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Sunday, April 19, 2026
8:30 AM - 11:30 AM MYT
(CPSSAWKP1) Safety, Efficacy, and Access in Hemophilia and Rare Bleeding Disorders: Navigating the Evolving Therapeutic Landscape
WFH

8:30 AM - 11:30 AM MYT

Safety, Efficacy, and Access in Hemophilia and Rare Bleeding Disorders: Navigating the Evolving Therapeutic Landscape

Location: Hall 3

WFH

8:30 AM - 8:31 AM MYT

Introduction

Location: Hall 3

Chair: Radoslaw Kaczmarek, PhD (he/him/his) – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

8:31 AM - 8:40 AM MYT

Welcome and recap of safety, efficacy, and access issues

Location: Hall 3

Speaker: Radoslaw Kaczmarek, PhD (he/him/his) – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

8:40 AM - 9:25 AM MYT

Pipeline Developments: Phase 1–3 Clinical Trial Datas

Location: Hall 3

WFH

8:41 AM - 9:00 AM MYT

Investigational therapies for hemophilia A & B

Location: Hall 3

Speaker: Radoslaw Kaczmarek, PhD (he/him/his) – Wells Center for Pediatric Research, Indiana University School of Medicine

WFH

9:00 AM - 9:15 AM MYT

Investigational therapies for VWD & rare bleeding disorders

Location: Hall 3

Speaker: David Lillicrap, MD – Queen's University

WFH

9:15 AM - 9:25 AM MYT

Q&A

Location: Hall 3

WFH

9:25 AM - 10:30 AM MYT

New Therapies: Real-World Data and Clinical Practice Patterns

Location: Hall 3

WFH

9:26 AM - 9:35 AM MYT

Re-balancing agents

Location: Hall 3

Speaker: Johnny Mahlangu, MD – University of the Witwatersrand and NHLS

WFH

9:35 AM - 9:45 AM MYT

UHL – real world data

Location: Hall 3

Speaker: Magdalena Lewandowska, MD – Innovative Hematology

WFH

9:45 AM - 9:55 AM MYT

The myth of VIII equivalency

Location: Hall 3

Speaker: Maria Elisa Mancuso, MD, PhD (she/her/hers) – IRCCS Humanitas Research Hospital and Humanitas University

WFH

10:05 AM - 10:15 AM MYT

Emicizumab: Low dose prophylaxis

Location: Hall 3

Speaker: Chandrakala Shanmukhaiah, MBBS, MD.,DM (she/her/hers) – Consultant Hematology, Hematooncology and BMT , Sparsh Hospital , Hennur Road, Bangalore

WFH

10:05 AM - 10:15 AM MYT

Gene therapy: Safety

Location: Hall 3

Speaker: Glenn Pierce, MD, PhD – World Federation of Hemophilia

WFH

10:15 AM - 10:30 AM MYT

Q&A

Location: Hall 3

WFH

10:30 AM - 10:40 AM MYT

EML Review

Location: Hall 3

WFH

10:31 AM - 10:38 AM MYT

Future EML topics

Location: Hall 3

Speaker: Salome Mekhuzla – World Federation of Hemophilia

WFH

10:38 AM - 10:40 AM MYT

Q&A

Location: Hall 3

WFH

10:40 AM - 11:00 AM MYT

Review & Access and Economic Availability

Location: Hall 3

WFH

10:41 AM - 10:55 AM MYT

Access and economic availability: Re-balancing agents compared to emicizumab & gene therapy

Location: Hall 3

Speaker: Brian O'Mahony, FACSLM (he/him/his) – Irish Haemophilia Society

WFH

10:55 AM - 11:00 AM MYT

Q&A

Location: Hall 3

WFH

11:00 AM - 11:25 AM MYT

WFH Living Guidelines

Location: Hall 3

WFH

11:01 AM - 11:20 AM MYT

Hemostatic agents & prophylaxis and implications for practice

Location: Hall 3

Speaker: Manuel Carcao, MD, MSc (he/him/his) – Hospital for Sick Children

Speaker: Steven W. Pipe, MD (he/him/his) – University of Michigan

WFH

11:20 AM - 11:25 AM MYT

Q&A

Location: Hall 3

WFH

11:25 AM - 11:30 AM MYT

Wrap-up

Location: Hall 3

WFH

8:30 AM - 12:30 PM MYT
(MSKWKP 1) Ultrasound Workshop
Musculoskeletal

8:30 AM - 12:30 PM MYT

Ultrasound Workshop

Location: MR 304+305

Musculoskeletal

8:30 AM - 8:35 AM MYT

Welcome and opening remarks

Location: MR 304+305

Moderator: Cindy Bailey, DPT OCS SCS ATC – Los Angeles Orthopaedic Hemophilia Treatment Center

Moderator: Carla Daffunchio, PT (she/her/hers) – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

8:30 AM - 12:30 PM MYT

Hands-on session instructors

Location: MR 304+305

Instructor: Carlo Martinoli, MD (he/him/his) – University of Genoa

Instructor: Patricia Nally, MD (she/her/hers) – Fundacion Hemofilia MdQ

Instructor: Hortensia De la Corte-Rodriguez, MD, PhD, Prof – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Instructor: Elena A. Boccalandro, BSc (she/her/hers) – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Instructor: David Stephensen, MSc PhD (he/him/his) – Canterbury Christ Church University

Instructor: Carla Daffunchio, PT (she/her/hers) – Fundacion Hemofilia de Buenos Aires

