Centre

Nurses

2:02 PM - 2:32 PM MYT

Supporting the menstrual cycle

Location: MR 304+305

Speaker: – Children's Healthcare of Atlanta and Emory University

Nurses

2:32 PM - 2:47 PM MYT

Maternal health

Location: MR 304+305

Speaker: – Alfred Hospital

Nurses

2:47 PM - 3:02 PM MYT

Patient case: Severe factor VIII and pregnancy case

Location: MR 304+305

Speaker: – Liverpool University Hospitals NHS Foundation Trust

Nurses

3:02 PM - 3:17 PM MYT

Evaluation of at risk carrier

Location: MR 304+305

Speaker: – IHTC

Nurses

3:17 PM - 3:30 PM MYT

Q&A

Location: MR 304+305

Nurses

2:00 PM - 3:30 PM MYT

Using Patient-Reported Data and Experience to Drive Change

Location: Plenary Theatre

PWBD

2:00 PM - 2:02 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – RareQV

Co-Chair: – Institute for Policy Advancement Ltd

PWBD

2:02 PM - 2:17 PM MYT

How to advocate for better, more accessible patient registries (plus Canadian example) Using real-world evidence to drive change

Location: Plenary Theatre

Speaker: – McMaster University

PWBD

2:17 PM - 2:27 PM MYT

Mind the gap: Challenges for WGBD

Location: Plenary Theatre

Speaker: – Aziza Othmana Hospital

PWBD

2:27 PM - 2:37 PM MYT

EUHASS + Power BI for making data visible and actionable

Location: Plenary Theatre

Speaker: – Vivantes Hospital Friedrichshain

PWBD

2:37 PM - 2:47 PM MYT

Establishment of a national patient registry in Japan

Location: Plenary Theatre

Speaker: – Nagoya University Hospital

PWBD

2:47 PM - 2:57 PM MYT

Example from Pakistan - Development of a national patient registry, HEMOCLIC (software)

Location: Plenary Theatre

Speaker: – Hemophilia Foundation-Pakistan [HFP]

PWBD

2:57 PM - 3:30 PM MYT

Panel discussion & Q&A

Location: Plenary Theatre

PWBD

2:00 PM - 3:30 PM MYT

Mental Health and Community

Location: Hall 3

Psychosocial

2:00 PM - 2:10 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – Brigham and Women's Hospital

Psychosocial

2:10 PM - 2:24 PM MYT

Receiving a diagnosis: Supporting emotional first steps

Location: Hall 3

Speaker: – Hemophilia Center of Western Pennsylvania

Psychosocial

2:24 PM - 2:38 PM MYT

Stronger together: The power of community

Location: Hall 3

Speaker: – ABRAPHEM

Psychosocial

2:38 PM - 2:52 PM MYT

Support groups as safe spaces

Location: Hall 3

Speaker: – Fundación privada catalana de Hemofilia

Psychosocial

2:52 PM - 3:06 PM MYT

Resilience and recovery: Coping strategies for mental wellbeing

Location: Hall 3

Speaker: – Haemophilia New Zealand

Psychosocial

3:06 PM - 3:20 PM MYT

AI in psychosocial support

Location: Hall 3

Speaker: – Amaze Clinic and Diagnostics

Psychosocial

3:20 PM - 3:30 PM MYT

Q&A

Location: Hall 3

Psychosocial

3:30 PM - 4:15 PM MYT

COFFEE BREAK / ASK THE EXPERTS PODS

Location: Exhibit Hall 7

3:30 PM - 4:15 PM MYT

POD A - Ask the Experts: Low Resource Settings: Accessing WGBD in Rural Areas

Location: Exhibit Hall 7

WGBD

3:30 PM - 4:15 PM MYT

Outreach and identification challenges for WGBD in rural areas

Location: Exhibit Hall 7

Speaker: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

WGBD

3:30 PM - 4:15 PM MYT

The key role of NMOs in reaching women and girls outside the main cities; Community-based identification and education for WBGD

Location: Exhibit Hall 7

Speaker:

WGBD

3:30 PM - 4:15 PM MYT

POD B - Ask the Experts: Bispecific FVIIIa-Mimetics: Essential Knowledge for Laboratories

Location: Exhibit Hall 7

Laboratory Sciences

3:30 PM - 4:15 PM MYT

Bispecific FVIIIa-Mimetics: Essential Knowledge for Laboratories

Location: Exhibit Hall 7

Speaker: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

Laboratory Sciences

3:30 PM - 4:15 PM MYT

POD C - Ask the Experts: Sexuality and Intimacy

Location: Exhibit Hall 7

PWBD

3:30 PM - 4:15 PM MYT

Gynecologist

Location: Exhibit Hall 7

Speaker: – Mediclinic Dubai

PWBD

3:30 PM - 4:15 PM MYT

Moderator

Location: Exhibit Hall 7

Moderator: – National Bleeding Disorders Foundation

PWBD

3:30 PM - 4:15 PM MYT

Psychologist

Location: Exhibit Hall 7

Speaker: – National University of Tucuman

PWBD

3:30 PM - 4:15 PM MYT

Physiotherapist

Location: Exhibit Hall 7

Speaker: – Adult Inherited Bleeding Disorders Program of Manitoba

PWBD

3:30 PM - 4:15 PM MYT

POD D - Ask the Experts: Management of Cardiovascular Complications in Bleeding Disorders

Location: Exhibit Hall 7

Medical

3:30 PM - 4:15 PM MYT

Clinical case #1

Location: Exhibit Hall 7

Speaker: – Royal Prince Alfred Hospital

Medical

3:30 PM - 4:15 PM MYT

Clinical case #2

Location: Exhibit Hall 7

Speaker: – University of Utah

Medical

4:15 PM - 5:15 PM MYT

Aging and Oral Health in Persons with Bleeding Disorders

Location: MR 304+305

Dental

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Universidad Juárez Autónoma De Tabasco

Co-Chair: – King Faisal Specialist Hospital

Dental

4:17 PM - 4:32 PM MYT

Oral health for the elderly: What you need to know

Location: MR 304+305

Speaker: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Dental

4:32 PM - 4:47 PM MYT

Common medications use in dental treatment: Impact in PWBD

Location: MR 304+305

Speaker: – Faculty of Dentistry - University of Buenos Aires Hemophilia Foundation of Buenos Aires

Dental

4:47 PM - 5:02 PM MYT

Dental management of persons with hemophilia receiving emicizumab prophylaxis

Location: MR 304+305

Speaker: – University of Novi Sad, Faculty of Medicine

Dental

5:02 PM - 5:15 PM MYT

Q&A

Location: MR 304+305

Dental

4:15 PM - 5:15 PM MYT

New Treatment in Hemophilia: Challenges, Controversies and Uncertainties

Location: Hall 2

Medical

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Khon Kaen University

Co-Chair: – Cliniques Universitaires Saint-Luc

Medical

4:17 PM - 4:32 PM MYT

Non factor therapies: Surgical management and product transition

Location: Hall 2

Speaker: – Children's Hospital Los Angeles, University of Southern California Keck School of Medicine

Medical

4:32 PM - 4:47 PM MYT

Safety of replacement and NRT of haemophilia: Focus on thrombosis and immunogenicity

Location: Hall 2

Speaker: – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

Medical

4:47 PM - 5:02 PM MYT

AAV gene therapy: Prophylactic and reactive steroids

Location: Hall 2

Speaker: – Hemocentro Unicamp, University of Campinas

Medical

5:02 PM - 5:15 PM MYT

Q&A

Location: Hall 2

Medical

4:15 PM - 5:15 PM MYT

The Weight We Carry: Psychosocial Realities of Living with a Bleeding Disorder

Location: Plenary Theatre

PWBD

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – Wellington Regional Haemophilia Centre, Wellington Hospital

Co-Chair: – Hospital Bahagia Ulu Kinta, Perak, Malaysia

PWBD

4:17 PM - 4:23 PM MYT

Navigating stigma, identity, and everyday life with a bleeding disorder

Location: Plenary Theatre

Speaker: – Hemophilia Foundation - Pakistan

PWBD

4:23 PM - 4:29 PM MYT

Positive thinking - Caregiver perspective

Location: Plenary Theatre

Speaker: – Haemophilia Association of Mauritius

PWBD

4:29 PM - 4:35 PM MYT

Transitioning through life stages

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

PWBD

4:35 PM - 4:41 PM MYT

A woman’s perspective: Living with a bleeding disorder

Location: Plenary Theatre

Speaker: – Huazhong University of Science and Technology

PWBD

4:41 PM - 4:56 PM MYT

Mental health matters: How to unburden the mental stress of living with bleeding disorders

Location: Plenary Theatre

Speaker: – Haemophilia Foundation Victoria

Speaker: – Alfred Health

PWBD

4:56 PM - 5:15 PM MYT

Panel discussion

Location: Plenary Theatre

PWBD

4:15 PM - 5:15 PM MYT

Tackling Delayed Diagnosis of von Willebrand Disease in Women and Girls

Location: Hall 3

WGBD

4:15 PM - 4:17 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – National Coagulation Centre, St. James's Hospital

WGBD

4:17 PM - 4:32 PM MYT

The role of menstrual assessment tools in early detection of VWD; an overview of the tools available

Location: Hall 3

Speaker: – Queen's University

WGBD

4:32 PM - 4:47 PM MYT

How multidisciplinary management can lead to a more timely and accurate diagnosis of VWD

Location: Hall 3

Speaker: – Brigham And Women's Hospital - Harvard Medical School

WGBD

4:47 PM - 5:02 PM MYT

VWD diagnosis: What can be done to address the challenges

Location: Hall 3

Speaker: – Erasmus University Medical Center / Royal College of Surgeons in Ireland

WGBD

5:02 PM - 5:15 PM MYT

Q&A

Location: Hall 3

WGBD

4:15 PM - 5:15 PM MYT

Free Paper Session: Musculoskeletal Management

Location: Hall 1

Musculoskeletal

4:15 PM - 4:16 PM MYT

Welcome & introduction

Location: Hall 1

Chair: – Alfred Hospital

Musculoskeletal

4:16 PM - 4:25 PM MYT

Comparison of Total Ankle Arthroplasty and Ankle Arthrodesis in End-Stage Hemophilic Arthropathy

Location: Hall 1

Presenting Author: – Department of Orthopedics, Kyunghee University Hospital

Musculoskeletal

4:25 PM - 4:35 PM MYT

Hemophilia and Tai Chi: A New Rehabilitation and Preventive Pathway Based on Tai Chi Quan Practice

Location: Hall 1

Presenting Author: – Santa Maria della Misericordia Hospital Perugia

Musculoskeletal

4:35 PM - 4:45 PM MYT

Use of the Multidimensional Haemophilia Pain Questionnaire (MHPQ) in Patients with Severe Haemophilia A Treated with Emicizumab: A Pilot Cross-Sectional, Single-Centre Study

Location: Hall 1

Presenting Author: – University Federico II of Naples

Musculoskeletal

4:45 PM - 4:55 PM MYT

The Limited Range of Motion of the Knee Does Not fully explain the Altered Neural Control of Plantar Flexors During Gait in People with Haemophilia

Location: Hall 1

Presenting Author: – University of Chile.

Musculoskeletal

4:55 PM - 5:05 PM MYT

Total Knee Replacement in Haemophilia: 40 Years of Outcomes From a Tertiary Centre

Location: Hall 1

Presenting Author: – Royal Free Hospital London

Musculoskeletal

5:05 PM - 5:15 PM MYT

Modified triple fusion for equinocavus deformity in hemophlic foot deformities

Location: Hall 1

Presenting Author: – Christian Medical College Vellore

Musculoskeletal

6:00 PM - 7:30 PM MYT

POSTER NETWORKING EVENT

Location: Exhibit Hall 7

8:30 AM - 9:30 AM MYT

Musculoskeletal Access in Bleeding Disorder Care: Current State of Global Equity / How to treat with low resources

Location: Hall 1

Musculoskeletal

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Children Hospital of Tunis

Co-Chair: – Division of Therapeutic Development for Intractable Bone Diseases, Graduate School of Medicine and Faculty of Medicine, The University of Tokyo, Tokyo, Japan

Musculoskeletal

8:32 AM - 8:42 AM MYT

Global landscape of MSK care

Location: Hall 1

Speaker: – World Federation of Hemophilia

Musculoskeletal

8:42 AM - 8:52 AM MYT

Challenges in integrating new orthopedic specialists into MSK care - barriers and opportunities

Location: Hall 1

Speaker: – Buenos Aires University

Musculoskeletal

8:52 AM - 9:02 AM MYT

MSK management in low resource settings

Location: Hall 1

Speaker: – HOSPITAL SULTANAH BAHIYAH

Musculoskeletal

9:02 AM - 9:08 AM MYT

Different experiences around the world/different realities - Patient perspective - LIC

Location: Hall 1

Speaker: – Association Tunisienne De L'hémophilie

Musculoskeletal

9:08 AM - 9:14 AM MYT

Different experiences around the world/different realities - Patient perspective - high resource

Location: Hall 1

Speaker: – Haemophilia Foundation Australia

Musculoskeletal

9:14 AM - 9:30 AM MYT

Q&A

Location: Hall 1

Musculoskeletal

8:30 AM - 9:30 AM MYT

Obstetrics & Gynecology

Location: Hall 2

Medical

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Kansai Medical University Hospital

Co-Chair: – National Coagulation Centre, St. James's Hospital

Medical

8:32 AM - 8:47 AM MYT

Unique challenges of bleeding in women – heavy menstrual bleeding, menopause, and aging

Location: Hall 2

Speaker: – Brigham And Women's Hospital - Harvard Medical School

Medical

8:47 AM - 9:02 AM MYT

Reproductive issues/fertility - Embryo selection and IVF for bleeding disorders - Delivery of pregnancy - Pregnancy and fertility management issues

Location: Hall 2

Speaker: – The Royal Free Foundation Hospital

Medical

9:02 AM - 9:17 AM MYT

Carrier screening – Strategies for identifying potential carriers and ideal timing of genetic testing

Location: Hall 2

Speaker: – Department of Haematology - Monash Health and the Alfred Hospital

Medical

9:17 AM - 9:30 AM MYT

Q&A

Location: Hall 2

Medical

8:30 AM - 9:30 AM MYT

Making Digital Health Work for Everyone: Patient-Centered Innovation in Bleeding Disorders

Location: Plenary Theatre

PWBD

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Haemophilia New Zealand

PWBD

8:32 AM - 8:47 AM MYT

An educational app to provide education to the Senegalese bleeding disorder population

Location: Plenary Theatre

Speaker: – University of Geneva, Geneva Digital Health Hub (gdhub)

PWBD

8:47 AM - 9:02 AM MYT

A self-diagnostic screening tool for hemophilia patients using an application in Indonesia

Location: Plenary Theatre

Speaker: – Universitas Lambung Mangkurat

PWBD

9:02 AM - 9:17 AM MYT

“Bleed Predicator” – Pattern recognition for shared decision making & individualised treatment plans

Location: Plenary Theatre

Speaker: – South African Haemophilia Foundation

PWBD

9:17 AM - 9:30 AM MYT

Q&A

Location: Plenary Theatre

PWBD

8:30 AM - 9:30 AM MYT

Free Paper Session: Care Delivery and Patient Support

Location: MR 304+305

Psychosocial

8:30 AM - 8:31 AM MYT

Welcome & introduction

Location: MR 304+305

Chair: – IHTC

Psychosocial

8:31 AM - 8:45 AM MYT

Bridging the Gap: A Strategic Framework for Integrating Palliative Medicine into the Comprehensive Care of the Aging Person with Hemophilia

Location: MR 304+305

Presenting Author: – University of the Witwatersrand

Psychosocial

8:45 AM - 9:00 AM MYT

Impact of Implementing a Pharmacist-Led Multidisciplinary Clinic for Haemophilia

Location: MR 304+305

Presenting Author: – Ampang Hospital

Psychosocial

9:00 AM - 9:15 AM MYT

Improving Information Provision in Rare Bleeding Disorders

Location: MR 304+305

Presenting Author: – Erasmus MC Sophia Children's Hospital

Psychosocial

9:15 AM - 9:30 AM MYT

The body speaks before the child: Subjective constitution in children with hemophilia

Location: MR 304+305

Presenting Author: – Fundación privada catalana de Hemofilia

Psychosocial

8:30 AM - 9:30 AM MYT

Free Paper Session: Advances in Hemophilia Treatment and Management

Location: Hall 3

Medical

8:30 AM - 8:31 AM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – University of Washington

Co-Chair: – Ramathibodi hospital

Medical

8:31 AM - 8:45 AM MYT

Perspectives of patients, caregivers and healthcare professionals in Sri Lanka and Thailand regarding hemophilia B gene therapy

Location: Hall 3

Presenting Author: – St. Jude Children's Research Hospital

Medical

8:45 AM - 9:00 AM MYT

Joint Health Outcomes with Efanesoctocog Alfa in Adults/Adolescents from XTEND-1 Continuing in XTEND-ed: Plain Language Summary

Location: Hall 3

Presenting Author: – University Hospital Frankfurt, Department of Paediatrics

Medical

9:00 AM - 9:15 AM MYT

Accurate Detection of FVIII Inhibitor by Modified Nijmegen-Bethesda Assay in Patients with Emicizumab Prophylaxis

Location: Hall 3

Presenting Author: – Beijing Chilidren's Hospital, Capital Medical University

Medical

9:15 AM - 9:30 AM MYT

Immune Tolerance Induction in Haemophilia A Patients with Inhibitors: Updated Analysis from MOTIVATE

Location: Hall 3

Presenting Author: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Medical

9:45 AM - 10:45 AM MYT

Bringing Gene Therapy into Real World Clinical Practice

Location: Hall 2

Medical

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University of Washington

Co-Chair: – Institute of Hematology and Blood Diseases Hospital

Medical

9:47 AM - 10:02 AM MYT

Current gene therapy landscape for bleeding disorders - Benefits and limitations

Location: Hall 2

Speaker: – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

Medical

10:02 AM - 10:17 AM MYT

Establishment of a gene therapy centre in clinical practice

Location: Hall 2

Speaker: – University Hospital Frankfurt

Medical

10:17 AM - 10:32 AM MYT

Challenges in long-term monitoring for adverse events

Location: Hall 2

Speaker: – Hemocentro Unicamp, University of Campinas

Medical

10:32 AM - 10:45 AM MYT

Q&A

Location: Hall 2

Medical

9:45 AM - 10:45 AM MYT

Integrated Approach to Hemostasis, Joint Health, and Pelvic Floor for WGBD

Location: Hall 1

Musculoskeletal

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Kansai Medical University Hospital