Instructor: Annette von Drygalski, MD. PharmD, RMSK (she/her/hers) – University of California

Instructor: Bruno U.K Steiner, DPT, LMT, RMSK (he/him/his) – Washington Center for Bleeding Disorders

Instructor: Lena M. Volland, PT, PhD (she/her/hers) – FlowLab

Instructor: Cindy Bailey, DPT OCS SCS ATC – Los Angeles Orthopaedic Hemophilia Treatment Center

Instructor: Azusa Nagao, MD, MSc, PhD (she/her/hers) – Kansai Medical University Hospital

Instructor: Marcel Prasetyo, PhD, RMSK (he/him/his) – Faculty of Medicine; University of Indonesia

Instructor: Peter Aguero, PT, DPT, RMSK (he/him/his) – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Instructor: Stacie Akins, PT MHS (she/her/hers) – Innovative Hematology/ IHTC

Musculoskeletal

8:35 AM - 8:50 AM MYT

Intro lecture: Why should healthcare professionals working in haemophilia centers be trained and enabled to perform POCUS?

Location: MR 304+305

Speaker: Annette von Drygalski, MD. PharmD, RMSK (she/her/hers) – University of California

Musculoskeletal

8:50 AM - 9:05 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - ELBOW

Location: MR 304+305

Speaker: Hortensia De la Corte-Rodriguez, MD, PhD, Prof – La Paz University Hospital-IdiPaz Institute for Health Research-Alfonso X EL Sabio University

Musculoskeletal

9:05 AM - 9:20 AM MYT

Live demonstration

Location: MR 304+305

Speaker: Marcel Prasetyo, PhD, RMSK (he/him/his) – Faculty of Medicine; University of Indonesia

Musculoskeletal

9:20 AM - 9:50 AM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

9:50 AM - 10:05 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - KNEE

Location: MR 304+305

Speaker: Stacie Akins, PT MHS (she/her/hers) – Innovative Hematology/ IHTC

Musculoskeletal

10:05 AM - 10:20 AM MYT

Live demonstration

Location: MR 304+305

Speaker: Peter Aguero, PT, DPT, RMSK (he/him/his) – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Musculoskeletal

10:20 AM - 10:50 AM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

10:50 AM - 11:10 AM MYT

Break

Location: MR 304+305

Musculoskeletal

11:10 AM - 11:25 AM MYT

Anatomical introduction and correlation with ultrasound scanning planes and images - ANKLE

Location: MR 304+305

Speaker: Carlo Martinoli, MD (he/him/his) – University of Genoa

Musculoskeletal

11:25 AM - 11:40 AM MYT

Live demonstration

Location: MR 304+305

Speaker: Carlo Martinoli, MD (he/him/his) – University of Genoa

Musculoskeletal

11:40 AM - 12:10 PM MYT

Hands-on session

Location: MR 304+305

Musculoskeletal

12:10 PM - 12:30 PM MYT

Q&A and panel discussion

Location: MR 304+305

Panelist: Annette von Drygalski, MD. PharmD, RMSK (she/her/hers) – University of California

Panelist: Azusa Nagao, MD, MSc, PhD (she/her/hers) – Kansai Medical University Hospital

Panelist: Carlo Martinoli, MD (he/him/his) – University of Genoa

Musculoskeletal

8:30 AM - 3:00 PM MYT
(NURWKP1) Nurses Professional Development Day
Nurses

8:30 AM - 3:00 PM MYT

Nurses Professional Development Day

Location: MR 302+303

Nurses

8:30 AM - 9:30 AM MYT

Highlighting Nursing Practice

Location: MR 302+303

Chair: Marlène Beijlevelt (she/her/hers) – Amsterdam University Medical Centre

Nurses

8:31 AM - 8:40 AM MYT

Welcome to Kuala Lumpur 2026

Location: MR 302+303

Speaker: Cathy Harrison, AdvDip, BMedSci, MSc (she/her/hers) – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Nurses

8:40 AM - 8:50 AM MYT

Establishing nurse-led clinics

Location: MR 302+303

Speaker: Erica Crilly, MN NP (she/her/hers) – BC Children's Hospital

Nurses

8:50 AM - 9:05 AM MYT

Nursing mentorship: Ensuring positive leadership & succession planning

Location: MR 302+303

Speaker: CJ Hansen, RN-BSN – Ohio State University Hemophilia Treatment Center

Nurses

9:05 AM - 9:20 AM MYT

Establishing comprehensive hemophilia clinics in resource limited settings

Location: MR 302+303

Speaker: Anjalin D'Souza, PhD(N) (she/her/hers) – Manipal College of Nursing, Manipal Academy of Higher Education

Nurses

9:20 AM - 9:30 AM MYT

Q&A

Location: MR 302+303

Nurses

9:30 AM - 10:00 AM MYT

Break

Location: MR 302+303

Nurses

10:00 AM - 11:00 AM MYT

Nurse triage: MSK assessment

Location: MR 302+303

Chair: BJ Ramsay, BSc Nursing (he/him/his) – Wellington Regional Haemophilia Centre, Wellington Hospital

Nurses

10:01 AM - 10:15 AM MYT

Assessment of a musculoskeletal bleed

Location: MR 302+303

Speaker: Pamela Narayan, Physiotherapist BPT MSc – Lakshmi Hospital & Research Centre

Nurses

10:15 AM - 10:30 AM MYT

Pseudotumour management: A UK experience

Location: MR 302+303

Speaker: Cathy Harrison, AdvDip, BMedSci, MSc (she/her/hers) – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Nurses