Co-Chair: – Fondazione Cà Granda IRCCS Ospedale Policlinico Milano

Musculoskeletal

9:47 AM - 9:57 AM MYT

Diagnosis and management updates in WGBD

Location: Hall 1

Speaker: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Musculoskeletal

9:57 AM - 10:07 AM MYT

MSK health in WGBD - focus on joint health

Location: Hall 1

Speaker: – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

10:07 AM - 10:17 AM MYT

Pelvic floor rehabilitation - a missing piece in comprehensive care

Location: Hall 1

Speaker: – FlowLab

Musculoskeletal

10:17 AM - 10:27 AM MYT

Patient perspective

Location: Hall 1

Speaker: – hemophilia foundation pakistan

Musculoskeletal

10:27 AM - 10:45 AM MYT

Q&A

Location: Hall 1

Musculoskeletal

9:45 AM - 10:45 AM MYT

Access to Care - Not Just Access to Treatment

Location: Plenary Theatre

PWBD

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Hemophilia of Georgia

PWBD

9:47 AM - 9:59 AM MYT

No diagnosis, no care - Diagnostic challenges in developing countries

Location: Plenary Theatre

Speaker: – IHTC Dakar Senegal

PWBD

9:59 AM - 10:11 AM MYT

Giving voice to the rare - Driving access through advocacy

Location: Plenary Theatre

Speaker: – Haemophilia Association of Mauritius

PWBD

10:11 AM - 10:23 AM MYT

Doctors cannot be all things to all people - Getting access to the full comprehensive care team

Location: Plenary Theatre

Speaker: – IHTC

PWBD

10:23 AM - 10:35 AM MYT

I Would Walk 500 Miles - Accessing care for the ultra-rural

Location: Plenary Theatre

Speaker: – Hemophilia Association of Davao (HAnD)

PWBD

10:35 AM - 10:45 AM MYT

Q&A

Location: Plenary Theatre

PWBD

9:45 AM - 10:45 AM MYT

Identity and Life Stages in Bleeding Disorders

Location: Hall 3

Psychosocial

9:45 AM - 9:55 AM MYT

Welcome and introduction

Location: Hall 3

Chair: – Catalan Association of Hemophilia

Psychosocial

9:55 AM - 10:05 AM MYT

Bleeding and being heard: Women and girls with bleeding disorders

Location: Hall 3

Speaker: – Brigham and Women's Hospital

Psychosocial

10:05 AM - 10:15 AM MYT

Aging with hemophilia: Redefining wellbeing and independence

Location: Hall 3

Speaker: – Alfred Health

Psychosocial

10:15 AM - 10:25 AM MYT

When the future is now: Psychosocial impact of gene therapy and innovation

Location: Hall 3

Speaker: – NHS Southern Haemophilia Network

Psychosocial

10:25 AM - 10:35 AM MYT

Different worlds, same diagnosis: Cultural competence in psychosocial care

Location: Hall 3

Speaker: – Haemophilia Association of Mauritius

Psychosocial

10:35 AM - 10:45 AM MYT

Q&A

Location: Hall 3

Psychosocial

9:45 AM - 10:45 AM MYT

Free Paper Session: From Prevention to Surgery: Oral Health in Bleeding Disorders

Location: MR 304+305

Dental

9:45 AM - 9:46 AM MYT

Welcome & introduction

Location: MR 304+305

Co-Chair: – University of Novi Sad, Faculty of Medicine

Co-Chair: – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

9:46 AM - 10:00 AM MYT

Evidence-Based Optimization of Clotting Factor Concentrates for Dental Procedures in People with Haemophilia

Location: MR 304+305

Presenting Author: – Manipal College Of Dental Sciences Manipal

Dental

10:00 AM - 10:15 AM MYT

Major dental surgeries conducted under fitusiran prophylaxis in people with hemophilia A and B, with and without inhibitors

Location: MR 304+305

Presenting Author: – Northwell Health

Dental

10:15 AM - 10:30 AM MYT

Assessment of Factors Influencing Access of Patients with Hemophilia to Dental Services - Evaluation by Patients and Dentists: The Two Sides of the Same Coin

Location: MR 304+305

Presenting Author: – University of Debrecen

Dental

10:30 AM - 10:45 AM MYT

Lifestyles and nutrition in pediatric patients with hemostatic disorders: an oral health study from a parental perspective.

Location: MR 304+305

Presenting Author: – Universidad Juárez Autónoma De Tabasco

Dental

10:45 AM - 11:30 AM MYT

COFFEE BREAK / MODERATED POSTER PODS

Location: Exhibit Hall 7

11:30 AM - 12:00 PM MYT

Enhancing Evidence for Care in Underserved Populations

Location: Hall 2

Medical

11:32 AM - 12:00 PM MYT

Enhancing evidence for care in underserved populations

Location: Hall 2

Speaker: – University of the Witwatersrand and NHLS

Medical

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Hall 2

Chair: – Wells Center for Pediatric Research, Indiana University School of Medicine

Medical

11:30 AM - 12:00 PM MYT

Artificial Intelligence in Haemophilia Care: A Narrative Review of Current Evidence and Future Opportunities

Location: Plenary Theatre

PWBD

11:32 AM - 12:00 PM MYT

Artificial Intelligence in Haemophilia Care: A Narrative Review of Current Evidence and Future Opportunities

Location: Plenary Theatre

Speaker: – Cliniques Universitaires Saint-Luc

PWBD

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Plenary Theatre

Chair: – South African Haemophilia Foundation

PWBD

12:00 PM - 1:30 PM MYT

LUNCH BREAK

Location: Exhibit Hall 7

1:30 PM - 3:00 PM MYT

Updated Diagnosis of von Willebrand Disease: Global Access, Genomic Insights, and Quality Assurance

Location: MR 304+305

Laboratory Sciences

1:30 PM - 1:33 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – UK NEQAS Blood Coagulation

Co-Chair: – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

1:33 PM - 2:02 PM MYT

Laboratory diagnosis of von Willebrand disease: Considerations by geography and resource availability

Location: MR 304+305

Speaker: – Christian Medical College

Laboratory Sciences

2:02 PM - 2:31 PM MYT

Assessing diagnostic progress in von Willebrand disease through external quality evaluation schemes

Location: MR 304+305

Speaker: – UK NEQAS For Blood Coagulation

Laboratory Sciences

2:31 PM - 3:00 PM MYT

von Willebrand disease: Challenges and opportunities of next-generation sequencing

Location: MR 304+305

Speaker: – A. Bianchi Bonomi Hemophilia and Thrombosis Center

Laboratory Sciences

1:30 PM - 3:00 PM MYT

Rarer Bleeding Disorders

Location: Hall 2

Medical

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – University Lyon 1

Co-Chair: – Ampang Hospital

Medical

1:32 PM - 1:50 PM MYT

Glanzmann thrombasthenia and other platelet function disorders

Location: Hall 2

Speaker: – Vivantes Hospital Friedrichshain

Medical

1:50 PM - 2:08 PM MYT

Hereditary fibrinogen disorders: current challenges and unmet needs

Location: Hall 2

Speaker: – Division of Angiology and Hemostasis, University Hospitals of Geneva and Faculty of Medicine of Geneva

Medical

2:08 PM - 2:26 PM MYT

Congenital factor XI deficiency: From factor activity level to bleeding phenotype

Location: Hall 2

Speaker: – Radboud University Medical Center

Medical

2:26 PM - 2:44 PM MYT

Bleeding Disorder of Unknown Cause: Diagnostic Challenges and Overlap with Other (Rare) Bleeding Disorders

Location: Hall 2

Speaker: – Division of Haematology and Haemostaseology, Department of Medicine I, Medical University of Vienna

Medical

2:44 PM - 3:00 PM MYT

Q&A

Location: Hall 2

Medical

1:30 PM - 3:00 PM MYT

Everything Is Fine... But It’s Not: Understanding and Managing Chronic Pain in Bleeding Disorders

Location: Plenary Theatre

PWBD

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Ohio State University Hemophilia Treatment Center

PWBD

1:32 PM - 1:47 PM MYT

Joint health and inflammation

Location: Plenary Theatre

Speaker: – University of California

PWBD

1:47 PM - 2:02 PM MYT

Managing chronic joint pain: What are my options?

Location: Plenary Theatre

Speaker: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

PWBD

2:02 PM - 2:17 PM MYT

Move to improve: Managing pain through movement

Location: Plenary Theatre

Speaker: – Royal Adelaide Hospital

PWBD

2:17 PM - 2:32 PM MYT

Pain is more than physical: The emotional and mental load

Location: Plenary Theatre

Speaker: – Hemophilia Center of Western Pennsylvania

PWBD

2:32 PM - 2:42 PM MYT

Everything is fine but it is not… (patient perspective)

Location: Plenary Theatre

Speaker: – UAE Hemophilia Society

PWBD

2:42 PM - 3:00 PM MYT

Q&A

Location: Plenary Theatre

PWBD

1:30 PM - 3:00 PM MYT

Menstrual Health & Heavy Menstrual Bleeding

Location: Hall 1

WGBD

1:30 PM - 1:32 PM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Aziza Othmana Hospital

WGBD

1:32 PM - 2:02 PM MYT

HMB screening and management (children, late teens/young adults, premenopausal women) Hemophilia, VWD and other BDs and impact on quality of life

Location: Hall 1

Speaker: – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

WGBD

2:02 PM - 2:22 PM MYT

Cultural taboos around menstruation

Location: Hall 1

Speaker: – The Royal Free Foundation Hospital

WGBD

2:22 PM - 2:42 PM MYT

Menstrual tracking tools and how to encourage women to use them

Location: Hall 1

Speaker: – Mediclinic Dubai

WGBD

2:42 PM - 3:00 PM MYT

Q&A

Location: Hall 1

WGBD

1:30 PM - 3:00 PM MYT

Free Paper Session: Gene Therapy, Clinical Trials, and Emerging Therapies

Location: Hall 3

Medical

1:30 PM - 1:31 PM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – Beijing Children's Hospital

Co-Chair: – St. Jude Children's Research Hospital

Medical

1:31 PM - 1:45 PM MYT

Is Pharmacokinetic Variability Justification for Plasma Monitoring of Anti-TFPI Therapies in Haemophilia?