10:30 AM - 10:45 AM MYT

Pseudotumour management: A Kenyan experience

Location: MR 302+303

Speaker: Cyrus Githinji Njuguna, RN MPH (he/him/his) – Moi Teaching and Referral Hospital

Nurses

10:45 AM - 11:00 AM MYT

Q&A

Location: MR 302+303

Nurses

11:00 AM - 12:00 PM MYT

Nurse triage: Oral issues

Location: MR 302+303

Chair: Anjalin D'Souza, PhD(N) (she/her/hers) – Manipal College of Nursing, Manipal Academy of Higher Education

Nurses

11:01 AM - 11:15 AM MYT

The global impact of oral health

Location: MR 302+303

Speaker: Zikra A. Alkhayal, American Board Of Pediatric Dentistry , Master degree in Pediatric Dentistry (she/her/hers) – King Faisal Specialist Hospital

Nurses

11:15 AM - 11:30 AM MYT

Planning for dental procedures using a risk based approach

Location: MR 302+303

Speaker: Greta Mulders, MSc (she/her/hers) – Erasmus University Medical Center

Nurses

11:30 AM - 11:45 AM MYT

Pediatric oral trauma assessment and management

Location: MR 302+303

Speaker: Robyn Shoemark, Diploma Applied Science - Nursing – The Children's Hospital at Westmead, Sydney, NSW, Australia

Nurses

11:45 AM - 12:00 PM MYT

Q&A

Location: MR 302+303

Workshop

12:00 PM - 1:00 PM MYT

Lunch

Location: MR 302+303

Workshop

1:00 PM - 2:00 PM MYT

Service development

Location: MR 302+303

Chair: Erica Crilly, MN NP (she/her/hers) – BC Children's Hospital

Workshop

1:01 PM - 1:10 PM MYT

Value based care: First line genetic testing

Location: MR 302+303

Speaker: Abraham Sunder Singh, BSc Nurse (he/him/his) – Christian Medical College and Hospital

Workshop

1:10 PM - 1:20 PM MYT

Pediatric educational resources: The teddy bears picnic

Location: MR 302+303

Speaker: Jo Crowe, RSCN (she/her/hers) – Cambridge University Hospitals NHS Foundation Trust

Speaker: Joe Fox (she/her/hers) – Cambridge University Hospitals Trust

Workshop

1:20 PM - 1:35 PM MYT

Starting new therapies: From planning to completion

Location: MR 302+303

Speaker: BJ Ramsay, BSc Nursing (he/him/his) – Wellington Regional Haemophilia Centre, Wellington Hospital

Workshop

1:35 PM - 1:50 PM MYT

Nurse led acquired hemophilia pathway

Location: MR 302+303

Speaker: Janette T. Itaas, MSc (she/her/hers) – Royal Free Hospital

Workshop

1:50 PM - 2:00 PM MYT

Q&A

Location: MR 302+303

Workshop

2:00 PM - 3:00 PM MYT

What does nursing practice look like in global bleeding disorder care

Location: MR 302+303

Chair: Jennifer Maahs, MSN, PNP – IHTC

Workshop

2:01 PM - 2:15 PM MYT

European survey findings

Location: MR 302+303

Speaker: Cathy Harrison, AdvDip, BMedSci, MSc (she/her/hers) – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Workshop

2:15 PM - 2:45 PM MYT

Group workshop

Location: MR 302+303

Workshop

2:45 PM - 3:00 PM MYT

Conclusions

Location: MR 302+303

Chair: Cathy Harrison, AdvDip, BMedSci, MSc (she/her/hers) – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

Workshop

8:30 AM - 3:00 PM MYT
(PSYCHWKP1) Psychosocial Strategies in Managing Bleeding Disorders
Psychosocial

8:30 AM - 3:00 PM MYT

Psychosocial Strategies in Managing Bleeding Disorders

Location: Hall 1

Psychosocial

8:30 AM - 8:45 AM MYT

Registration (update contact emails)

Location: Hall 1

Speaker: Patricia Cabré (she/her/hers) – Catalan Association of Hemophilia

Psychosocial

8:45 AM - 8:55 AM MYT

Welcome

Location: Hall 1

Co-Chair: Silvina Grana, Clinical Psychologist (she/her/hers) – Fundación de la Hemofilia de la Argentina

Co-Chair: Mohsena Olath, MSc – Haemophilia Association of Mauritius

Co-Chair: Sarah Whitaker, DClinPsyc (she/her/hers) – NHS Southern Haemophilia Network

Psychosocial

8:55 AM - 9:15 AM MYT

Ice Breaker

Location: Hall 1

Speaker: Silvina Grana, Clinical Psychologist (she/her/hers) – Fundación de la Hemofilia de la Argentina

Psychosocial

9:15 AM - 10:30 AM MYT

Toolkits

Location: Hall 1

Psychosocial

9:16 AM - 9:40 AM MYT

Toolkit 1: Education & Schooling

Location: Hall 1

Speaker: Silvina Grana, Clinical Psychologist (she/her/hers) – Fundación de la Hemofilia de la Argentina

Speaker: Patricia Cabré (she/her/hers) – Catalan Association of Hemophilia

Psychosocial

9:40 AM - 10:05 AM MYT

Toolkit 2: Support Groups

Location: Hall 1

Speaker: Richa Mohan, MA M.MPhil (Psychology) (she/her/hers) – Empowering Minds Society for Research and Development

Psychosocial

10:05 AM - 10:30 AM MYT

Toolkit 3: Adherence

Location: Hall 1

Speaker: Alice Oliver Rosa Sacramento (she/her/hers) – Hemominas

Speaker: Amanda Stahl, MSW, LICSW (she/her/hers) – Brigham and Women's Hospital

Psychosocial

10:30 AM - 10:55 AM MYT

Break

Location: Hall 1

Psychosocial

10:55 AM - 11:45 AM MYT

Toolkits

Location: Hall 1

Psychosocial

10:56 AM - 11:20 AM MYT

Toolkit 4: Coping strategies

Location: Hall 1

Speaker: Mohsena Olath, MSc – Haemophilia Association of Mauritius

Speaker: Sarah Whitaker, DClinPsyc (she/her/hers) – NHS Southern Haemophilia Network

Psychosocial

11:20 AM - 11:45 AM MYT

Toolkit 5: Complications in general / (Gene Therapy)

Location: Hall 1

Speaker: Lenny Mammoliti, BArts(Music)(Psychology) (he/him/his) – Haemophilia Foundation Victoria

Speaker: Jane Portnoy, BA Social Work, grad dip Family Therapy (she/her/hers) – Alfred Health

Psychosocial

11:45 AM - 12:45 PM MYT

Lunch

Location: Hall 1

Psychosocial

12:45 PM - 2:00 PM MYT

Skill building

Location: Hall 1

Psychosocial

12:46 PM - 1:00 PM MYT

Setting up psychosocial services NMO side

Location: Hall 1

Speaker: Veronica Cerutti, MA (she/her/hers) – Fundación privada catalana de Hemofilia

Psychosocial

1:00 PM - 1:15 PM MYT

Setting up psychosocial services HTC Side

Location: Hall 1

Speaker: Gráinne O'Brien, DClinPsych (she/her/hers) – The Edinburgh Haemophilia and Thrombosis Comprehensive Care Centre

Psychosocial

1:15 PM - 1:30 PM MYT

Parenting skills in haemophilia care

Location: Hall 1

Speaker: Anthony F. Roberts, PhD (he/him/his) – South African Haemophilia Foundation

Psychosocial

1:30 PM - 1:45 PM MYT

Understanding psychosocial health

Location: Hall 1

Speaker: Darian Smith, MNZAC (he/him/his) – Haemophilia New Zealand

Psychosocial

1:45 PM - 2:00 PM MYT

Q&A

Location: Hall 1

Psychosocial

2:00 PM - 2:45 PM MYT

Networking by regions

Location: Hall 1

Psychosocial

2:45 PM - 3:00 PM MYT

Closing out the day and evaluation

Location: Hall 1

Co-Chair: Mohsena Olath, MSc – Haemophilia Association of Mauritius

Speaker: Sarah Whitaker, DClinPsyc (she/her/hers) – NHS Southern Haemophilia Network

Psychosocial

9:30 AM - 4:15 PM MYT
(WGBDWKP1) Improving Diagnosis and Multidisciplinary Care for Women and Girls with Bleeding Disorders
WGBD

9:30 AM - 4:15 PM MYT

Improving Diagnosis and Multidisciplinary Care for Women and Girls with Bleeding Disorders

Location: Hall 2

WGBD

9:30 AM - 9:45 AM MYT

Opening

Location: Hall 2

WGBD

9:31 AM - 9:45 AM MYT

Welcome & introduction

Location: Hall 2

Chair: Dawn Rotellini, BS (she/her/hers) – National Bleeding Disorders Foundation

WGBD

9:45 AM - 10:45 AM MYT

Educational presentations

Location: Hall 2

Chair: Jameela Sathar (she/her/hers) – Ampang Hospital

WGBD

9:46 AM - 10:00 AM MYT

Diagnostic challenges: Missed type I VWD, carriers, generational bleeding, no access to diagnosis in certain countries

Location: Hall 2

Speaker: Magdy El Ekiaby, MD (he/him/his) – Shabrawishi Hospital

WGBD

10:00 AM - 10:15 AM MYT

Lab testing: HMB investigations, borderline vWF, pregnancy & factor levels, genetic testing

Location: Hall 2

Speaker: Annette Bowyer, PhD – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

WGBD

10:15 AM - 10:30 AM MYT

Bone health in women with bleeding disorders

Location: Hall 2

Speaker: Divyaswathi Citla-Sridhar, MD, MSc (she/her/hers) – Arkansas Children’s Hospital

WGBD

10:30 AM - 10:45 AM MYT

Q&A

Location: Hall 2

WGBD

10:45 AM - 11:00 AM MYT

Break

Location: Hall 2

WGBD

11:00 AM - 11:45 AM MYT

Interactive group work: Building care pathways

Location: Hall 2

Chair: Dawn Rotellini, BS (she/her/hers) – National Bleeding Disorders Foundation

WGBD

11:01 AM - 11:45 AM MYT

What would you include in a checklist + resources

Location: Hall 2

WGBD

11:45 AM - 12:30 PM MYT

Lunch

Location: Hall 2

WGBD

12:30 PM - 1:20 PM MYT

Tools for better recognition in primary care - general discussion

Location: Hall 2

Chair: Lauren Phillips (she/her/hers) – Haemophilia New Zealand

WGBD

12:31 PM - 12:40 PM MYT

Haemophilia Foundation Australia (HFA)

Location: Hall 2

Speaker: Suzanne O'Callaghan, Grad Dip Ed, Grad Dip Info Services, M Women's Health (she/her/hers) – Haemophilia Foundation Australia