Location: Hall 3

Presenting Author: – Hospital Universitario Alvaro Cunqueiro, EOXI Vigo

Medical

1:45 PM - 2:00 PM MYT

Safety and Efficacy of Dalnacogene Ponparvovec (BBM-H901) in moderate to severe adult hemophilia B participants: Long term follow-up data in an Early phase pilot Study

Location: Hall 3

Presenting Author: – Institute of Hematology & Hospital of Blood Diseases Chinese Academy of Medical Sciences & Peking Union Medical college

Medical

2:00 PM - 2:15 PM MYT

Subcutaneous Four-Week Dosing of the Novel Protein S Antibody VGA039 Demonstrates Safety and Clinically Meaningful Bleed Reduction in Patients with Von Willebrand Disease: Phase 1/2 Multi-Dose Study Results

Location: Hall 3

Presenting Author: – Queensland Haemophilia Centre, Department of Haematology and BMT, Royal Brisbane and Women’s Hospital, Brisbane, Australia

Medical

2:15 PM - 2:30 PM MYT

Evaluating the Safety and Tolerability of Switching from Emicizumab to Fitusiran Prophylaxis in Males Aged ≥12 Years with Severe Hemophilia A, with and without Inhibitors: SWITCH Study

Location: Hall 3

Presenting Author: – Children's Hospital Los Angeles, University of Southern California Keck School of Medicine

Medical

2:30 PM - 2:45 PM MYT

Safety, Pharmacodynamics, and Efficacy of NXT007 After Switching From Emicizumab in Hemophilia A With and Without Inhibitors (NXTAGE Part C)

Location: Hall 3

Presenting Author: – National Taiwan University Hospital

Medical

2:45 PM - 3:00 PM MYT

Health-Related Quality of Life Outcomes for Marstacimab in Participants With Severe Hemophilia A or Moderately Severe to Severe Hemophilia B With Inhibitors: Results From the Phase 3 BASIS Trial

Location: Hall 3

Presenting Author: – University of the Witwatersrand and NHLS

Medical

3:00 PM - 3:45 PM MYT

COFFEE BREAK / ASK THE EXPERTS PODS

Location: Exhibit Hall 7

3:00 PM - 3:45 PM MYT

POD A - Ask the Experts: Psychosocial Care for the Bleeding Disorder Community

Location: Exhibit Hall 7

Psychosocial

3:00 PM - 3:45 PM MYT

The importance of psychosocial care

Location: Exhibit Hall 7

Speaker: – Brigham and Women's Hospital

Psychosocial

3:00 PM - 3:45 PM MYT

Real examples in real life

Location: Exhibit Hall 7

Speaker: – Fundación de la Hemofilia de la Argentina

Psychosocial

3:00 PM - 3:45 PM MYT

How to improve psychosocial support

Location: Exhibit Hall 7

Speaker: – Haemophilia Association of Mauritius

Psychosocial

3:00 PM - 3:45 PM MYT

POD B - Ask the Experts: Family Histories & Pedigrees

Location: Exhibit Hall 7

Nurses

3:00 PM - 3:45 PM MYT

Family Histories & Pedigrees

Location: Exhibit Hall 7

Panelist: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Panelist: – BC Children's Hospital

Panelist: – IHTC

Panelist: – Amsterdam University Medical Centre

Panelist: – Wellington Regional Haemophilia Centre, Wellington Hospital

Panelist: – Moi Teaching and Referral Hospital

Panelist: – Manipal College of Nursing, Manipal Academy of Higher Education

Panelist: – Tawam Hospital

Nurses

3:00 PM - 3:45 PM MYT

POD C - Ask the Experts: Prevention of Oral Diseases: What You Need to Know

Location: Exhibit Hall 7

Dental

3:00 PM - 3:45 PM MYT

Discussion leads

Location: Exhibit Hall 7

Speaker: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Speaker: – Universidad Juárez Autónoma De Tabasco

Speaker: – King Faisal Specialist Hospital

Dental

3:00 PM - 3:45 PM MYT

POD D - Ask the Experts: Clinical Case: PWBD and Radiculopathy

Location: Exhibit Hall 7

Musculoskeletal

3:00 PM - 3:45 PM MYT

Clinical Case: PWBD and Radiculopathy

Location: Exhibit Hall 7

Speaker: – Sahyadri Speciality Hospital, Haemophilia Society of Maharashtra, Pune chapter/ Haemophilia Society Pune Chapter

Speaker: – Fondazione Cà Granda IRCCS Ospedale Policlinico Milano

Musculoskeletal

3:45 PM - 4:45 PM MYT

Innovations in Hemostasis Management in Asia

Location: Plenary Theatre

Medical

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – Hemocentro Unicamp, University of Campinas

Co-Chair: – Singapore General Hospital

Medical

3:47 PM - 3:59 PM MYT

Overview of gene therapy clinical trials of hemophilia in China

Location: Plenary Theatre

Speaker: – Thrombosis and Hemostasis Center, Institute of Hematology & Blood Diseases Hospital

Medical

3:59 PM - 4:11 PM MYT

AAV vector engineering and large-scale manufacture

Location: Plenary Theatre

Speaker: – Belief BioMed

Medical

4:11 PM - 4:23 PM MYT

Update on clinical trial of FX activator for hemophilia in China

Location: Plenary Theatre

Speaker: – Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College

Medical

4:23 PM - 4:35 PM MYT

New targeted therapy for bleeding disorders: Phase I/II clinical trials of SR604 for prophylactic treatment of hemophilia and FVII deficiency

Location: Plenary Theatre

Speaker: – Shanghai RAAS Blood Products Co, Ltd

Medical

4:35 PM - 4:45 PM MYT

Q&A

Location: Plenary Theatre

Medical

3:45 PM - 4:45 PM MYT

Pathology of the Elbow

Location: MR 304+305

Musculoskeletal

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Luskin Orthopaedic Institute for Children

Co-Chair: – Royal Adelaide Hospital

Musculoskeletal

3:47 PM - 4:02 PM MYT

Synovitis & arthropathy: Clinical presentation and diagnosis

Location: MR 304+305

Speaker: – Fundacion Santa Fe de Bogota

Musculoskeletal

4:02 PM - 4:12 PM MYT

Arthroplasty and ulnar nerve compression

Location: MR 304+305

Speaker: – University of Florence

Musculoskeletal

4:12 PM - 4:22 PM MYT

Rehabilitative aspects

Location: MR 304+305

Speaker: – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Musculoskeletal

4:22 PM - 4:32 PM MYT

Post-operative rehabilitation in the elbow

Location: MR 304+305

Speaker: – Adult Inherited Bleeding Disorders Program of Manitoba

Musculoskeletal

4:32 PM - 4:45 PM MYT

Q&A

Location: MR 304+305

Musculoskeletal

3:45 PM - 4:45 PM MYT

WFH Programs Advancing Care for PWBD: What We Can Learn from Pakistan

Location: Hall 1

WFH

3:45 PM MYT

Chair

Location: Hall 1

Chair: – World Federation of Hemophilia

WFH

3:45 PM - 3:48 PM MYT

Welcome

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

3:48 PM - 3:55 PM MYT

Overview of Pakistan

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

3:55 PM - 4:05 PM MYT

WFH programs in Pakistan

Location: Hall 1

Speaker: – World Federation of Hemophilia

WFH

4:05 PM - 4:45 PM MYT

Panel discussion

Location: Hall 1

Panelist: – Hemophilia Foundation-Pakistan [HFP]

Panelist: – World Federation of Hemophilia

Panelist: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: – HAEMOPHILIA WELFARE SOCIETY, KARACHI. ZIAUDDIN UNIVERSITY HOSPITAL

WFH

3:45 PM - 4:45 PM MYT

Aging with Bleeding Disorders: Health, Frailty, and Comorbidities

Location: Hall 2

Medical

3:45 PM - 3:46 PM MYT

Welcome & introduction

Location: Hall 2

Co-Chair: – Singapore General Hospital

Co-Chair: – Canterbury Christ Church University

Medical

3:47 PM - 4:05 PM MYT

We’re living longer—now what? A lived experience perspective on aging with hemophilia

Location: Hall 2

Speaker: – Institute for Policy Advancement Ltd

Medical

4:05 PM - 4:25 PM MYT

Impact of comorbidities on treatment choice

Location: Hall 2

Speaker: – University of Utah

Medical

4:25 PM - 4:45 PM MYT

Navigating frailty and preventive care

Location: Hall 2

Speaker: – Innovative Hematology

Medical

3:45 PM - 4:45 PM MYT

Am I Selfish for Wanting a Family? Family Planning for People with Bleeding Disorders

Location: Hall 3

PWBD

3:45 PM - 3:47 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – Haemophilia Foundation of Nigeria

Co-Chair: – Children's Healthcare of Atlanta and Emory University

PWBD

3:47 PM - 3:59 PM MYT

Behind every gene is a story: Genetic counseling and informed decisions

Location: Hall 3

Speaker: – Sant Joan de Deu Hospital, Barcelona. Spain

PWBD

3:59 PM - 4:11 PM MYT

Beyond the biology: Psychosocial dimensions of family planning

Location: Hall 3

Speaker: – Empowering Minds Society for Research and Development

PWBD

4:11 PM - 4:19 PM MYT

Not just in the passenger seat: Dads driving the family planning conversation

Location: Hall 3

Speaker: – Messrs. Taqrir Akramin & Co.