WGBD

12:40 PM - 12:50 PM MYT

Canadian Hemophilia Society (CHS)

Location: Hall 2

Speaker: Natalie Philbert, MA, PhD(c) (she/her/hers) – Canadian Hemophilia Society

WGBD

12:50 PM - 1:00 PM MYT

National Bleeding Disorders Foundation (NBDF)

Location: Hall 2

Speaker: Maria E. Santaella, RN-BC, MSN, PhD (c) (she/her/hers) – National Bleeding Disorders Foundation

WGBD

1:00 PM - 1:20 PM MYT

Discussion

Location: Hall 2

WGBD

1:20 PM - 2:05 PM MYT

Panel discussion: Multidisciplinary collaboration

Location: Hall 2

Chair: Anupama Pattiyeri

WGBD

1:20 PM - 2:05 PM MYT

Panelists

Location: Hall 2

Panelist: Robert F. Sidonio, Jr., MD, MSc. (he/him/his) – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Panelist: Kelly Tickle, DNP, PCNS-BC, PPCNP-BC, EBP-C (she/her/hers) – Children's Healthcare of Atlanta and Emory University

Panelist: Lena M. Volland, PT, PhD (she/her/hers) – FlowLab

Panelist: Lochana Nanayakkara, FDSRCS, MSc, FDS(ResDent)RCS, FHEA, FDSRCSEd (she/her/hers) – Royal London Hospital

Panelist: Maria Victoria Hernandez (she/her/hers) – National University of Tucuman

Panelist: Joanna Davies Fraser, MD (she/her/hers) – Mediclinic Dubai

WGBD

2:05 PM - 2:20 PM MYT

Break

Location: Hall 2

WGBD

2:20 PM - 2:27 PM MYT

Case #1: Girl with Glanzmann’s

Location: Hall 2

Speaker: Marlène Beijlevelt (she/her/hers) – Amsterdam University Medical Centre

WGBD

2:20 PM - 3:20 PM MYT

Case-based discussion: Normal vs abnormal symptoms

Location: Hall 2

Chair: Kelly Tickle, DNP, PCNS-BC, PPCNP-BC, EBP-C (she/her/hers) – Children's Healthcare of Atlanta and Emory University

WGBD

2:27 PM - 2:34 PM MYT

Case #2: Adult

Location: Hall 2

Speaker: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

WGBD

2:34 PM - 3:04 PM MYT

Discussion

Location: Hall 2

WGBD

3:04 PM - 3:20 PM MYT

Sharing with the group

Location: Hall 2

WGBD

3:20 PM - 3:50 PM MYT

Panel discussion: Overcoming barriers to diagnosis and care

Location: Hall 2

Chair: Robert F. Sidonio, Jr., MD, MSc. (he/him/his) – HOG Pediatric Center for Bleeding and Clotting Disorders of Emory

Panelist: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: Suzanne O'Callaghan, Grad Dip Ed, Grad Dip Info Services, M Women's Health (she/her/hers) – Haemophilia Foundation Australia

WGBD

3:20 PM - 3:50 PM MYT

Panelists

Location: Hall 2

Panelist: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

Panelist: Suzanne O'Callaghan, Grad Dip Ed, Grad Dip Info Services, M Women's Health (she/her/hers) – Haemophilia Foundation Australia

Panelist: Yujie (Ruby) Zuo, Bachelor of Science (she/her/hers) – Huazhong University of Science and Technology

Panelist: Sylvia Kathurima, MSc Strategic Management, BA Dual Honors Applied Social Studies & Human Resource Management – Kenya Haemophlia Association

WGBD

3:50 PM - 4:05 PM MYT

Wrap-up and Q&A

Location: Hall 2

Speaker: Dawn Rotellini, BS (she/her/hers) – National Bleeding Disorders Foundation

Speaker: Marlène Beijlevelt (she/her/hers) – Amsterdam University Medical Centre

WGBD

12:00 PM - 2:00 PM MYT
(LABWKP1) Getting Started: Fundamentals of Hemostasis Testing
Laboratory Sciences

12:00 PM - 2:00 PM MYT

Getting Started: Fundamentals of Hemostasis Testing

Location: Hall 3

Laboratory Sciences

12:00 PM - 12:04 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: Pierre Toulon, PhD (he/him/his) – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Co-Chair: Ian Jennings, PhD – UK NEQAS For Blood Coagulation

Laboratory Sciences

12:04 PM - 12:33 PM MYT

Stability of hemostatic parameters in whole blood and fresh and frozen plasma: Evidence-based review and practical recommendations

Location: Hall 3

Speaker: Kieron Hickey, BSC,MSC (he/him/his) – Sheffield Haemophilia and Thrombosis Centre

Laboratory Sciences

12:33 PM - 1:02 PM MYT

Selecting equipment and reagents: Key considerations

Location: Hall 3

Speaker: Nitty S. Mathews, MD, PhD (he/him/his) – Christian Medical College Vellore

Laboratory Sciences

1:02 PM - 1:31 PM MYT

Approach to bleeding disorders: Where to begin the investigation

Location: Hall 3

Speaker: Dong Chen, MD PhD – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

1:31 PM - 2:00 PM MYT

Coagulation parameters across pediatric age groups

Location: Hall 3

Speaker: Pierre Toulon, PhD (he/him/his) – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Laboratory Sciences

1:00 PM - 3:30 PM MYT
(MSKWKP 2) Manual Therapy Workshop
Musculoskeletal

1:00 PM - 3:30 PM MYT

Manual Therapy Workshop

Location: MR 304+305

Musculoskeletal

1:00 PM - 3:30 PM MYT

Hands-on practice instructors

Location: MR 304+305

Instructor: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Instructor: Bruno U.K Steiner, DPT, LMT, RMSK (he/him/his) – Washington Center for Bleeding Disorders

Instructor: Cindy Bailey, DPT OCS SCS ATC – Los Angeles Orthopaedic Hemophilia Treatment Center

Instructor: Elena A. Boccalandro, BSc (she/her/hers) – Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center and Fondazione Luigi Villa

Instructor: Pamela Narayan, Physiotherapist BPT MSc – Lakshmi Hospital & Research Centre

Instructor: Rohini A. Dange, MPT(Physiotherapist) (she/her/hers) – Sahyadri Speciality Hospital, Haemophilia Society of Maharashtra, Pune chapter/ Haemophilia Society Pune Chapter

Instructor: Stacie Akins, PT MHS (she/her/hers) – Innovative Hematology/ IHTC

Instructor: Peter Aguero, PT, DPT, RMSK (he/him/his) – Division of Hematology/Oncology, Department of Medicine, University of California: San Diego

Musculoskeletal

1:01 PM - 1:05 PM MYT

Welcome & introduction

Location: MR 304+305

Chair: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Musculoskeletal

1:05 PM - 1:15 PM MYT

Effectiveness and safety measures of manual therapy in bleeding disorders

Location: MR 304+305

Speaker: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Musculoskeletal

1:15 PM - 1:20 PM MYT

Group formation

Location: MR 304+305

Musculoskeletal

1:20 PM - 2:00 PM MYT

Joint traction techniques

Location: MR 304+305

Musculoskeletal

1:21 PM - 1:30 PM MYT

Practical demonstration (ankle, knee and elbow)

Location: MR 304+305

Speaker: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Musculoskeletal

1:30 PM - 2:00 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:00 PM - 2:40 PM MYT

Myofascial techniques

Location: MR 304+305

Musculoskeletal

2:01 PM - 2:05 PM MYT

Practical demonstration (hamstring and gastrocnemius)

Location: MR 304+305

Speaker: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Musculoskeletal

2:05 PM - 2:20 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:20 PM - 2:25 PM MYT

Practical demonstration (post-hematoma: quadriceps)

Location: MR 304+305

Speaker: Bruno U.K Steiner, DPT, LMT, RMSK (he/him/his) – Washington Center for Bleeding Disorders

Musculoskeletal

2:25 PM - 2:40 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

2:40 PM - 3:20 PM MYT

Peri-articular myofascial techniques

Location: MR 304+305

Musculoskeletal

2:41 PM - 2:50 PM MYT

Practical demonstration (ankle, knee, elbow)

Location: MR 304+305

Speaker: Bruno U.K Steiner, DPT, LMT, RMSK (he/him/his) – Washington Center for Bleeding Disorders

Musculoskeletal

2:50 PM - 3:20 PM MYT

Hands-on practice, supervised by all instructors

Location: MR 304+305

Musculoskeletal

3:20 PM - 3:30 PM MYT

Wrap-up and summary: Next lines of work in manual therapy and bleeding disorders

Location: MR 304+305

Speaker: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Musculoskeletal

2:30 PM - 4:30 PM MYT
(LABWKP2) Do to Learn, Learn to Do
Laboratory Sciences

2:30 PM - 4:30 PM MYT

Do to Learn, Learn to Do

Location: Hall 3

Laboratory Sciences

2:30 PM - 2:31 PM MYT

Welcome & introduction

Location: Hall 3

Chair: Steve Kitchen, PhD (he/him/his) – UK NEQAS Blood Coagulation

Laboratory Sciences

2:31 PM - 2:50 PM MYT

Introductions: Laboratory investigation using only manual tests

Location: Hall 3

Speaker: Steve Kitchen, PhD (he/him/his) – UK NEQAS Blood Coagulation

Laboratory Sciences

2:45 PM - 4:30 PM MYT

Topic 4: The manual tilt-tube method for factor inhibitors

Location: Hall 3

Laboratory Instructor: Tulasi Geevar, MBBS, MD (she/her/hers) – Christian Medical College

Laboratory Instructor: Nitty S. Mathews, MD, PhD (he/him/his) – Christian Medical College Vellore

Laboratory Sciences

2:50 PM - 3:00 PM MYT

Q&A

Location: Hall 3

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 1: The manual tilt-tube method for APTT and mixing test

Location: Hall 3

Laboratory Instructor: Kieron Hickey, BSC,MSC (he/him/his) – Sheffield Haemophilia and Thrombosis Centre

Laboratory Instructor: Dong Chen, MD PhD – Mayo Clinic Comprehensive Cancer Center/ Laboratory Medicine and Pathology

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 2: The manual tilt-tube method for FVIII and FIX

Location: Hall 3

Laboratory Instructor: Christopher Reilly-Stitt, MSc (he/him/his) – UKNEQAS BC

Laboratory Instructor: Pierre Toulon, PhD (he/him/his) – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

Laboratory Sciences

3:00 PM - 4:30 PM MYT

Topic 3: The manual tilt-tube method for Ristocetin Cofactor

Location: Hall 3

Laboratory Instructor: Steve Kitchen, PhD (he/him/his) – UK NEQAS Blood Coagulation

Laboratory Instructor: Silmara Montalvao, PhD (she/her/hers) – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Laboratory Sciences