PWBD

4:19 PM - 4:27 PM MYT

Becoming a mother with a bleeding disorder: One woman’s story and the options we have

Location: Hall 3

Speaker: – Fundación de la Hemofilia de Argentina

PWBD

4:27 PM - 4:45 PM MYT

Discussion and Q&A

Location: Hall 3

PWBD

5:00 PM - 6:00 PM MYT

Transition from Pediatric to Adult Care in Dentistry

Location: MR 304+305

Dental

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Royal London Hospital

Co-Chair: – Kuala Lumpur Hospital, Ministry of Health Malaysia

Dental

5:02 PM - 5:17 PM MYT

Dental anxiety in children with bleeding disorders and transition

Location: MR 304+305

Speaker: – King Faisal Specialist Hospital

Dental

5:17 PM - 5:32 PM MYT

Dental care beyond general dentistry: Experience in orthodontics and maxillofacial surgery for our patients with severe bleeding disorder

Location: MR 304+305

Speaker: – CHU de Québec-Université Laval

Dental

5:32 PM - 5:47 PM MYT

How to prevent sport-related dental injuries in PwBD?

Location: MR 304+305

Speaker: – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

5:47 PM - 6:00 PM MYT

Q&A

Location: MR 304+305

Dental

5:00 PM - 6:00 PM MYT

Gene Editing for Inherited Bleeding Disorders - The Next Frontier

Location: Hall 2

Medical

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Queen's University

Co-Chair: – Thrombosis and Hemostasis Center, Institute of Hematology & Blood Diseases Hospital

Medical

5:02 PM - 5:17 PM MYT

The tools of gene editing

Location: Hall 2

Speaker: – University of Ferrara

Medical

5:17 PM - 5:32 PM MYT

Ongoing trials in gene editing for hemophilia

Location: Hall 2

Speaker: – University of Michigan

Medical

5:32 PM - 5:47 PM MYT

Safety of gene editing

Location: Hall 2

Speaker: – McKusick-Nathans Department of Genetic Medicine; Johns Hopkins School of Medicine Faculty

Medical

5:47 PM - 6:00 PM MYT

Q&A

Location: Hall 2

Medical

5:00 PM - 6:00 PM MYT

Don't Leave Anyone Behind

Location: Hall 3

Nurses

5:00 PM - 5:02 PM MYT

Welcome and introduction

Location: Hall 3

Chair: – Moi Teaching and Referral Hospital

Nurses

5:02 PM - 5:17 PM MYT

Mild & moderate haemophilia prophylaxis

Location: Hall 3

Speaker: – Ohio State University Hemophilia Treatment Center

Nurses

5:17 PM - 5:27 PM MYT

Mild hemophilia inhibitor

Location: Hall 3

Speaker: – Women's & Children's Hospital Adelaide

Nurses

5:27 PM - 5:37 PM MYT

The lived experience of the hemophilia carrier

Location: Hall 3

Speaker: – Kenya Haemophlia Association

Nurses

5:37 PM - 5:47 PM MYT

Muscle bleeding in mild haemophilia

Location: Hall 3

Speaker: – Amsterdam University Medical Centre

Nurses

5:47 PM - 6:00 PM MYT

Q&A

Location: Hall 3

Nurses

5:00 PM - 6:00 PM MYT

Free Paper Session: Christine Lee Young Researcher Award

Location: Plenary Theatre

Medical

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Plenary Theatre

Co-Chair: – Cliniques Universitaires Saint-Luc

Co-Chair: – Queen's University

Co-Chair: – Lakshmi Hospital & Research Centre

Medical

5:01 PM - 5:12 PM MYT

Identification and Impact of Risk Factors for Recurrent Pain in Patients with Severe Hemophilia A

Location: Plenary Theatre

Presenting Author: – Dongguk University, Department of Industrial and Systems Engineering

Medical

5:12 PM - 5:24 PM MYT

Pharmacokinetic and pharmacodynamic variability of emicizumab in real-world haemophilia A patients: insights from a long-term single-centre cohort study

Location: Plenary Theatre

Presenting Author: – IRCCS Humanitas Research Hospital

Medical

5:24 PM - 5:36 PM MYT

Heavy Menstrual Bleeding in Bleeding Disorders of Unknown Cause: A Common Symptom Influencing Daily Life Functioning

Location: Plenary Theatre

Presenting Author: – Erasmus MC Sophia Children's Hospital

Medical

5:36 PM - 5:48 PM MYT

Predictors of Joint Health in Canadian Persons with Haemophilia: A National Registry Analysis of HJHS Outcomes

Location: Plenary Theatre

Presenting Author: – Department of Rehabilitation Medicine, Faculty of Medicine Ramathibodi Hospital, Mahidol University

Medical

5:48 PM - 6:00 PM MYT

Blood Flow Restriction Training: A Safe and Viable Alternative to Traditional Moderate-to-High Load Resistance Exercise in Hemophilia

Location: Plenary Theatre

Presenting Author: – University of Valencia

Medical

5:00 PM - 6:00 PM MYT

Free Paper Session: Quality of Life and Patient Outcomes

Location: Hall 1

PWBD

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Hall 1

Co-Chair: – Lausanne University Hospital

Co-Chair: – Syrian Hemophilia Society

PWBD

5:02 PM - 5:12 PM MYT

Nationwide Haemophilia Training to Decentralise Care in Kenya: A Scalable Model for Resource-Limited Settings

Location: Hall 1

Presenting Author: – Kenya Haemophilia Association

PWBD

5:12 PM - 5:24 PM MYT

Migration for Hemophilia Treatment: Impact on Health Outcomes and Quality of Life

Location: Hall 1

Presenting Author: – ASHECOVA

PWBD

5:24 PM - 5:36 PM MYT

Development of a refined data dashboard for PROBE: Enhancing data interpretation and advocacy support for national patient organizations

Location: Hall 1

Presenting Author: – Institute for Policy Advancement Ltd

PWBD

5:36 PM - 5:48 PM MYT

Clinical, Functional, and Quality of Life Outcomes with Emicizumab in Children with Severe Hemophilia A: A Large Multicenter Retrospective Study

Location: Hall 1

Presenting Author: – Shabrawishi Hospital

PWBD

5:48 PM - 6:00 PM MYT

Exploring Mim8 Treatment Experiences of Adults and Adolescents With Haemophilia A Participating in the FRONTIER2 Study – A Qualitative In-Trial Interview Study

Location: Hall 1

Presenting Author: – Vivantes Hospital Friedrichshain

PWBD

6:00 PM - 6:30 PM MYT

Twinning Event

Location: MR 302+303

6:30 PM - 7:00 PM MYT

WGBD Initiative Event

Location: MR 302+303

7:00 PM - 8:00 PM MYT

WFH Programs Networking Event

Location: MR 302+303

7:00 AM - 8:15 AM MYT

MSK Annual General Meeting

Location: MR 304+305

Speaker: – Fundacion Hemofilia de Buenos Aires

Speaker: – Los Angeles Orthopaedic Hemophilia Treatment Center

Speaker: – University of Florence

Speaker: – Sahyadri Speciality Hospital, Haemophilia Society of Maharashtra, Pune chapter/ Haemophilia Society Pune Chapter

Musculoskeletal

8:30 AM - 9:30 AM MYT

From Suspicion to Diagnosis: When and How to Investigate Platelet Function in Bleeding Disorders

Location: MR 304+305

Laboratory Sciences

8:30 AM - 8:33 AM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Co-Chair: – Aziza Othmana Hospital

Laboratory Sciences

8:33 AM - 8:52 AM MYT

Platelet function testing - beyond aggregometry

Location: MR 304+305

Speaker: – Christian Medical College Vellore

Laboratory Sciences

8:52 AM - 9:11 AM MYT

Acquired platelet dysfunction with Eosinophilia (APDE)

Location: MR 304+305

Speaker: – Christian Medical College

Laboratory Sciences

9:11 AM - 9:30 AM MYT

Platelet genetic testing by next-generation sequencing: A practical update

Location: MR 304+305

Speaker: – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

8:30 AM - 9:30 AM MYT

Novel Therapies

Location: Hall 1

Nurses

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 1

Chair: – IHTC

Nurses

8:32 AM - 8:57 AM MYT

Basic science

Location: Hall 1

Speaker: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Nurses

8:57 AM - 9:07 AM MYT

Nurses role in gene therapy

Location: Hall 1

Speaker: – Christian Medical College and Hospital

Nurses

9:07 AM - 9:17 AM MYT

Managing expectation: We still need to see you!

Location: Hall 1

Speaker: – Wellington Regional Haemophilia Centre, Wellington Hospital

Nurses

9:17 AM - 9:30 AM MYT

Q&A

Location: Hall 1

Nurses

8:30 AM - 9:30 AM MYT

Intracranial Bleeds in Neonates and Infants with Bleeding Disorders

Location: Hall 3

Medical

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: – Ramathibodi hospital

Co-Chair: – KK Women's and Children's Hospital

Medical

8:32 AM - 8:47 AM MYT

Perinatal management of infants with bleeding disorders

Location: Hall 3

Speaker: – Hospital for Sick Children

Medical

8:47 AM - 9:02 AM MYT

Recognising and preventing intracranial bleeds in infants with hemophilia

Location: Hall 3

Speaker: – University Hospital Frankfurt, Department of Paediatrics

Medical

9:02 AM - 9:17 AM MYT

Long-term outcomes of children with bleeding disorders following intracranial bleeds

Location: Hall 3

Speaker: – Emory University and Children's Healthcare of Atlanta

Medical

9:17 AM - 9:30 AM MYT

Q&A

Location: Hall 3

Medical

8:30 AM - 9:30 AM MYT

Prophylaxis in Countries with Limited Resources

Location: Hall 2

Medical

8:30 AM - 8:32 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – Department of Pediatrics, Ramathibodi Hospital

Co-Chair: – The Chinese University of Hong Kong

Medical

8:32 AM - 8:42 AM MYT

Low dose prophylaxis in hemophilia - Experience from Vietnam

Location: Hall 2

Speaker: – Hemophilia Centre; National Institute of Hematology and Blood Transfusion

Medical

8:42 AM - 8:52 AM MYT

Low dose prophylaxis in hemophilia - Experience from Indonesia

Location: Hall 2

Speaker: – Dr Cipto Mangunkusumo Hospital/Faculty of Medicine Universitas Indonesia

Medical

8:52 AM - 9:02 AM MYT

Prophylaxis in hemophilia - Experience from Thailand

Location: Hall 2

Speaker: – Chulalongkorn University / King Chulalongkorn Memorial Hospital

Medical

9:02 AM - 9:12 AM MYT

Low dose prophylaxis in hemophilia - Experience from Senegal

Location: Hall 2

Speaker: – IHTC Dakar Senegal

Medical

9:12 AM - 9:22 AM MYT

Outcome of low dose prophylaxis in Malaysia

Location: Hall 2

Speaker: – Ampang Hospital

Medical

9:22 AM - 9:30 AM MYT

Q&A

Location: Hall 2

Medical

8:30 AM - 9:30 AM MYT

The Age-Old Question: How Can We Better Engage Older People with Bleeding Disorders?

Location: Plenary Theatre

PWBD

8:30 AM - 8:35 AM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – South African Haemophilia Foundation

Co-Chair: – WFH

PWBD

8:35 AM - 8:50 AM MYT

Engagment without the labels?

Location: Plenary Theatre

Speaker: – Haemophilia Foundation Australia

PWBD

8:50 AM - 8:55 AM MYT

Old on paper, young at heart: How I want to be engaged

Location: Plenary Theatre

Speaker: – Canadian Hemophilia Society

PWBD

8:55 AM - 9:05 AM MYT

Building bridges: Engaging older people with respect and purpose - A personal and community perspective

Location: Plenary Theatre

Speaker: – South African Haemophilia Foundation

PWBD

9:05 AM - 9:15 AM MYT

Job done? Not yet!

Location: Plenary Theatre

Speaker: – Ehc and Shs

PWBD

9:15 AM - 9:30 AM MYT

Panel discussion and Q&A

Location: Plenary Theatre

PWBD

9:45 AM - 10:45 AM MYT

Minimally Invasive Procedures in Hemophilia Patients

Location: MR 304+305

Musculoskeletal

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: MR 304+305

Co-Chair: – Buenos Aires University

Co-Chair: – Division of Therapeutic Development for Intractable Bone Diseases, Graduate School of Medicine and Faculty of Medicine, The University of Tokyo, Tokyo, Japan

Musculoskeletal

9:47 AM - 9:57 AM MYT

Treatment of subchondral cysts

Location: MR 304+305

Speaker: – Buenos Aires University

Musculoskeletal

9:57 AM - 10:07 AM MYT

Radio synovectomies

Location: MR 304+305

Speaker: – King Edward Memorial Hospital

Musculoskeletal

10:07 AM - 10:17 AM MYT

Chemical synovectomies

Location: MR 304+305

Speaker: – Luskin Orthopaedic Institute for Children

Musculoskeletal

10:17 AM - 10:27 AM MYT

Platelet-rich plasma (PRP)

Location: MR 304+305

Speaker: – Royal Free Hospital London

Musculoskeletal

10:27 AM - 10:37 AM MYT

Post-operative rehabilitation

Location: MR 304+305

Speaker: – Los Angeles Orthopaedic Hemophilia Treatment Center

Musculoskeletal

10:37 AM - 10:45 AM MYT

Q&A

Location: MR 304+305

Musculoskeletal

9:45 AM - 10:45 AM MYT

Practical Advances in Diagnosis and Monitoring

Location: Hall 2

Medical

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – UK NEQAS Blood Coagulation

Co-Chair: – Christian Medical College

Medical

9:47 AM - 10:02 AM MYT

Monitoring in the era of non-factor therapy: Practical approaches for clinical practice - What assay for which factor concentrate?

Location: Hall 2

Speaker: – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

Medical

10:02 AM - 10:17 AM MYT

Ongoing challenges of hemophilia and VWD diagnosis in lower resource countries: How to overcome?

Location: Hall 2

Speaker: – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Medical

10:17 AM - 10:32 AM MYT

Practical monitoring issues in switching products - global assays (are they of clinical use or just research?)

Location: Hall 2

Speaker: – University Lyon 1

Medical

10:32 AM - 10:45 AM MYT

Q&A

Location: Hall 2

Medical

9:45 AM - 10:45 AM MYT

Less Bleeds, More Life? A New Era of Care

Location: Plenary Theatre

PWBD

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Erasmus University Medical Center

PWBD

9:47 AM - 9:59 AM MYT

What’s out there now: Making sense of new therapies

Location: Plenary Theatre

Speaker: – IRCCS Humanitas Research Hospital and Humanitas University

PWBD

9:59 AM - 10:11 AM MYT

New therapies, same joints: Why monitoring still matters

Location: Plenary Theatre

Speaker: – Lakshmi Hospital & Research Centre

PWBD

10:11 AM - 10:23 AM MYT

No bleeds, no worries? Not quite.

Location: Plenary Theatre

Speaker: – Unclottable LTD

PWBD

10:23 AM - 10:35 AM MYT

Mental health in the era of novel therapies

Location: Plenary Theatre

Speaker: – Fundación de la Hemofilia de la Argentina

PWBD

10:35 AM - 10:45 AM MYT

Q&A

Location: Plenary Theatre

PWBD

9:45 AM - 10:45 AM MYT

Empowering Women and Girls with Bleeding Disorders Through Shared Decision-Making

Location: Hall 1

WGBD

9:45 AM - 9:47 AM MYT

Welcome and introduction

Location: Hall 1

Chair: – World Federation of Hemophilia

WGBD

9:47 AM - 10:02 AM MYT

Introduction to SDM tool: How do we adapt the SDM tool and conversations for WGBD

Location: Hall 1

Speaker: – Amsterdam University Medical Centre

WGBD

10:02 AM - 10:17 AM MYT

Effective communication with HCPs in different cultural settings: Self-screening

Location: Hall 1

Speaker: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

WGBD

10:17 AM - 10:32 AM MYT

Self-advocacy: getting your voice heard, using the SDM tool to gain access

Location: Hall 1

Speaker: – Hemophilia Society of Bosnia & Herzegovina

WGBD

10:32 AM - 10:45 AM MYT

Q&A

Location: Hall 1

WGBD

9:45 AM - 10:45 AM MYT

Late-Breaking: New Tech

Location: Hall 3

Medical

9:45 AM - 9:46 AM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – World Federation of Hemophilia

Co-Chair: – Rush University Medical Center

Medical

9:46 AM - 10:00 AM MYT

Efficacy and Safety of AAV8-FVIII Gene Therapy in Chinese Patients with Severe Hemophilia A

Location: Hall 3

Presenting Author: – Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College

Medical

10:00 AM - 10:15 AM MYT

Next Gen Protein Replacement Therapeutics: DNA-Encoded Protein (DPROT) Technology Demonstrates in vivo Production of Functional FVIII in Mouse Mo

Location: Hall 3

Presenting Author: – Inovio Pharmaceuticals

Medical

10:15 AM - 10:30 AM MYT

The low-cost EnzySystem platform to simultaneously measure FVIII activity and Thrombin Generation to diagnose and monitor Hemophilia A

Location: Hall 3

Presenting Author: – Radboudumc, HTC-NEM

Medical

10:30 AM - 10:45 AM MYT

VGA039, a protein S-targeting monoclonal antibody, restores hemostasis in von Willebrand disease patient blood in an ex vivo bleeding model

Location: Hall 3

Presenting Author: – Star Therapeutics, Inc.