3:30 PM - 6:00 PM MYT
(DENWKP1) Hands-On Oral Health Education for Patients, Caregivers and Nurses
Dental

3:30 PM - 6:00 PM MYT

Hands-On Oral Health Education for Patients, Caregivers and Nurses

Location: MR 302+303

Dental

3:30 PM MYT

Welcome and introduction

Location: MR 302+303

Chair: Lochana Nanayakkara, FDSRCS, MSc, FDS(ResDent)RCS, FHEA, FDSRCSEd (she/her/hers) – Royal London Hospital

Dental

3:31 PM - 3:50 PM MYT

Oral health education

Location: MR 302+303

Speaker: Leandro Dorigan, Phd (he/him/his) – Department of Dentistry and Stomatology at the Ribeirão Preto Clinical Hospital – University of São Paulo

Dental

3:50 PM - 5:50 PM MYT

Table clinics (rotation of groups every 30 min)

Location: MR 302+303

Dental

3:50 PM - 5:50 PM MYT

Table clinic 1: Fluoride and silver diamine application

Location: MR 302+303

Speaker: Zikra A. Alkhayal, American Board Of Pediatric Dentistry , Master degree in Pediatric Dentistry (she/her/hers) – King Faisal Specialist Hospital

Dental

3:50 PM - 5:50 PM MYT

Table clinic 2: Hidden sugars and preventing tooth decay

Location: MR 302+303

Speaker: Lochana Nanayakkara, FDSRCS, MSc, FDS(ResDent)RCS, FHEA, FDSRCSEd (she/her/hers) – Royal London Hospital

Speaker: Michelle Bourassa, M.Sc, DMD (she/her/hers) – CHU de Québec-Université Laval

Dental

3:50 PM - 5:50 PM MYT

Table clinic 3: Demonstration of tooth brushing and flossing

Location: MR 302+303

Speaker: Norjehan Yahaya, DDS(Dalhousie), DCD(Melbourne) (she/her/hers) – Kuala Lumpur Hospital, Ministry of Health Malaysia

Speaker: Laura Beatriz Isidro Olan, PhD (she/her/hers) – Universidad Juárez Autónoma De Tabasco

Dental

3:50 PM - 5:50 PM MYT

Table clinic 4: Local measures to stop bleeding

Location: MR 302+303

Speaker: Miryam E. Parreira, MD (she/her/hers) – Faculty of Dentistry - University of Buenos Aires Hemophilia Foundation of Buenos Aires

Speaker: Branislav Bajkin, PhD – University of Novi Sad, Faculty of Medicine

Dental

5:50 PM - 6:00 PM MYT

Closing remarks

Location: MR 302+303

Speaker: Lochana Nanayakkara, FDSRCS, MSc, FDS(ResDent)RCS, FHEA, FDSRCSEd (she/her/hers) – Royal London Hospital

Dental

4:00 PM - 6:00 PM MYT
(MSKWKP 3) Workshop: Foundations and Practical Strategies for Strength Training in PWBD
Musculoskeletal

4:00 PM - 6:00 PM MYT

Workshop: Foundations and Practical Strategies for Strength Training in PWBD

Location: MR 304+305

Musculoskeletal

4:00 PM - 4:01 PM MYT

Welcome & introduction

Location: MR 304+305

Co-Chair: Carlos Cruz-Montecinos, PhD (he/him/his) – University of Chile.

Co-Chair: Joaquin Calatayud, PhD (he/him/his) – University of Valencia

Musculoskeletal

4:01 PM - 4:15 PM MYT

The fundamentals of elastic resistance training

Location: MR 304+305

Speaker: Carlos Cruz-Montecinos, PhD (he/him/his) – University of Chile.

Musculoskeletal

4:15 PM - 4:30 PM MYT

Mastering of dose intensity, volume & key variables

Location: MR 304+305

Speaker: Joaquin Calatayud, PhD (he/him/his) – University of Valencia

Musculoskeletal

4:30 PM - 4:35 PM MYT

Q&A

Location: MR 304+305

Speaker: Carlos Cruz-Montecinos, PhD (he/him/his) – University of Chile.

Speaker: Joaquin Calatayud, PhD (he/him/his) – University of Valencia

Musculoskeletal

4:35 PM - 5:25 PM MYT

From theory to action: Hands-on practice

Location: MR 304+305

Instructor: Carlos Cruz-Montecinos, PhD (he/him/his) – University of Chile.

Instructor: Joaquin Calatayud, PhD (he/him/his) – University of Valencia

Instructor: Cameron Cramey, PT, MMSKPT – Royal Adelaide Hospital

Instructor: Mohd Helmi Hashim, MBA (HEALTHCARE) (he/him/his) – HOSPITAL SULTANAH BAHIYAH

Instructor: Elena Donoso Úbeda, PhD (she/her/hers) – University of Murcia

Instructor: Carla Daffunchio, PT (she/her/hers) – Fundacion Hemofilia de Buenos Aires