Medical

10:45 AM - 11:30 AM MYT

COFFEE BREAK / MODERATED POSTER PODS

Location: Exhibit Hall 7

11:30 AM - 12:00 PM MYT

Expanding the Toolbox with Non-Factor Therapies

Location: Hall 2

Medical

11:32 AM - 12:00 PM MYT

Expanding the toolbox with non-factor therapies

Location: Hall 2

Speaker: – IRCCS Humanitas Research Hospital and Humanitas University

Medical

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Hall 2

Chair: – Ampang Hospital

Medical

11:30 AM - 12:00 PM MYT

The Invisible Impact of Chronic Fatigue on Mental Health of WGBD

Location: Plenary Theatre

PWBD

11:30 AM - 11:32 AM MYT

Welcome & introduction

Location: Plenary Theatre

Chair: – Fundación de la Hemofilia de la Argentina

PWBD

11:32 AM - 11:39 AM MYT

The lived experience

Location: Plenary Theatre

Speaker: – Haemophilia New Zealand

PWBD

11:39 AM - 12:00 PM MYT

The invisible impact effect of chronic fatigue on WGBD mental health

Location: Plenary Theatre

Speaker: – Ampang Hospital

PWBD

12:00 PM - 1:00 PM MYT

LUNCH BREAK / ASK THE EXPERTS PODS

Location: Exhibit Hall 7

12:15 PM - 12:45 PM MYT

POD A - Ask the Experts: Safety of Newer Products: Questions and Answers

Location: Exhibit Hall 7

Medical

12:15 PM - 12:45 PM MYT

Safety of Newer Products: Questions and Answers

Location: Exhibit Hall 7

Speaker: – IRCCS Humanitas Research Hospital and Humanitas University

Speaker: – World Federation of Hemophilia

Speaker: – Irish Haemophilia Society

Speaker: – Institute for Policy Advancement Ltd

Medical

12:15 PM - 12:45 PM MYT

Safety of Newer Products: Questions and Answers

Location: Exhibit Hall 7

Speaker: – IRCCS Humanitas Research Hospital and Humanitas University

Speaker: – World Federation of Hemophilia

Speaker: – Irish Haemophilia Society

Speaker: – Institute for Policy Advancement Ltd

Medical

12:15 PM - 12:45 PM MYT

How to Take a Bleeding History

Location: Exhibit Hall 7

Speaker: – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Speaker: – BC Children's Hospital

Nurses

12:15 PM - 12:45 PM MYT

POD B - Ask the Experts: How to Take a Bleeding History

Location: Exhibit Hall 7

Nurses

12:15 PM - 12:45 PM MYT

POD C - Ask the Experts: Simplifying the Diagnosis of von Willebrand Disease

Location: Exhibit Hall 7

Laboratory Sciences

12:15 PM - 12:45 PM MYT

Simplifying the Diagnosis of von Willebrand Disease

Location: Exhibit Hall 7

Speaker: – Christian Medical College

Laboratory Sciences

12:15 PM - 12:45 PM MYT

Simplifying the Diagnosis of von Willebrand Disease

Location: Exhibit Hall 7

Speaker: – Christian Medical College

Laboratory Sciences

12:15 PM - 12:45 PM MYT

POD D - Ask the Experts: The Ripple Effect: Family Dynamics in Bleeding Disorders

Location: Exhibit Hall 7

PWBD

12:15 PM - 12:45 PM MYT

Panelists

Location: Exhibit Hall 7

Panelist: – Labari Communications

Panelist: – Haemophilia foundation of Nigeria

Panelist: – Florida International University

Panelist: – South African Haemophilia Foundation

Panelist:

Panelist: – HAPLOS

PWBD

12:16 PM - 12:17 PM MYT

Welcome & introduction

Location: Exhibit Hall 7

Moderator: – National Bleeding Disorders Foundation

PWBD

1:00 PM - 2:30 PM MYT

Oral Health in Women and Girls with Bleeding Disorders

Location: Hall 1

Dental

1:00 PM - 1:02 PM MYT

Welcome and introduction

Location: Hall 1

Co-Chair: – Faculty of Dentistry - University of Buenos Aires Hemophilia Foundation of Buenos Aires

Co-Chair: – CHU de Québec-Université Laval

Dental

1:02 PM - 1:22 PM MYT

Oral health in pregnancy

Location: Hall 1

Speaker: – Universidad Juárez Autónoma De Tabasco

Dental

1:22 PM - 1:42 PM MYT

Oral health in postmenopausal women

Location: Hall 1

Speaker: – University of Novi Sad, Faculty of Medicine

Dental

1:42 PM - 2:02 PM MYT

The dental management of women and girls with rare bleeding disorders

Location: Hall 1

Speaker: – Royal London Hospital

Dental

2:02 PM - 2:17 PM MYT

Oral health and rare bleeding disorders-patient perspective

Location: Hall 1

Speaker: – Hemophilia Society of Malaysia

Dental

2:17 PM - 2:30 PM MYT

Q&A

Location: Hall 1

Dental

1:00 PM - 2:30 PM MYT

von Willebrand Disease

Location: Hall 2

Medical

1:00 PM - 1:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – IHTC Dakar Senegal

Co-Chair: – Queen's University

Medical

1:02 PM - 1:20 PM MYT

VWD - 100 years in the making

Location: Hall 2

Speaker: – Queen's University

Medical

1:20 PM - 1:38 PM MYT

Making the diagnosis

Location: Hall 2

Speaker: – Erasmus University Medical Center / Royal College of Surgeons in Ireland

Medical

1:38 PM - 1:56 PM MYT

Current treatments

Location: Hall 2

Speaker: – National Coagulation Centre, St. James's Hospital

Medical

1:56 PM - 2:14 PM MYT

Future treatments

Location: Hall 2

Speaker: – Inserm U1176- Hemostasis Inflammation Thrombosis Lab

Medical

2:14 PM - 2:30 PM MYT

Q&A

Location: Hall 2

Medical

1:00 PM - 2:30 PM MYT

Clinical Cases

Location: MR 304+305

Musculoskeletal

1:00 PM - 2:30 PM MYT

Roundtable: Group 1 (English)

Location: MR 304+305

Moderator: – Children Hospital of Tunis

Moderator: – University of Chile.

Moderator: – Orthopaedic Hemophilia Treatment Center

Musculoskeletal

1:00 PM - 2:30 PM MYT

Roundtable: Group 2 (English)

Location: MR 304+305

Moderator: – Division of Therapeutic Development for Intractable Bone Diseases, Graduate School of Medicine and Faculty of Medicine, The University of Tokyo, Tokyo, Japan

Moderator: – Washington Center for Bleeding Disorders

Moderator: – UFRJ - Rio de Janeiro Federal University

Musculoskeletal

1:00 PM - 2:30 PM MYT

Roundtable: Group 3 (English)

Location: MR 304+305

Moderator: – Royal Free Hospital London

Moderator: – University of Valencia

Moderator: – Arkansas Children’s Hospital

Musculoskeletal

1:00 PM - 2:30 PM MYT

Roundtable: Group 4 (Spanish)

Location: MR 304+305

Moderator: – University of Murcia

Moderator: – Hospital Nacional Especializado de Niños Benjamín Bloom

Moderator: – Fundacion Santa Fe de Bogota

Musculoskeletal

1:01 PM - 1:02 PM MYT

Welcome & introduction

Location: MR 304+305

Co-chair: – Adult Inherited Bleeding Disorders Program of Manitoba

Co-Chair: – Canterbury Christ Church University

Musculoskeletal

1:02 PM - 1:07 PM MYT

CASE #1: Pediatric

Location: MR 304+305

Speaker: – University of Florence

Musculoskeletal

1:07 PM - 1:27 PM MYT

Group brainstorming

Location: MR 304+305

Musculoskeletal

1:27 PM - 1:42 PM MYT

Comments from each group

Location: MR 304+305

Musculoskeletal

1:42 PM - 1:47 PM MYT

CASE #2: Ankle / pseudotumor

Location: MR 304+305

Speaker: – King Edward Memorial Hospital

Musculoskeletal

1:47 PM - 2:07 PM MYT

Group brainstorming

Location: MR 304+305

Musculoskeletal

2:07 PM - 2:22 PM MYT

Comments from each group

Location: MR 304+305

Musculoskeletal

2:22 PM - 2:30 PM MYT

Final considerations

Location: MR 304+305

Co-Chair: – Adult Inherited Bleeding Disorders Program of Manitoba

Co-Chair: – Canterbury Christ Church University

Musculoskeletal

1:00 PM - 2:30 PM MYT

Celebrating Ten Years of the Expansion of the WFH Humanitarian Aid (HA) Program: Looking Back, Moving Forward

Location: Hall 3

WFH

1:00 PM MYT

Welcome & introduction

Location: Hall 3

Speaker: – Institute for Policy Advancement Ltd

WFH

1:01 PM - 1:05 PM MYT

Opening and Historical Context: How It All Began

Location: Hall 3

Speaker: – Institute for Policy Advancement Ltd

WFH

1:05 PM - 1:15 PM MYT

A Decade of Impact: Achievements from 2016-2025

Location: Hall 3

Speaker: – World Federation of Hemophilia

WFH

1:15 PM - 1:30 PM MYT

The Stories: Lives We Have Impacted

Location: Hall 3

WFH

1:15 PM - 1:30 PM MYT

Person with Hemophilia

Location: Hall 3

Panelist: – FBDRDN

WFH

1:15 PM - 1:30 PM MYT

Healthcare Provider

Location: Hall 3

Panelist: – Yangon Children's Hospital,University of Medicine I,Yangon,Myanmar

WFH

1:15 PM - 1:30 PM MYT

Ministry of Health

Location: Hall 3

Panelist: – Directorate of Epidemiology and Diseases Control

WFH

1:30 PM - 1:35 PM MYT

Lessons Learned: Acknowledging and Addressing Limitations

Location: Hall 3

Speaker: – World Federation of Hemophilia

WFH

1:35 PM - 2:00 PM MYT

Round Table Discussion with HA Visionary Donors

Location: Hall 3

Co-Chair: – World Federation of Hemophilia

WFH

1:35 PM - 2:00 PM MYT

Sanofi

Location: Hall 3

Panelist:

WFH

1:35 PM - 2:00 PM MYT

Roche

Location: Hall 3

Panelist: – Roche

WFH

1:35 PM - 2:00 PM MYT

Sobi

Location: Hall 3

Panelist: – SOBI

WFH

1:35 PM - 2:00 PM MYT

CSL

Location: Hall 3

Panelist: – CSL Behring Asia Pacific

WFH

1:35 PM - 2:00 PM MYT

Bayer

Location: Hall 3

Panelist: – Bayer AG

WFH

2:00 PM - 2:10 PM MYT

Looking Ahead: The Future of the Humanitarian Aid Program

Location: Hall 3

Speaker: – World Federation of Hemophilia

WFH

2:10 PM - 2:30 PM MYT

Discussion/Questions and Answers

Location: Hall 3

WFH

1:00 PM - 2:30 PM MYT

Patient Education to Improve Outcomes

Location: Plenary Theatre

PWBD

1:00 PM - 1:02 PM MYT

Welcome and introduction

Location: Plenary Theatre

Chair: – Cliniques Universitaires Saint-Luc

PWBD

1:02 PM - 1:17 PM MYT

Growing up with a bleeding disorder: Educational tools for each life stage

Location: Plenary Theatre

Speaker: – Córdoba Branch of the Fundacion de la Hemofilia and the Fundacion de la Hemofilia

PWBD

1:17 PM - 1:32 PM MYT

Dedicated days for young people with a severe bleeding disorder: Promoting healthy integration and reducing isolation

Location: Plenary Theatre

Speaker: – Centre hospitalier Universitaire Sainte-Justine

PWBD

1:32 PM - 1:47 PM MYT

Enhancing carrier education in hemophilia: A collaborative, life-stage approach

Location: Plenary Theatre

Speaker: – Catalan Association of Hemophilia

PWBD

1:47 PM - 2:02 PM MYT

What do I need to know? Helping patients identify their own learning needs

Location: Plenary Theatre

Speaker: – Lausanne University Hospital

PWBD

2:02 PM - 2:17 PM MYT

What I wish we knew sooner – A family’s journey with bleeding disorders

Location: Plenary Theatre

Speaker: – Iraqi Hemophilia Society

PWBD

2:17 PM - 2:30 PM MYT

Q&A

Location: Plenary Theatre

PWBD

2:30 PM - 3:00 PM MYT

COFFEE BREAK

Location: Exhibit Hall 7

3:00 PM - 4:00 PM MYT

Emerging Therapies: Approved and Experimental

Location: Hall 2

Medical

3:00 PM - 3:02 PM MYT

Welcome and introduction

Location: Hall 2

Co-Chair: – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

Co-Chair: – IRCCS Humanitas Research Hospital and Humanitas University

Medical

3:02 PM - 3:17 PM MYT

Mimetics - Mim8

Location: Hall 2

Speaker: – Nagoya University Hospital

Medical

3:17 PM - 3:32 PM MYT

Mimetics - NXT007

Location: Hall 2

Speaker: – Department of Pediatrics, Nara Medical University

Medical

3:32 PM - 3:47 PM MYT

Low dose versus standard dose emicizumab - randomized clinical trial

Location: Hall 2

Speaker: – Consultant Hematology, Hematooncology and BMT , Sparsh Hospital , Hennur Road, Bangalore

Medical

3:47 PM - 4:00 PM MYT

Q&A

Location: Hall 2

Medical

3:00 PM - 4:00 PM MYT

The Hidden Patients: Recognizing and Supporting Caregivers

Location: Hall 1

Psychosocial

3:00 PM - 3:10 PM MYT

Welcome and introduction

Location: Hall 1

Chair: – Hemophilia Center of Western Pennsylvania

Psychosocial

3:10 PM - 3:20 PM MYT

Parenting through diagnosis: Emotional journey

Location: Hall 1

Speaker: – Hemominas

Psychosocial

3:20 PM - 3:30 PM MYT

Masculinity and fatherhood in hemophilia

Location: Hall 1

Speaker: – South African Haemophilia Foundation

Psychosocial

3:30 PM - 3:40 PM MYT

Who cares for the caregiver?

Location: Hall 1

Speaker: – Amaze Clinic and Diagnostics

Psychosocial

3:40 PM - 3:50 PM MYT

Grief, guilt, and genetics

Location: Hall 1

Speaker: – The Edinburgh Haemophilia and Thrombosis Comprehensive Care Centre

Psychosocial

3:50 PM - 4:00 PM MYT

Q&A

Location: Hall 1

Psychosocial

3:00 PM - 4:00 PM MYT

Rarely Heard: Advancing Care, Community, and Visibility for Rare Bleeding Disorders

Location: Plenary Theatre

PWBD

3:00 PM - 3:02 PM MYT

Welcome and introduction

Location: Plenary Theatre

Co-Chair: – Haemophilia Association of Mauritius

Co-Chair: – National Hemophilia Foundation Of Thailand

PWBD

3:02 PM - 3:12 PM MYT

Living rare: Patient and family perspectives on isolation, identity, and advocacy

Location: Plenary Theatre

Speaker: – Haemophilia Foundation Australia

PWBD

3:12 PM - 3:22 PM MYT

From silence to strategy: Building NMO capacity for rare disorders

Location: Plenary Theatre

Speaker: – The Haemophilia Society

PWBD

3:22 PM - 3:32 PM MYT

No diagnosis, no pathway: Bridging the gap in early recognition of rare bleeding disorders

Location: Plenary Theatre

Speaker: – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

PWBD

3:32 PM - 3:47 PM MYT

Novel therapies/treatment - What's in the pipeline for RBD?

Location: Plenary Theatre

Speaker: – Division of Angiology and Hemostasis, University Hospitals of Geneva and Faculty of Medicine of Geneva

PWBD

3:47 PM - 4:00 PM MYT

Q&A

Location: Plenary Theatre

PWBD

3:00 PM - 4:00 PM MYT

Free Paper Session: Non-Factor Prophylaxis – Clinical and Functional Outcomes

Location: Hall 3

Medical

3:00 PM - 3:01 PM MYT

Welcome & introduction

Location: Hall 3

Co-Chair: – University of the Witwatersrand and NHLS

Co-Chair: – Aziza Othmana Hospital

Medical

3:01 PM - 3:15 PM MYT

Major orthopedic surgeries conducted under fitusiran prophylaxis in people with hemophilia A or B, with or without inhibitors

Location: Hall 3

Presenting Author: – Massachusetts General Hospital

Medical

3:15 PM - 3:30 PM MYT

Experience with Minor Surgeries in People with Hemophilia A and B with and without Inhibitors Receiving Fitusiran

Location: Hall 3

Presenting Author: – University of Michigan

Medical

3:30 PM - 3:45 PM MYT

Evolution of Joint Health and Physical Activity in People with Haemophilia A Without Factor VIII Inhibitors Switching to Emicizumab Prophylaxis: 12-month Interim Analysis of the BEYOND ABR Study

Location: Hall 3

Presenting Author: – Canterbury Christ Church University

Medical

3:45 PM - 4:00 PM MYT

Initiation of Nationwide Emicizumab Prophylaxis among Thai Patients with Hemophilia A with and without Inhibitors

Location: Hall 3

Presenting Author: – Department of Pediatrics, Ramathibodi Hospital

Medical

3:00 PM - 4:00 PM MYT

Free Paper Session: Women and Girls' Health and Research

Location: MR 304+305

WGBD

3:00 PM - 3:01 PM MYT

Welcome & introduction

Location: MR 304+305

Chair: – The Royal Free Foundation Hospital

WGBD

3:01 PM - 3:12 PM MYT

Functional evidence of impaired platelet pathways in endometriosis

Location: MR 304+305

Presenting Author: – Hull York Medical School

WGBD

3:12 PM - 3:24 PM MYT

From Diagnosis to Gynecological Challenges: the Experience of Women and Girls with VWD as Captured in the WFH World Bleeding Disorders Registry

Location: MR 304+305

Presenting Author: – World Federation of Hemophilia

WGBD

3:24 PM - 3:36 PM MYT

Chinese Cohort of Women and Girls from Hemophilia Families: Survey Methodology, Baseline Characteristics, and Planned Follow-up

Location: MR 304+305

Presenting Author: – Huazhong University of Science and Technology

WGBD

3:36 PM - 3:48 PM MYT

Cultural and Clinical Burden of Inherited Bleeding Disorders in Women and Girls in Pakistan

Location: MR 304+305

Presenting Author: – Hemophilia Patients Welfare Society

WGBD

3:48 PM - 4:00 PM MYT

EndoTect: A Non-Invasive Urine Test for the Accurate Diagnosis of Deep Endometriosis in Women with Inherited Bleeding Disorders

Location: MR 304+305

Presenting Author: – Hull York Medical School

WGBD

4:05 PM - 4:35 PM MYT

Closing Plenary

Location: Plenary Theatre

WFH

4:05 PM - 4:08 PM MYT

Thank you to participants, volunteers, sponsors

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

4:08 PM - 4:12 PM MYT

Christine Lee Young Researcher Award - free paper

Location: Plenary Theatre

Speaker: – Cliniques Universitaires Saint-Luc

WFH

4:12 PM - 4:16 PM MYT

Christine Lee Young Researcher Award - poster

Location: Plenary Theatre

Speaker: – Cliniques Universitaires Saint-Luc

WFH

4:16 PM - 4:21 PM MYT

Congress program highlights and looking to the future

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH

4:21 PM - 4:25 PM MYT

Thank you from host

Location: Plenary Theatre

Speaker: – Hemophilia Society of Malaysia

WFH

4:25 PM - 4:30 PM MYT

Next host

Location: Plenary Theatre

Speaker: – National Bleeding Disorders Foundation

WFH

4:30 PM - 4:34 PM MYT

Closing word

Location: Plenary Theatre

Speaker: – World Federation of Hemophilia

WFH