Musculoskeletal

5:25 PM - 6:00 PM MYT

Group sharing and discussion: Strength exercise programs

Location: MR 304+305

Musculoskeletal

4:00 PM - 6:20 PM MYT
(D&DWKP1) Data, Research & Advocacy for Equitable Care
WFH

4:00 PM - 6:20 PM MYT

Data, Research & Advocacy for Equitable Care

Location: Hall 1

WFH

4:00 PM MYT

Session 1: Publishing

Location: Hall 1

WFH

4:00 PM - 4:01 PM MYT

Welcome & introduction

Location: Hall 1

Chair: Donna Coffin, MSc – World Federation of Hemophilia

WFH

4:02 PM - 4:15 PM MYT

Publishing in the Haemophilia Journal: Opportunities and challenges

Location: Hall 1

Speaker: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

WFH

4:15 PM - 4:20 PM MYT

Q&A

Location: Hall 1

WFH

4:20 PM MYT

Session 2: Why data matters

Location: Hall 1

Chair: Donna Coffin, MSc – World Federation of Hemophilia

WFH

4:20 PM - 4:35 PM MYT

Inequity analysis through the WFH data collection program

Location: Hall 1

Speaker: Ellia Tootonchian, MPH – World Federation of Hemophilia

WFH

4:35 PM - 4:50 PM MYT

Why data matters for QoL and inequity in care

Location: Hall 1

Speaker: Mark W. Skinner, JD (he/him/his) – Institute for Policy Advancement Ltd

WFH

4:50 PM - 5:00 PM MYT

Q&A

Location: Hall 1

WFH

5:00 PM MYT

Session 3: Leveraging data in advocacy

Location: Hall 1

Chair: Donna Coffin, MSc – World Federation of Hemophilia

WFH

5:00 PM - 5:15 PM MYT

Data-driven advocacy

Location: Hall 1

Speaker: Emna Gouider, MD (she/her/hers) – Aziza Othmana Hospital

WFH

5:15 PM - 5:30 PM MYT

Country experience: Driving change with data

Location: Hall 1

Speaker: Edwin Goh – Hemophilia Society of Malaysia

WFH

5:30 PM - 5:40 PM MYT

Q&A

Location: Hall 1

WFH

5:40 PM MYT

Session 4: Innovative use of data

Location: Hall 1

Chair: Donna Coffin, MSc – World Federation of Hemophilia

WFH

5:40 PM - 5:55 PM MYT

Monitoring novel therapies

Location: Hall 1

Speaker: Alfonso Iorio, MD, PhD, FRCP(C) (he/him/his) – McMaster University

WFH

5:55 PM - 6:10 PM MYT

Using data to drive systemic change

Location: Hall 1

Speaker: Brian O'Mahony, FACSLM (he/him/his) – Irish Haemophilia Society

WFH

6:10 PM - 6:20 PM MYT

Wrap up – Q&A

Location: Hall 1

WFH

4:45 PM - 6:15 PM MYT
(LABWKP3) Standards and Strategies for Quality in Hemostasis Testing
Laboratory Sciences

4:45 PM - 6:15 PM MYT

Standards and Strategies for Quality in Hemostasis Testing

Location: Hall 3

Laboratory Sciences

4:45 PM - 4:50 PM MYT

Welcome and introduction

Location: Hall 3

Co-Chair: Nitty S. Mathews, MD, PhD (he/him/his) – Christian Medical College Vellore

Co-Chair: Christopher Reilly-Stitt, MSc (he/him/his) – UKNEQAS BC

Laboratory Sciences

4:50 PM - 5:15 PM MYT

How internal quality control influences laboratory outcomes

Location: Hall 3

Speaker: Christopher Reilly-Stitt, MSc (he/him/his) – UKNEQAS BC

Laboratory Sciences

5:15 PM - 5:20 PM MYT

Q&A

Location: Hall 3

Speaker: Christopher Reilly-Stitt, MSc (he/him/his) – UKNEQAS BC

Laboratory Sciences

5:20 PM - 5:45 PM MYT

Lessons from coagulation laboratories in external quality programs: WFH-IEQAS Program - NEQAS BC

Location: Hall 3

Speaker: Ian Jennings, PhD – UK NEQAS For Blood Coagulation

Laboratory Sciences

5:45 PM - 5:50 PM MYT

Q&A

Location: Hall 3

Speaker: Ian Jennings, PhD – UK NEQAS For Blood Coagulation

Laboratory Sciences

5:50 PM - 6:15 PM MYT

Asia Focus Session: WFH-IEQAS Participation, Support and Regional Collaboration (interactive discussion)

Location: Hall 3

Speaker: Silmara Montalvao, PhD (she/her/hers) – University of Campinas Hemocentro UNICAMP, Brazil Campinas, São Paulo, Brazil

Speaker: Steve Kitchen, PhD (he/him/his) – UK NEQAS Blood Coagulation

Speaker: Wan Hui Wong, PhD (she/her/hers) – Singapore General Hospital

Laboratory Sciences

5:00 PM - 6:15 PM MYT
(MEDWP1) How to Run a Clinic
Medical

5:00 PM - 6:15 PM MYT

How to Run a Clinic

Location: Hall 2

Medical

5:01 PM - 6:15 PM MYT

How to Run a Clinic

Location: Hall 2

Speaker: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

Speaker: Manuel Carcao, MD, MSc (he/him/his) – Hospital for Sick Children

Medical

5:00 PM - 5:01 PM MYT

Welcome & introduction

Location: Hall 2

Speaker: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

Speaker: Manuel Carcao, MD, MSc (he/him/his) – Hospital for Sick Children

Medical

6:30 PM - 7:30 PM MYT
OPENING CEREMONY

6:30 PM - 7:30 PM MYT

OPENING CEREMONY

Location: Plenary Hall

7:30 PM - 9:30 PM MYT
WELCOME RECEPTION

7:30 PM - 9:30 PM MYT

WELCOME RECEPTION

Location: Ballroom 2